Attachment C-3 Sampling and Services User Questionnaire
Form Approved
OMB No.0920-0729
Assurance of Confidentiality
- We take your privacy very seriously. All information that relates
to or describes identifiable characteristics of individuals, a
practice, or an establishment will be used only for statistical
purposes. NCHS staff, contractors, and agents will not disclose or
release responses in identifiable form without the consent of the
individual or establishment in accordance with section 308(d) of the
Public Health Service Act (42 U.S.C. 242m(d)) and the Confidential
Information Protection and Statistical Efficiency Act of 2002
(CIPSEA, Title 5 of Public Law 107-347). In accordance with CIPSEA,
every NCHS employee, contractor, and agent has taken an oath and is
subject to a jail term of up to five years, a fine of up to
$250,000, or both if he or she willfully discloses ANY identifiable
information about you. In addition, NCHS complies with the Federal
Cybersecurity Enhancement Act of 2015 (6 U.S.C. §§ 151 &
151 note). This law requires the federal government to protect
federal computer networks by using computer security programs to
identify cybersecurity risks like hacking, internet attacks, and
other security weaknesses. If information sent through government
networks triggers a cyber-threat indicator, the information may be
intercepted and reviewed for cyber threats by computer network
experts working for, or on behalf of, the government.
Public reporting burden of
this collection of information is estimated to average 30 minutes
per response, including the time for reviewing instructions,
searching existing data/information sources, gathering and
maintaining the data/information needed, and completing and
reviewing the collection of information. An agency may not conduct
or sponsor, and a person is not required to respond to a collection
of information unless it displays a currently valid OMB control
number. Send comments regarding this burden estimate or any other
aspect of this collection of information, including suggestions for
reducing this burden to CDC/ATSDR Information Collection review
Office, 1600 Clifton Road NE, MS D-74, Atlanta, GA 30333. ATTN: PRA
(0920-0943).
Were you able to prepare a list of current [residents/participants] as of midnight yesterday?
IF YES: Using the list that you have prepared, I will talk you through a few steps to determine which two [residents/participants] currently [living/enrolled] at this [residential care community/adult day services center] to select. PROCEED TO SAMPLING INSTRUCTIONS.
IF NO: I can stay on the line now while you print or write a list of your current [residents/participants] [living/enrolled] at this [residential care community/adult day services center] as of midnight yesterday. IF ABLE TO DRAFT LIST WHILE ON THE PHONE PROCEED TO SAMPLING INSTRUCTIONS. IF NEEDS TIME TO DRAFT LIST: Is this a good time of day to call back or is there a better time to reach you? Thank you very much for your time. I will call you back. END CALL
SAMPLING INSTRUCTIONS
Starting at the top of the list, number each [resident/participant] and please let me know when you are done.
WHEN RESPONDENT IS DONE NUMBERING: How many residents/participants are on the list?
BASED ON THE NUMBER OF RESIDENTS/PARTICIPANTS REPORTED, CATI WILL GENERATE A LIST OF THOSE NUMBERS IN RANDOM ORDER USING THE RANDOM FUNCTION. PROVIDE THE 2 NUMBERS THAT ARE AT THE TOP OF THE LIST YOU RANDOMLY GENERATED. Please circle the two [residents/participants] that correspond with [number 1] and [number 2]. Our system randomly picked these two numbers.
Please record the first and last initials of the two [residents/participants] that you circled. What are the initials you recorded?
I will ask you questions about these two [residents/participants] that we have just selected using only their initials. You may need to access their records to answer some of the questions. OFFER TO WAIT WHILE R RETRIEVES RECORDS.
COMPLETE QUESTIONNAIRE FOR EACH RESIDENT/PARTICIPANT SELECTED
Services User Questionnaire Items Notes: 1) Brackets [ ] or { } indicate fills to be programmed into CATI, based on sector (ADSC or RCC) or a respondent's response to a previous item. 2) "Ask if only" column refers to skips to be programmed into CATI based on a respondent's response to a previous item. 3) Text in CAPITAL letters is not read to respondent. |
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Item
wording |
ADSC |
RCC |
ASK ONLY IF… |
Item # on
questionnaire |
If cell blank, ask for all cases |
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Introduction |
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In order to obtain national
level data about the [residents/participants] of [residential care
communities/adult day services centers], we are collecting
information about a sample of current [residents/participants]. I
will be asking questions about the background, health status, and
charges for each of the two people sampled. The information you
provide will be held in strict confidence and will be used only by
persons involved in the survey and only for the purpose of the
survey. The interview for each selected [resident/participant]
should take on average about 10 minutes to complete. |
1 |
1 |
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Now I am going to ask questions about the following [resident/participant] – [READ SAMPLED PERSON'S INITIALS]. |
2 |
2 |
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We ask that you have [SAMPLED PERSON'S INITIALS]'s file to refer to as we talk. Do you have the records for [SAMPLED PERSON'S INITIALS]? IF NO: If you have not retrieved [SAMPLED PERSON'S INITIALS] records and would like to do so now, I can wait a few minutes while you get them. [PROCEED AFTER R GETS RECORDS OR WANTS TO CONTINUE WITHOUT RECORDS] |
3 |
3 |
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Demographics and Length of Stay |
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What is [SAMPLED PERSON'S INITIALS]'s gender? MALE, FEMALE |
4 |
4 |
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What is [SAMPLED PERSON'S INITIALS]'s age in years? [RECORD SPECIFIC AGE] [RANGE 0-120] IF NECESSARY: Please give your best estimate. |
5 |
5 |
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Is [SAMPLED PERSON'S INITIALS] of Hispanic, Latino, or Spanish origin or descent? YES, NO, DON'T KNOW |
6 |
6 |
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DIRECT R TO SHOWCARD Which one or more of the following would you say is [SAMPLED PERSON'S INITIALS]'s race? Please tell me the numbers that apply from the showcard. Any others? SELECT ALL THAT APPLY1 AMERICAN INDIAN OR ALASKA NATIVE2 ASIAN3 BLACK4 NATIVE HAWAIIAN OR OTHER PACIFIC ISLANDER5 WHITE |
7 |
7 |
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When did [SAMPLED PERSON'S
INITIALS] first [move into this residential care
community/become enrolled at this center]? (RECORD MONTH AND
YEAR) |
8 |
8 |
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DIRECT R TO SHOWCARD Approximately how long has it been since [SAMPLED PERSON'S INITIALS] first [moved into this residential care community/became enrolled at this adult day services center]? 1 0 TO 3 MONTHS 2 MORE THAN 3 MONTHS TO 6 MONTHS 3 MORE THAN 6 MONTHS TO 1 YEAR 4 MORE THAN 1 YEAR TO 3 YEARS 5 MORE THAN 3 YEARS TO 5 YEARS 6 MORE THAN 5 YEARS |
9 |
9 |
DON'T KNOW to previous item |
Living Arrangements |
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DIRECT R TO SHOWCARD 1
PRIVATE RESIDENCE (HOUSE, APARTMENT, ROOM) |
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10 |
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DIRECT R TO SHOWCARD Where does [SAMPLED PERSON'S INITIALS] now live? 1 PRIVATE RESIDENCE (HOUSE, APARTMENT, ROOM) 2 RETIREMENT OR INDEPENDENT LIVING COMMUNITY 3 ASSISTED LIVING, RESIDENTIAL CARE COMMUNITY, OR GROUP HOME 4 NURSING HOME OR OTHER INSTITUTIONAL SETTING (> 100 DAYS) 5 INTERMEDIATE CARE FACILITY FOR INDIVIDUALS WITH INTELLECTUAL OR DEVELOPMENTAL DISABILITIES 6 OTHER |
10 |
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Who does [SAMPLED PERSON'S INITIALS] live with? Do they live … SELECT
ALL THAT APPLY |
11 |
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Response option 1 or 2 is selected in previous item |
At this residential care community, does [SAMPLED PERSON'S INITIALS] currently share [his/her] room or apartment with another person? YES, NO |
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11 |
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Is this person [SAMPLED PERSON'S INITIALS]'s partner, spouse, or other relative? YES, NO |
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12 |
YES to previous item |
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Does [SAMPLED PERSON'S INITIALS] live in a distinct unit, wing, or floor that is designated as an Alzheimer's Disease, dementia, or memory care unit at this residential care community? YES, NO |
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13 |
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Charges and Payment Sources |
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In a typical week, how many days does [SAMPLED PERSON'S INITIALS] attend the adult day services center? 1-7 |
12 |
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On the day[s] when [SAMPLED PERSON'S INITIALS] attends the adult day services center, does [she/he] typically attend 5 hours or more, or less than 5 hours? 5 HOURS OR MORE, LESS THAN 5 HOURS |
13 |
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ADSC VERSION (DAILY CHARGE)
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14 |
14 |
SU at ADSC/RCC > 1 month. |
DIRECT R TO SHOWCARD For the last complete month, what is the one primary payment source for [SAMPLED PERSON'S INITIALS]'s adult day services charges? SELECT ONLY ONE
IF PAYMENT NOT RECEIVED YET, ASK: What is the expected primary source of payment?
1 MEDICAID (INCLUDE MEDICAID STATE PLAN, MEDICAID WAIVER, MEDICAID MANAGED CARE, OR CALIFORNIA REGIONAL CENTER) 2 MEDICARE (INCLUDE MEDICARE ADVANTAGE MANAGED CARE PLAN) 3 OLDER AMERICANS ACT/TITLE III 4 VETERANS ADMINISTRATION 5 PROGRAM OF ALL-INCLUSIVE CARE FOR THE ELDERLY (PACE) 6 OTHER FEDERAL, STATE, OR LOCAL GOVERNMENT 7 OUT-OF-POCKET PAYMENT BY THE PARTICIPANT OR FAMILY 8 PRIVATE INSURANCE 9 OTHER SOURCE |
15 |
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SU at ADSC > 1 month. |
{For the last complete month/(if < 30 days since moved in/started) Since [SAMPLED PERSON'S INITIALS] [started living at/was enrolled in]} this [residential care community/adult day services center], did Medicaid pay for any of the services that [SAMPLED PERSON'S INITIALS] received at this [residential care community/adult day services center]? Please include any funding from a Medicaid state plan, Medicaid waiver, Medicaid managed care [IF IN CALIFORNIA AND ADSC: or California regional center]. YES, NO, DON'T KNOW |
16 |
15 |
Ask for all RCCs. |
Health and Functional Status, Health Care Use, and Service Use |
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DIRECT R TO SHOWCARD.
As far as you know, has a
doctor or other health professional ever diagnosed [SAMPLED
PERSON'S INITIALS] with any of the conditions on the
showcard? Please tell me the numbers that apply from the
showcard. Any others? SELECT ALL THAT APPLY 21 INTELLECTUAL OR DEVELOPMENTAL DISABILITIES 22 KIDNEY DISEASE 23 MACULAR DEGENERATION 24 MUSCULAR DYSTROPHY 25 MULTIPLE SCLEROSIS 26 OBESITY 27 OSTEOPOROSIS 28 PARKINSON’S DISEASE 29 PARTIAL OR TOTAL PARALYSIS 30 PRESSURE WOUND/INJURY 31 SEVERE MENTAL ILLNESS SUCH AS SCHIZOPHRENIA OR PSYCHOSIS OR BIPOLAR DISORDER (EXCLUDES DEPRESSION OR ANXIETY DISORDER) 32 SPINAL CORD INJURY 33 STROKE 34 TRAUMATIC BRAIN INJURY 35 NONE OF THESE |
17 |
16 |
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The next question asks
about prescription medications [SAMPLED PERSON'S INITIALS] may
take. Include standing and PRN or as needed medications, but
exclude over-the-counter medications or supplements, unless they
have been prescribed by a health care provider. About how many
prescription medications does [SAMPLED PERSON'S INITIALS]
currently take on a typical day? Would you say…0, 1-2,
3-4, 5-6, 7-8, 9-10, or more than 10? |
18 |
17 |
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DIRECT R TO SHOWCARD The showcard lists the generic and brand names of antipsychotic medications. In the last 7 days, which, if any, of these medications did [SAMPLED PERSON'S INITIALS] receive, either on an as needed PRN basis or on a routine basis? Please tell me the numbers that apply from the showcard. Any others? SELECT ALL THAT APPLY 1 ABILIFY (ARIPIPRAZOLE) 2 CLOZARIL OR FAZACLO (CLOZAPINE) 3 FANAPT (ILOPERIDON) 4 GEODON (ZIPRASIDONE) 5 HALDOL (HALOPERIDOL) 6 INVEGA (PALIPERIDONE) 7 LOXITANE (LOXAPINE) 8 NAVANE (THIOTHIXENE) 9 ORAP (PIMOZIDE) 10 RISPERDAL (RISPERIDONE) 11 SAPHRIS (ASENAPINE) 12 SEROQUEL (QUETIAPINE) 13 ZYPREXA (OLANZAPINE) |
19 |
18 |
SU has ADOD in DX item above |
The next questions ask
about difficulties (SAMPLED PERSON'S INITIALS) may have doing
certain activities because of a health problem. How much
difficulty does (SAMPLED PERSON'S INITIALS) have remembering
or concentrating? Would you say no difficulty, some
difficulty, a lot of difficulty, or cannot do at all? |
20 |
19 |
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How much difficulty does
(SAMPLED PERSON'S INITIALS) have seeing, even if wearing
glasses? No difficulty, some difficulty, a lot of difficulty,
or cannot do at all? |
21 |
20 |
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How much difficulty does
(SAMPLED PERSON'S INITIALS) have hearing, even if using a
hearing aid? (No difficulty, some difficulty, a lot of
difficulty, or cannot do at all?) |
22 |
21 |
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How much difficulty does
(SAMPLED PERSON'S INITIALS) have walking or climbing steps?
(No difficulty, some difficulty, a lot of difficulty, or cannot
do at all?) |
23 |
22 |
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How much difficulty does
(SAMPLED PERSON'S INITIALS) have self-care such as washing all
over or dressing? (No difficulty, some difficulty, a lot of
difficulty, or cannot do at all?) |
24 |
23 |
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Using [her/his] usual
customary language, how much difficulty does (SAMPLED PERSON'S
INITIALS) have communicating, for example understanding or
being understood? (No difficulty, some difficulty, a lot of
difficulty, or cannot do at all?) 2 SOME DIFFICULTY 3 A LOT OF DIFFICULTY 4 CANNOT DO AT ALL |
25 |
24 |
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The next questions ask about assistance [SAMPLED PERSON'S INITIALS] may need to perform certain activities. |
26 |
25 |
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Which types of assistance,
if any, does [SAMPLED PERSON'S INITIALS] currently need to (IF
ADSC: Transfer in and out of a chair/IF RCC: Transfer
in and out of a bed or chair) [(IF ADSC) at their usual
residence or this adult day services center]?) Does [SAMPLED
PERSON'S INITIALS] need any help or supervision from another
person, use an assistive device, both, or need no assistance? 3
BOTH |
27 |
26 |
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Which types of assistance,
if any, does [SAMPLED PERSON'S INITIALS] currently need to eat,
like cutting up food [(IF ADSC) at their usual residence or
this adult day services center]?) Does [SAMPLED PERSON'S
INITIALS] need any help or supervision from another person, use
an assistive device, both, or need no assistance? 3
BOTH |
28 |
27 |
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Which types of assistance,
if any, does [SAMPLED PERSON'S INITIALS] currently need to dress
[(IF ADSC) at their usual residence or this adult day
services center]?) (Does [SAMPLED PERSON'S INITIALS] need any
help or supervision from another person, use an assistive device,
both, or need no assistance?) 3
BOTH |
29 |
28 |
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Which types of assistance,
if any, does [SAMPLED PERSON'S INITIALS] currently need to bathe
or shower [(IF ADSC) at their usual residence or this adult
day services center]?) (Does [SAMPLED PERSON'S INITIALS] need any
help or supervision from another person, use an assistive device,
both, or need no assistance?) 3
BOTH |
30 |
29 |
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Which types of assistance,
if any, does [SAMPLED PERSON'S INITIALS] currently need to use
the bathroom or toileting [(IF ADSC) at their usual residence
or this adult day services center]?) (Does [SAMPLED PERSON'S
INITIALS] need any help or supervision from another person, use
an assistive device, both, or need no assistance?) 3
BOTH |
31 |
30 |
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Which types of assistance,
if any, does [SAMPLED PERSON'S INITIALS] currently need for
locomotion or to walk [(IF ADSC) at their usual
residence or this adult day services center]?) (Does [SAMPLED
PERSON'S INITIALS] need any help or supervision from another
person, use an assistive device, both, or need no assistance?) 3
BOTH |
32 |
31 |
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DIRECT R TO SHOWCARD |
33 |
32 |
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During the {past 12 months/(if < 12 months since moved in/started) # months since [SAMPLED PERSON'S INITIALS] (moved into this residential care community/became enrolled at this adult day services center)}, was [SAMPLED PERSON'S INITIALS] treated in a hospital emergency department? YES, NO, DON'T KNOW |
34 |
33 |
At ADSC/RCC > 90 days (from prior LOS items) |
During the {past 90 days/(if < 90 days moved in/started) # days since [SAMPLED PERSON'S INITIALS] moved into this residential care community/became enrolled at this adult day services center)}, was [SAMPLED PERSON'S INITIALS] treated in a hospital emergency department? YES, NO, DON'T KNOW |
35 |
34 |
YES to 12-month ED visit item above. |
During the {past 12 months/(if < 12 months since moved in/started) # months since [SAMPLED PERSON'S INITIALS] [started living at/was enrolled in] this [residential care community/adult day services center]}, was [SAMPLED PERSON'S INITIALS] discharged from an overnight hospital stay? Exclude trips to the hospital emergency department that did not result in an overnight hospital stay. YES, NO, DON'T KNOW |
36 |
35 |
At ADSC/RCC > 90 days (from prior LOS items) |
Was [SAMPLED PERSON'S INITIALS] discharged from an overnight hospital stay in the {past 90 days/(if < 90 days since moved in/started) # days since [SAMPLED PERSON'S INITIALS] [started living at/was enrolled in] this [residential care community/adult day services center]}? Exclude trips to the hospital emergency department that did not result in an overnight hospital stay. YES, NO, DON'T KNOW |
37 |
36 |
YES to 12-month hospital discharge item above. |
DIRECT R TO SHOWCARD What was the one primary reason for [SAMPLED PERSON'S INITIALS]'s hospitalization? If [she/he] had more than one hospital discharge in the last 90 days, answer for the most recent hospital discharge.
1 ASTHMA 2 BRONCHITIS 3 C. DIFFICILE INFECTION 4 CHRONIC OBSTRUCTIVE PULMONARY DISEASE (COPD) 5 CONGESTIVE HEART FAILURE (CHF) 6 CONSTIPATION/INTESTINAL IMPACTION 7 DEHYDRATION 8 DIABETES—SHORT-TERM COMPLICATION 9 DISEASES OF THE SKIN 10 FALLS AND TRAUMA 11 HYPERTENSION OR HYPOTENSION 12 MENTAL STATUS CHANGES 13 PNEUMONIA 14 PRESSURE INJURY/ULCER 15 URINARY TRACT OR KIDNEY INFECTION 16 NONE OF THE ABOVE |
38 |
37 |
YES to 90-day hospital discharge item above. |
Was [SAMPLED PERSON'S INITIALS] re-admitted to the hospital for an overnight stay within 30 days of this hospital discharge? Include outpatient observation and inpatient admission. YES, NO, DON'T KNOW" |
39 |
38 |
YES to 90-day hospital discharge item above. |
The next section asks whether [SAMPLED PERSON'S INITIALS] has had any falls. By falls we mean any fall, slip, or trip in which [SAMPLED PERSON'S INITIALS] lost [his/her] balance and landed on the floor or ground or at a lower level. Please include falls that occurred at your [adult day services center/residential care community] or off-site, whether or not [SAMPLED PERSON'S INITIALS] was injured, and whether or not anyone saw [SAMPLED PERSON'S INITIALS] fall or caught them. As best you know, during the {past 90 days/# days since [SAMPLED PERSON'S INITIALS] moved into this residential care community/became enrolled at this adult day services center), how many falls has [SAMPLED PERSON'S INITIALS] had? 0-100, DON'T KNOW |
40 |
39 |
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IF > 1 FALL IN "HOW
MANY FALLS" ITEM ABOVE: As best you know, did any of these
falls that [SAMPLED PERSON'S INITIALS] had in the {past 90
days/(if < 90 days since started) # days since [SAMPLED
PERSON'S INITIALS] [moved into this residential care
community/was enrolled in this adult day services center] occur
at the [residential care community/adult day services center]?
YES, NO, DON'T KNOW |
41 |
40 |
>0 to how many falls item above. |
DIRECT R TO SHOWCARD |
42 |
41 |
>0 to any falls item above. |
DIRECT R TO SHOWCARD The following services may be offered by [adult day services center/residential care community] staff or provided at the [center/community] by non-[center/community] staff. Which of these services does [SAMPLED PERSON'S INITIALS] currently use? Please tell me the numbers that apply from the showcard. Any others? SELECT ALL THAT APPLY 1 ASSISTANCE FROM A PERSON WITH AT LEAST ONE ACTIVITY OF DAILY LIVING (BATHING, DRESSING, EATING, TOILETING, TRANSFERRING) 2 BEHAVIORAL OR MENTAL HEALTH—TARGET RESIDENTS' MENTAL, EMOTIONAL, PSYCHOLOGICAL, OR PSYCHIATRIC WELL-BEING, AND MAY INCLUDE DIAGNOSING, DESCRIBING, EVALUATING, AND TREATING MENTAL CONDITIONS 3 CONTINENCE MANAGEMENT (E.G., ABSORBENT PADS, BLADDER OR BOWEL RETRAINING, CATHETER, MEDICATION, TOILETING REGIME) 4 DENTAL (ROUTINE OR EMERGENCY BY LICENSED DENTIST) 5 DIETARY OR NUTRITIONAL 6 HOSPICE 7 MANAGE, SUPERVISE, OR STORE MEDICATIONS; ADMINISTER MEDICATIONS; OR PROVIDE ASSISTANCE WITH SELF-ADMINISTRATION OF MEDICATIONS 8 OCCUPATIONAL THERAPY 9 PAIN MANAGEMENT (MEDICATION OR NON-PHARMACOLGICAL APPROACHES) 10 PALLIATIVE CARE (RELIEF FROM SYMPTOMS, PAIN, AND STRESS OF SERIOUS ILLNESS, REGARDLESS OF DIAGNOSIS) 11 PHARMACY--INCLUDING FILLING OF OR DELIVERY OF PRESCRIPTIONS 12 PHYSICAL THERAPY 13 PODIATRY 14 SKILLED NURSING--MUST BE PERFORMED BY AN RN OR LPN/LVN AND ARE MEDICAL IN NATURE 15 SKIN WOUND/INJURY CARE 16 SOCIAL WORK—PROVIDED BY LICENSED SOCIAL WORKERS OR PERSONS WITH A BACHELOR’S OR MASTER’S DEGREE IN SOCIAL WORK, AND MAY INCLUDE AN ARRAY OF SERVICES SUCH AS PSYCHOSOCIAL ASSESSMENT, INDIVIDUAL OR GROUP COUNSELING, AND REFERRAL SERVICES 17 SPEECH THERAPY 18 TRANSPORTATION FOR MEDICAL OR DENTAL APPOINTMENTS 19 TRANSPORTATION FOR SOCIAL AND RECREATIONAL ACTIVITIES OR SHOPPING 20 TRANSPORTATION TO/FROM THIS CENTER [ADSC ONLY] 21 NONE OF THE ABOVE |
43 |
42 |
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DIRECT R TO SHOWCARD |
44 |
43 |
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DIRECT R TO SHOWCARD As far as you know, at any time in the last 7 days has [SAMPLED PERSON'S INITIALS] exhibited any verbal or physical behavioral symptoms directed toward others, for example threatening, screaming, cursing, hitting, kicking, pushing, scratching, grabbing, or abusing others sexually [IF ADSC: , either at their usual residence or this center]?
1 YES, VERBAL ONLY 2 YES, PHYSICAL ONLY 3 YES, BOTH VERBAL AND PHYSICAL 4 NO, NEITHER |
45 |
44 |
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File Type | application/vnd.openxmlformats-officedocument.wordprocessingml.document |
Author | CDC User |
File Modified | 0000-00-00 |
File Created | 2021-01-21 |