Aim2a Cohort Follow-up Survey English

Welcome back to EPICC!

C. HEALTHCARE ACCESS, COMMUNICATION, AND STI TESTING/DIAGNOSIS

C2. What kind of health insurance or coverage do you currently have? Select all that apply.

D. HIV

E. PrEP Routing

[ALL FOLLOW-UP SURVEYS]

HIV pre-exposure prophylaxis, or PrEP, is a medication that can be used to reduce the risk of HIV infection. PrEP is prescribed by a doctor/health care provider.

E1. Are you currently using PrEP?

[Yes = skip to Section F]

E2. Have you previously used PrEP?

[No = skip to E4]

E3. Are you planning on restarting PrEP soon (by soon, we mean in the next 1-2 weeks)?

[Yes = skip to Section H; Otherwise skip to Section I]

E4. Are you planning on starting PrEP soon (by soon, we mean in the next 1-2 weeks)?

[Yes = skip to section G; Otherwise skip to Section J]

F. Current PrEP Use

[ALL FOLLOW-UP SURVEYS]

F1. What kind of PrEP are you currently using?

Daily oral PrEP

A pill taken daily

Truvada®, Descovy®, emtricitabine/tenofovir disoproxil fumarate, emtricitabine/tenofovir alafenamide

Intermittent oral PrEP

A pill taken before and after sex. Also called PrEP 2-1-1, on-demand, intermittent, or event-driven PrEP

Truvada®, emtricitabine/tenofovir disoproxil fumarate

Injectable PrEP

A shot, an injection given by a doctor/health care provider

Apretude®, cabotegravir

Yeztugo®, lenacapavir

[Questions F3 – F21 only pertain to those on PrEP at the previous survey]

[Questions F22 – F38 only pertain to those NOT on PrEP at the previous survey – including those who were planning/considering starting but were not yet on PrEP]

[If on PrEP at last survey: F3; otherwise skip to F22]

F3. At your last survey on [pipe in date], you reported using [pipe in modality here]. You indicated that you’re currently using [pipe in F1 response]. Is this correct?

[F4-F7 are for those where current modality is different from previous modality]

[If current modality is the same as previous survey, skip to F7]

[If current modality != modality from last survey, otherwise skip to F8]

[Month]

[Day]

[Year]

Decline to answer

[Month]

[Day]

[Year]

Decline to answer

F8. Since your last survey on [pipe in date] where you were using [pipe in modality], have you used any other kind of PrEP other than what you are currently using?

[Yes=F9, otherwise F39]

Decline to answer

F9. Besides [modality from previous visit] and [modality they’re currently using], what other kind(s) of PrEP have you used since your last survey? Please rank them in order of use (1=first type of PrEP used since last survey, 2 = 2^nd type of PrEP used, etc.).

Daily oral PrEP

A pill taken daily

Truvada®, Descovy®, emtricitabine/tenofovir disoproxil fumarate, emtricitabine/tenofovir alafenamide

Intermittent oral PrEP

A pill taken before and after sex. Also called PrEP 2-1-1, on-demand, intermittent, or event-driven PrEP

Truvada®, emtricitabine/tenofovir disoproxil fumarate

Injectable PrEP

A shot, an injection given by a doctor/health care provider

Apretude®, cabotegravir

Yeztugo®, lenacapavir

[Month]

[Day]

[Year]

Decline to answer

[Month]

[Day]

[Year]

Decline to answer

[Month]

[Day]

[Year]

[Month]

[Day]

[Year]

[F23 – F39 for those NOT on PrEP at last survey; if on PrEP at previous survey, skip to F40]

[For those not on PrEP at last survey]

[Month]

[Day

[Year]

Decline to answer

[For those not on PrEP at last survey]

F26. Since your last survey on [pipe in date], have you used any other kind of PrEP other than what you are currently using?

[Yes=F27, otherwise F40]

F27. What kind(s) of PrEP have you used since your last survey other than what you’re currently using? Please rank them in order of use (1=first type of PrEP used since last survey, 2 = 2^nd type of PrEP used, etc.). If you have only used one other type of PrEP since [pipe in last survey date], please put a “1” next to that method.

Daily oral PrEP

A pill taken daily

Truvada®, Descovy®, emtricitabine/tenofovir disoproxil fumarate, emtricitabine/tenofovir alafenamide

Intermittent oral PrEP

A pill taken before and after sex. Also called PrEP 2-1-1, on-demand, intermittent, or event-driven PrEP

Truvada®, emtricitabine/tenofovir disoproxil fumarate

Injectable PrEP

A shot, an injection given by a doctor/health care provider

Apretude®, cabotegravir

Yeztugo®, lenacapavir

[Month]

[Day]

[Year]

Decline to answer

[Month]

[Day]

[Year]

Decline to answer

[Month]

[Day]

[Year]

Decline to answer

[Month]

[Day]

[Year]

Decline to answer

[All current PrEP users: F40-F54]

Daily oral PrEP

A pill taken daily

Truvada®, Descovy®, emtricitabine/tenofovir disoproxil fumarate, emtricitabine/tenofovir alafenamide

Intermittent oral PrEP

A pill taken before and after sex. Also called PrEP 2-1-1, on-demand, intermittent, or event-driven PrEP

Truvada®, emtricitabine/tenofovir disoproxil fumarate

Injectable PrEP

A shot, an injection given by a doctor/health care provider

Apretude®, cabotegravir

Yeztugo®, lenacapavir

G3. When are you planning on starting PrEP. It’s OK if you don’t know the exact date. Please provide your best guess.

[Month]

[Day]

[Year]

Decline to answer

Daily oral PrEP

A pill taken daily

Truvada®, Descovy®, emtricitabine/tenofovir disoproxil fumarate, emtricitabine/tenofovir alafenamide

Intermittent oral PrEP

A pill taken before and after sex. Also called PrEP 2-1-1, on-demand, intermittent, or event-driven PrEP

Truvada®, emtricitabine/tenofovir disoproxil fumarate

Injectable PrEP

A shot, an injection given by a doctor/health care provider

Apretude®, cabotegravir

Yeztugo®, lenacapavir

H3. When are you planning on restarting PrEP. It’s OK if you don’t know the exact date. Please provide your best guess.

[Month]

[Day]

[Year]

Decline to answer

H4. At your last survey on [pipe in date] you reported using [pipe in modality]. When did you last stop this medication? It’s OK if you don’t know the exact date. Please provide your best guess.

[Month]

[Day]

[Year]

Decline to answer

H10. Since your last survey on [pipe in date] where you were using [pipe in modality], have you used any other kind of PrEP other than what you are planning to start?

[Yes=H11, otherwise H23]

H11. Since your last survey on [pipe in date], have you used any other kind of PrEP other than what you are planning to start?

[Yes=H12, otherwise H24]

H12. Besides [modality from previous visit if on PrEP then] and [modality they’re planning to use], what other kind(s) of PrEP have you used since your last survey? Please rank them in order of use (1=first type of PrEP used since last survey, 2 = 2^nd type of PrEP used, etc.). If you have only used one other type of PrEP since [pipe in last survey date], please put a “1” next to that method.

Daily oral PrEP

A pill taken daily

Truvada®, Descovy®, emtricitabine/tenofovir disoproxil fumarate, emtricitabine/tenofovir alafenamide

Intermittent oral PrEP

A pill taken before and after sex. Also called PrEP 2-1-1, on-demand, intermittent, or event-driven PrEP

Truvada®, emtricitabine/tenofovir disoproxil fumarate

Injectable PrEP

A shot, an injection given by a doctor/health care provider

Apretude®, cabotegravir

Yeztugo®, lenacapavir

[Month]

[Day]

[Year]

Decline to answer

[Month]

[Day]

[Year]

Decline to answer

[Month]

[Day]

[Year]

Decline to answer

[Month]

[Day]

[Year]

Decline to answer

I. Previous PrEP users: not restarting/unsure

[I1-I7 if on PrEP at previous survey, otherwise skip to I8]

I1. At your last survey on [pipe in date] you reported using [pipe in modality]. When did you last stop this medication? It’s OK if you don’t know the exact date. Please provide your best guess.

[Month]

[Day]

[Year]

Decline to answer

I7. Since your last survey on [pipe in date] where you were using [pipe in modality], have you used any other kind of PrEP?

[Yes=I9, otherwise I22]

I8. Since your last survey on [pipe in date], have you used any other kind of PrEP?

[Yes=I9, otherwise I22]

I9. Besides [modality from previous visit if on PrEP then], what kind(s) of PrEP have you used since your last survey? Please rank them in order of use (1=first type of PrEP used since last survey, 2 = 2^nd type of PrEP used, etc.). If you have only used one other type of PrEP since [pipe in last survey date], please put a “1” next to that method.

Daily oral PrEP

A pill taken daily

Truvada®, Descovy®, emtricitabine/tenofovir disoproxil fumarate, emtricitabine/tenofovir alafenamide

Intermittent oral PrEP

A pill taken before and after sex. Also called PrEP 2-1-1, on-demand, intermittent, or event-driven PrEP

Truvada®, emtricitabine/tenofovir disoproxil fumarate

Injectable PrEP

A shot, an injection given by a doctor/health care provider

Apretude®, cabotegravir

Yeztugo®, lenacapavir

[Month]

[Day]

[Year]

Decline to answer

[Month]

[Day]

[Year]

Decline to answer

[Month]

[Day]

[Year]

Decline to answer

[Month]

[Day]

[Year]

Decline to answer

[If E3=No, skip to I30]

Daily oral PrEP

A pill taken daily

Truvada®, Descovy®, emtricitabine/tenofovir disoproxil fumarate, emtricitabine/tenofovir alafenamide

Intermittent oral PrEP

A pill taken before and after sex. Also called PrEP 2-1-1, on-demand, intermittent, or event-driven PrEP

Truvada®, emtricitabine/tenofovir disoproxil fumarate

Injectable PrEP

A shot, an injection given by a doctor/health care provider

Apretude®, cabotegravir

Yeztugo®, lenacapavir

I25. When are you planning on possibly restarting PrEP. It’s OK if you don’t know the exact date. Please provide your best guess.

[Month]

[Day]

[Year]

Decline to answer

I29. Why are you unsure about whether you want to restart PrEP? Select all that apply.

[Only if E3=No; otherwise skip to I35]

I31. What are the reasons why you are not planning to restart PrEP at this time. Select all that apply.

J. Never used PrEP: not starting/unsure

[J1-J8: Unsure about starting]

[J9-J12: Not planning to start]

[If E4=No, skip to J9]

Daily oral PrEP

A pill taken daily

Truvada®, Descovy®, emtricitabine/tenofovir disoproxil fumarate, emtricitabine/tenofovir alafenamide

Intermittent oral PrEP

A pill taken before and after sex. Also called PrEP 2-1-1, on-demand, intermittent, or event-driven PrEP

Truvada®, emtricitabine/tenofovir disoproxil fumarate

Injectable PrEP

A shot, an injection given by a doctor/health care provider

Apretude®, cabotegravir

Yeztugo®, lenacapavir

J3. When are you planning on possibly starting PrEP. It’s OK if you don’t know the exact date. Please provide your best guess.

[Month]

[Day]

[Year]

Decline to answer

J7. Why are you unsure about whether you want to start PrEP? Select all that apply.

[If E4=No; otherwise skip to J13]

J9. What are the reasons why you are not planning to start PrEP at this time. Select all that apply.

K. PrEP Choices

[All follow-up visits]

[If F1, G1, H1 = Daily oral PrEP then K1-K2]

[If F1, G1, H1 = Intermittent oral PrEP then K3-K4]

[If F1, G1, H1 = Injectable PrEP then K5-K6]

[If F1, G1, H1 = Other or Decline to answer then K13]

[If I22, J1 = Daily oral PrEP then K7-K8]

[If I22, J1 = Intermittent oral PrEP then K9-K10]

[If I22, J1 = Injectable PrEP then K11-K12]

[If I22, J1 = Other or Decline to answer then K13]

K1. Why have you chosen to use daily oral PrEP, rather than a different kind of PrEP? (Choose all that apply)

-------------------------------

K3. Why have you chosen to use intermittent oral PrEP, rather than a different kind of PrEP? (Choose all that apply)

-------------------------------

K5. Why have you chosen to use injectable PrEP, rather than a different kind of PrEP? (Choose all that apply)

K7. Why are you considering daily oral PrEP, rather than a different kind of PrEP? (Choose all that apply)

-------------------------------

K9. Why are you considering intermittent oral PrEP, rather than a different kind of PrEP? (Choose all that apply)

-------------------------------

K11. Why are you considering injectable PrEP, rather than a different kind of PrEP? (Choose all that apply)

[If F1, G1, H1 = Daily oral PrEP then L1-L5]

[If F1, G1, H1 = Intermittent oral PrEP then L6-L10]

[If F1, G1, H1 = Injectable PrEP then L11-L16]

[If I22, J1 = Daily oral PrEP then L5]

[If I22, J1 = Intermittent oral PrEP then L10]

[If I22, J1 = Injectable PrEP then L16]

[ALL PARTICIPANTS SHOULD ANSWER L17 REGARDLESS OF PREP USE]

-------------------------------

-------------------------------

M. TECHNOLOGY USE AND ONLINE PARTNER SEEKING BEHAVIOR

N. RELATIONSHIPS AND SEXUAL HEALTH PRIORITIES

O. SEXUAL BEHAVIORS

[ANAL RECEPTIVE]

-------------------------------

-------------------------------

[ANAL INSERTIVE]

-------------------------------

-------------------------------

[VAGINAL]

-------------------------------

[NCHHSTP] Expanding PrEP in Communities of Color (EPICC)

Att 4k_Aim2a Cohort Follow Up Survey_English_Clean

Aim 2a Cohort Follow Up Survey (English/Spanish)

OMB: 0920-1423

C7. How likely are you to get tested for STIs in the next 3 months?

L2. In the past 3 months, what percent of the time did you take your PrEP as prescribed (once a day)? Use the scale below. 0% would mean ‘NONE’ of the time and 100% would mean ‘ALL’ of the time. If you are unsure, make a guess.

% medication taken:

How confident are you that you can...

Take PrEP on a weekday

Take PrEP while traveling:

Take PrEP when out with friends:

Take PrEP at work/school:

Take PrEP when having a crisis:

Take PrEP when drinking or using drugs:

How confident are you that you can...

Take PrEP on a weekend if needed:

Take PrEP on a weekday if needed:

Take PrEP while traveling if needed:

Take PrEP when out with friends if needed:

Take PrEP at work/school if needed:

Take PrEP when having a crisis:

Take PrEP when drinking or using drugs if needed:

How confident are you that you can...

Document [docx]

Download: docx | pdf

Form Approved

OMB No. 0920-1423

Expiration Date: 12/31/2026

Expanding PrEP in Communities of Color (EPICC+)

Attachment 4k

Aim 2a Cohort Follow Up Survey English

Public reporting burden of this collection of information is estimated to average 45 minutes per response, including the time for reviewing instructions, searching existing data sources, gathering and maintaining the data needed, and completing and reviewing the collection of information. An agency may not conduct or sponsor, and a person is not required to respond to a collection of information unless it displays a currently valid OMB control number. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden to CDC/ATSDR Reports Clearance Officer; 1600 Clifton Road NE, MS D-74, Atlanta, Georgia 30333; Attn: OMB-PRA (0920-New)

Cohort Follow Up Survey

Table of Contents

B. SOCIOECONOMIC AND RISK CORRELATES

C. HEALTHCARE ACCESS, COMMUNICATION, AND STI TESTING/DIAGNOSIS

D. HIV

E. PrEP ROUTING

F. CURRENT PrEP USE

G. NEW PrEP PRESCRIPTION

H. PrEP RESTART

I. PREVIOUS PrEP USE: NO PLANS TO RESTART/UNSURE

J. NO PRIOR PrEP USE: NO PLANS TO START/UNSURE

K. PrEP CHOICES

L. PREP ADHERENCE AND BARRIERS

M. TECHNOLOGY USE AND ONLINE PARTNER SEEKING BEHAVIOR

N. RELATIONSHIPS AND SEXUAL HEALTH PRIORITIES

O. SEXUAL BEHAVIORS

P. SUBSTANCE USE

Q. MENTAL HEALTH

R. EVERYDAY DISCRIMINATION

S. SOCIAL SUPPORT AND ISOLATION

T. EPICC APP USABILITY & ACCEPTABILITY

U. DBS USABILITY & ACCEPTABILITY

Thank you for your participation in this important project. This survey will take approximately 45 minutes to complete.

In this survey, we will ask some questions to try to learn about you and your health. This survey also includes some questions around sensitive topics. All the information you enter in this survey is kept completely confidential. Your answers are private--the information you provide us will be kept secure and known only to study staff. The survey includes some personal questions about your sexual behavior, health, substance use, and other areas some people may consider sensitive. We take your privacy very seriously and will keep all responses confidential, so please be as honest as you can.

You can skip questions if you need to by selecting “Decline to answer,” but we encourage you to answer every question. All of this information will help this study learn more about PrEP, HIV prevention, and other important topics.

Time-based Recall Questions

Many questions ask you to think back over the past week, weeks, month, or even several months. Please read each question to see if it is asking you to think back over a certain period and note that the period will switch between some questions.

As a reminder, today's date is [current date]

A Note about Language

We want to acknowledge that some of the language used in our study questions may include some outdated language or lack the diversity of experiences that we now understand exist. Although we do our best to use measures that reflect emerging language, at times the items available in research are not where they need to be and are drawn from items developed years ago. Wherever possible, we have updated the language or are working with developers to get new versions. Please remember that you can always decline to answer items that do not reflect you.

If you have any questions or comments, let your study staff know.

Please click the button below to get started with the survey.

B. SOCIOECONOMIC AND RISK CORRELATES

[ALL FOLLOW-UP SURVEYS]

[B4 and B5 is asked at 6, 12, 18 months only]

B1. In the past 3 months, have you been homeless? By homeless, I mean you were living on the street, in a shelter, in a Single Room Occupancy hotel (SRO), or in a car.

No
Yes
Decline to answer

[Yes = B2, otherwise B3]

B2. Are you currently homeless?

No
Yes
Decline to answer

B3. What zip code do you live in? _________________

Decline to answer

B4. Has your marital status changed in past 6 months?

No
Yes
Decline to answer

[Yes=B4, otherwise B6]

B5. What is current marital status?

Married
Living together as married
Separated
Divorced
Widowed
Never married
Decline to answer

B6. Are you currently in school?

No
Yes, full-time
Yes, part-time
Enrolled in a program but on a temporary leave of absence
Decline to answer

B7. What best describes your employment status? Are you:

Employed full-time
Employed part-time
A homemaker
A full-time student
Retired
Unable to work for health reasons
Unemployed
Other
Decline to answer

B8. In the past 3 months, was there a time where there wasn’t enough money in your house

for rent, food, phone or utilities such as gas or electric?

No
Yes
Decline to answer

B9. In the past 3 months, did you or other adults in the household ever cut the size of your meals or skip meals because there wasn't enough money for food?

Yes
No
Decline to answer

B10. What is your primary means of transportation?

Personal automobile or motorcycle
Friend, relative, or neighbor
Public transportation (bus, metro, train)
Bicycle
Walking
Lyft, Uber, or other ride share service
Something else
Decline to answer

B11. Have you been arrested in the past 3 months?

[Yes = B17, otherwise next Section C]

No
Yes
Decline to answer

B12. Have you been put in jail, prison, or juvenile detention (juvy) in the past 3 months?

No
Yes
Decline to answer

[ALL FOLLOW-UP SURVEYS EXCEPT FOR QUESTION C3]

[C3 is asked at 6, 12, 18 months only]

C1. Do you currently have health insurance or health care coverage? This includes private health insurance (for example: Blue Cross Blue Shield or parent's private insurance) and public health care insurance or coverage (for example: Medicaid or Medicare).

[Yes = C2, otherwise C3]

Yes, I have my own
Yes, I am covered by my parent/guardian
Yes, I am covered by my spouse/partner.
No
Decline to answer

A private health plan - through an employer or purchased directly
Medicaid - for some people with low incomes
Medicare - for the elderly and people with disabilities
Some other government plan
TRICARE / CHAMPUS
Veterans Administration coverage
Some other health insurance
Decline to answer

[12 month only]

C3. About how long has it been since you last saw a doctor, nurse, or other health care provider about your own health? Would you say it was . . .

Within the past year
More than 1 year ago but less than 2 years ago
2 to 5 years ago
More than 5 years ago
Decline to answer

C4. How sure are you that you could communicate about the following (if necessary) with healthcare providers:

[6, 12, 18 months only]

	Not at all sure	Somewhat sure	Moderately sure	Very sure	Totally sure	Decline to answer
Ask your healthcare provider things about an illness you have/had that concerns you?
Discuss openly with your healthcare provider any problems that may be related to your medications?
Work out differences with your healthcare provider when they arise?
Ask your healthcare provider things about your health (like tests or treatments) that concern you?
Discuss openly with your healthcare provider your past or current drug and/or alcohol use?
Discuss openly with your healthcare provider your sexual activity?

The following questions ask about testing for sexually transmitted infections or STIs such as genital herpes, gonorrhea, chlamydia, syphilis, and genital or anal warts.

C5. In the past 3 months, have you been tested for an STI that was not HIV?

[Yes = C6, otherwise C7]

No
Yes
I don’t know
Decline to answer

C6. In the past 3 months has your doctor or health care professional told you that you had any of the following STIs? (Check all that apply. If none, please check “None of these”.)

Genital Herpes
Gonorrhea
Chlamydia
Syphilis
Genital or Anal Warts
Another STI, specify: _____
I can’t remember
None of these
I did not see a health care professional in the past 3 months
Decline to answer

Very Unlikely
Somewhat Unlikely
Somewhat Likely
Very Likely
Decline to answer

[ALL FOLLOW-UP SURVEYS EXCEPT QUESTION D7]

[D7 asked only at 6, 12, 18 months]

[If D3=reactive, skip to section M after D7]

In this next part of the survey, we will ask you some questions about your experiences with and thoughts about HIV. Once again, we remind you that all questions will be kept completely confidential.

D1. Have you been tested for HIV in the past 3 months?

[Yes = D2 otherwise D6]

No
Yes
Decline to answer

D2. When did you have your most recent HIV test? Please enter the month, day, and year. It is OK if you don’t know the exact date. Please make your best guess.

[Month]
[Day]
[Year]
Decline to answer

D3. What was the result of your most recent HIV test?

Reactive
Non-reactive
I don’t remember
I never got the results
Decline to answer

[Reactive=D4 otherwise D6]

D4. Have you started HIV treatment?

Yes
No
Decline to answer

D5. Approximately when did you start HIV treatment? It’s okay if you can’t remember the exact date. Please make your best guess.

[Month]
[Day]
[Year]
Decline to answer

D6. On a scale of 1-10 with 1 being not concerned at all and 10 being extremely concerned, overall, how concerned are you about getting HIV?

Not at all concerned Extremely concerned

----------------------------------------------10

Decline to answer

D7. Please consider the following statements and select how much you agree or disagree with them

[6, 12, 18 months only]

Yes
No
Not sure

Yes
No
Not sure

Other (please specify): ________
Decline to answer

[if injectable PrEP selected in F1]

F2. Which type of injectable PrEP are you currently on?

Apretude®, cabotegravir (injection every two months)
Yeztugo®, lenacapavir (injection every six months)

Yes
No, updated answer: _______
Decline to answer

F4. When did you last stop using [pipe in previous modality]? It’s OK if you don’t the exact date. Please provide your best guess.

F5. When did you last start using [pipe in current modality from F1]? It’s OK if you don’t know the exact date. Please provide your best guess.

F6. Why did you start using [current modality]? (Check all that apply)

Recommended by doctor/health care provider
Recommended by a friend, partner, or family member
Cost
Side effects
Insurance issues
Easier to use
Safer to use
More effective at preventing HIV infection
Required fewer visits/labs/pharmacy visits
Dosing schedule was easier to remember
People were less likely to find out I was taking PrEP
Other, specify: __________
Decline to answer

F7. Please rank the reasons why you started taking [current modality] in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from F6] Most Important, Important, Least Important
Decline to answer

Other (please specify): ________
Decline to answer

[For other PrEP types selected in F9]

F10. Please rank other kind(s) of PrEP used in order of use (1=first type of PrEP used, 2 = 2nd type of PrEP used, etc.).

[If any methods selected from table: Questions F10- F15 pertain to the first PrEP method selected in F9]

F11. When did you last start this medication: [pull answer #1 from F9]? It’s OK if you don’t know the exact date. Please provide your best guess.

F12. When did you last stop this medication: [pull answer #1 from F9]? It’s OK if you don’t know the exact date. Please provide your best guess.

F13. Why did you start using [pull answer #1 from F9]? (Check all that apply)

Recommended by doctor/health care provider
Recommended by a friend, partner, or family member
Cost
Side effects
Insurance issues
Easier to use
Safer to use
More effective at preventing HIV infection
Required fewer visits/labs/pharmacy visits
Dosing schedule was easier to remember
People were less likely to find out I was taking PrEP
Other, specify: __________
Decline to answer

[Selected multiple options=F14, otherwise F15]

F14. Please rank the reasons why you started using [insert PrEP method started] in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from F13] rank Most Important, Important, Least Important

Decline to answer

[Skip to F15]

F15. Why did you stop taking this medication, [pull answer #1 from F9]? (Choose all that apply)

I wanted to switch to a different kind of PrEP
I couldn't afford it anymore
I didn’t think that I was at risk for HIV anymore
My insurance would not cover it, or I lost my insurance
I didn't want to keep taking a pill every day
My parent(s) or guardian(s) found out and made me stop
I kept forgetting to take my pill
I had trouble getting to follow-up appointments
I had issues getting PrEP or with the pharmacy
I was having side effects
People reacted negatively when they found out I was taking PrEP
I was worried about the long term effects of PrEP on my health
I had a medical problem that made it unsafe to continue taking PrEP
I started using condoms all of the time
I couldn’t take the medication (tasted bad, pill was too big)
Other, please specify: _________________________________________________
Decline to answer

F16. Please rank the reasons why you stopped using that type of PrEP at that time in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from F15] rank Most Important, Important, Least Important

Decline to answer

[If >1 PrEP method selected in F9 = F16; Otherwise skip to F39].

F17. When did you last start this medication: [pull answer #2 from F9]? It’s OK if you don’t know the exact date. Please provide your best guess.

Decline to answer

F18. When did you last stop this medication: [pull answer #2 from F9]? It’s OK if you don’t know the exact date. Please provide your best guess.

Decline to answer

F19. Why did you start using [pull answer #2 from F9]? (Check all that apply)

Recommended by doctor/health care provider
Recommended by a friend, partner, or family member
Cost
Side effects
Insurance issues
Easier to use
Safer to use
More effective at preventing HIV infection
Required fewer visits/labs/pharmacy visits
Dosing schedule was easier to remember
People were less likely to find out I was taking PrEP
Other, specify: __________
Decline to answer

[Selected multiple options=F20, otherwise F21]

F20. Please rank the reasons why you started using [insert PrEP method started] in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from F19] rank Most Important, Important, Least Important
Decline to answer

F21. Why did you stop taking this medication, [pull answer #2 from F9]? (Choose all that apply)

I wanted to switch to a different kind of PrEP
I couldn't afford it anymore
I didn’t think that I was at risk for HIV anymore
My insurance would not cover it, or I lost my insurance
I didn't want to keep taking a pill every day
My parent(s) or guardian(s) found out and made me stop
I kept forgetting to take my pill
I had trouble getting to follow-up appointments
I had issues getting PrEP or with the pharmacy
I was having side effects
People reacted negatively when they found out I was taking PrEP
I was worried about the long term effects of PrEP on my health
I had a medical problem that made it unsafe to continue taking PrEP
I started using condoms all of the time
I couldn’t take the medication (tasted bad, pill was too big)
Other, please specify: _________________________________________________
Decline to answer

F22. Please rank the reasons why you stopped using that type of PrEP at that time in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from F21] rank Most Important, Important, least Important
Decline to answer

F23. When did you last start using [pipe in current modality]? It’s OK if you don’t know the exact date. Please provide your best guess.

F24. Why did you start using [current modality]? (Check all that apply)

Recommended by doctor/health care provider
Recommended by a friend, partner, or family member
Cost
Side effects
Insurance issues
Easier to use
Safer to use
More effective at preventing HIV infection
Required fewer visits/labs/pharmacy visits
Dosing schedule was easier to remember
People were less likely to find out I was taking PrEP
Other, specify: __________

Decline to answer

F25. Please rank the reasons why you started taking [insert PrEP method started] in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from F24] rank Most Important, Important, Least Important
Decline to answer

No
Yes
Decline to answer

Other (please specify): ________
Decline to answer

[if other PrEP types selected in F27]

F28. Please rank them in order of use (1=first type of PrEP used since last survey, 2 = 2^nd type of PrEP used, etc.).

F29. When did you last start this medication: [pull answer #1 from F27]? It’s OK if you don’t know the exact date. Please provide your best guess.

F30. When did you last stop this medication: [pull answer #1 from F27]? It’s OK if you don’t know the exact date. Please provide your best guess.

F31. Why did you start using [pull answer #1 from F27]? (Check all that apply)

Recommended by doctor/health care provider
Recommended by a friend, partner, or family member
Cost
Side effects
Insurance issues
Easier to use
Safer to use
More effective at preventing HIV infection
Required fewer visits/labs/pharmacy visits
Dosing schedule was easier to remember
People were less likely to find out I was taking PrEP
Other, specify: __________
Decline to answer

[Selected multiple options=F32, otherwise F33]

F32. Please rank the reasons why you started taking [insert PrEP method started] in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from F31] rank Most Important, Important, Least Important

Decline to answer

F33. Why did you stop taking this medication, [pull answer #1 from F27]? (Choose all that apply)

I wanted to switch to a different kind of PrEP
I couldn't afford it anymore
I didn’t think that I was at risk for HIV anymore
My insurance would not cover it, or I lost my insurance
I didn't want to keep taking a pill every day
My parent(s) or guardian(s) found out and made me stop
I kept forgetting to take my pill
I had trouble getting to follow-up appointments
I had issues getting PrEP or with the pharmacy
I was having side effects
People reacted negatively when they found out I was taking PrEP
I was worried about the long term effects of PrEP on my health
I had a medical problem that made it unsafe to continue taking PrEP
I started using condoms all of the time
I couldn’t take the medication (tasted bad, pill was too big)
Other, please specify: _________________________________________________
Decline to answer

F34. Please rank the reasons why you stopped using that type of PrEP in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from F33] rank Most Important, Important, Least Important
Decline to answer

[If >1 PrEP method selected in F27 = F35; Otherwise skip to F41].

F35. When did you last start this medication: [pull answer #2 from F27]? It’s OK if you don’t know the exact date. Please provide your best guess.

F36. When did you last stop this medication: [pull answer #2 from F27]? It’s OK if you don’t know the exact date. Please provide your best guess.

F37. Why did you start using [pull answer #2 from F27]? (Check all that apply)

Recommended by doctor/health care provider
Recommended by a friend, partner, or family member
Cost
Side effects
Insurance issues
Easier to use
Safer to use
More effective at preventing HIV infection
Required fewer visits/labs/pharmacy visits
Dosing schedule was easier to remember
People were less likely to find out I was taking PrEP
Other, specify: __________
Decline to answer

[Selected multiple options=F36, otherwise F37]

F38. Please rank the reasons why you started taking [insert PrEP method started] in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from F37] rank Most Important, Important, Least Important
Decline to answer

F39. Why did you stop using this medication, [pull answer #2 from F27]? (Choose all that apply)

I wanted to switch to a different kind of PrEP
I couldn't afford it anymore
I didn’t think that I was at risk for HIV anymore
My insurance would not cover it, or I lost my insurance
I didn't want to keep taking a pill every day
My parent(s) or guardian(s) found out and made me stop
I kept forgetting to take my pill
I had trouble getting to follow-up appointments
I had issues getting PrEP or with the pharmacy
I was having side effects
People reacted negatively when they found out I was taking PrEP
I was worried about the long term effects of PrEP on my health
I had a medical problem that made it unsafe to continue taking PrEP
I started using condoms all of the time
I couldn’t take the medication (tasted bad, pill was too big)
Other, please specify: _________________________________________________
Decline to answer

F40. Please rank the reasons why you stopped PrEP at that time in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from F39] rank Most Important, Important, Least Important
Decline to answer

F40a. Why do you currently use PrEP? (Choose all that apply)

I’m having sex with or thinking about having sex with someone who is living with HIV
I’m having sex with or thinking about having sex with someone whose HIV status I don’t know
I want to be in control of my sexual health
I want to reduce my anxiety around sex
I want to increase my sexual satisfaction and intimacy
I want to be safe and healthy
I want to have a better future
I am having sex with multiple partners
I don’t always use condoms (or don’t like using them)
My partner won’t use condoms
I had a previous HIV scare
My health care provider recommended it
I was recently diagnosed with a sexually transmitting infection (STI)
Many people in my community take PrEP
Other, please specify:
Decline to answer

[Selected multiple options=F40b, otherwise F41]

F40b. Please rank the reasons why you are currently using PrEP in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from F38a] rank Most Important, Important, Least Important
Decline to answer

F41. Since your last survey [pipe in date], have you ever stopped taking PrEP? By this we mean fully stopping PrEP (more than just one missed dose).

Yes
No
Decline to answer

[F40 = yes, otherwise skip to F46]

F42. Did you talk with your doctor/health care provider before stopping PrEP?

No
Yes
Decline to answer

F43. Why did you stop using this medication? (Choose all that apply)

I wanted to switch to a different kind of PrEP
I couldn't afford it anymore
I didn’t think that I was at risk for HIV anymore
My insurance would not cover it, or I lost my insurance
I didn't want to keep taking a pill every day
My parent(s) or guardian(s) found out and made me stop
I kept forgetting to take my pill
I had trouble getting to follow-up appointments
I had issues getting PrEP or with the pharmacy
I was having side effects
People reacted negatively when they found out I was taking PrEP
I was worried about the long term effects of PrEP on my health
I had a medical problem that made it unsafe to continue taking PrEP
I started using condoms all of the time
I couldn’t take the medication (tasted bad, pill was too big)
Other, please specify: _________________________________________________
Decline to answer

F44. Please rank the reasons why you stopped PrEP at that time in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from F43] rank Most Important, Important, Least Important
Decline to answer

F45. Please choose the statements that describe your sexual behavior after you stopped taking PrEP. (Choose all that apply)

I did not have any sexual contact after I stopped taking PrEP [Skip to F47]
I had oral sex after I stopped taking PrEP
I had anal sex after I stopped taking PrEP
I had vaginal sex when I stopped taking PrEP (put your penis in a vagina or neovagina)

Decline to answer

F46. Please choose the statements that describe your use of condoms after you stopped taking PrEP. (Choose all that apply)

I used a condom with every sexual contact after I stopped taking PrEP
I used a condom for most sexual contacts after I stopped taking PrEP
I used a condom for some sexual contacts after I stopped taking PrEP
I did not use condoms after I stopped taking PrEP

Decline to answer

F47. How satisfied are you with the kind of PrEP you are currently using?

Very satisfied
Moderately satisfied
Neither satisfied nor dissatisfied
Moderately dissatisfied
Very dissatisfied
Decline to answer

F48. What do you think about how effective PrEP is at preventing someone from getting HIV, when it is taken the way it is prescribed?

Very/completely effective
Somewhat effective
Minimally effective
Not at all effective
Decline to answer

F49. What do you think about whether HIV PrEP helps prevent other kinds of sexually transmitted infections (STIs), like gonorrhea or chlamydia?

PrEP has no effect on other STIs
PrEP helps to prevent other STIs
Decline to answer

F50. To what extent do you think taking PrEP affects your likelihood to use condoms?

Significantly less likely
Somewhat less likely
Will not change
Somewhat more likely
Significantly more likely
Decline to answer

F51. Who knows that you use PrEP? (Check all that apply)

Family member(s)
Friend(s)
Romantic partner(s)
Sex partner(s)
Health care provider (other than your PrEP provider)
Other(s), please specify
No one
Decline to answer

Now we want to ask you a few questions about your experiences and feelings related to using PrEP.

[F52 and F53, only 3, 9, and 15M surveys]

F52. Please select how much you agree with the following statements:

	Strongly Agree	Agree	Neither Agree nor Disagree	Disagree	Strongly Disagree	Decline to answer
I have been rejected romantically for taking PrEP
I have been judged by a health care provider because of taking PrEP
I have been blamed by people in my community for spreading HIV through PrEP use
I have been slut-shamed for taking PrEP (or told that I am a "Truvada or Descovy slut/whore")
I have been unfairly discriminated against for taking PrEP
I have been yelled at or scolded because of taking PrEP
I have experienced physical violence because of taking PrEP

F53. Please select how much you agree with the following statements:

	Strongly Agree	Agree	Neither Agree nor Disagree	Disagree	Strongly Disagree	Decline to answer
I worry people will assume I sleep around if they know I take PrEP
I worry people will assume that I am HIV+ if they know I take PrEP
I worry people will think my partner(s) are HIV+ if they know I take PrEP
I worry about listing PrEP as one of my current medications during doctor appointments
I feel ashamed to tell other people I am taking PrEP
I worry people will think I am a bad person if they know I take PrEP
I worry people will think I am gay if they know I take PrEP
I worry my friends will find out that I take PrEP
I worry my family will find out that I take PrEP
I worry my sex partners will find out that I take PrEP
I think people will give me a hard time if I tell them I take PrEP
I think people will judge me if they know I am taking PrEP

[Skip to Section K]

G. New PrEP Prescription

G1. What kind of PrEP are you planning to start?

Other (please specify): ________

Decline to answer

[if G1=injectable PrEP]

G2.Which type of injectable PrEP are you planning to start?

Apretude®, cabotegravir (injection every two months)
Yeztugo®, lenacapavir (injection every six months)

G4. Why have you decided to start PrEP? (Choose all that apply)

I’m having sex with or thinking about having sex with someone who is living with HIV
I’m having sex with or thinking about having sex with someone whose HIV status I don’t know
I want to be in control of my sexual health
I want to reduce my anxiety around sex
I want to increase my sexual satisfaction and intimacy
I want to be safe and healthy
I want to have a better future
I am having sex with multiple partners
I don’t always use condoms (or don’t like using them)
My partner won’t use condoms
I had a previous HIV scare
My health care provider recommended it
I was recently diagnosed with a sexually transmitting infection (STI)
Many people in my community take PrEP
Other, please specify:
Decline to answer

[Selected multiple options=G5, otherwise G6]

G5. Please rank the reasons why you are starting PrEP in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from G4] rank Most Important, Important, Least Important
Decline to answer

G6. What do you think about how effective PrEP is at preventing someone from getting HIV, when it is taken the way it is prescribed?

Very/completely effective
Somewhat effective
Minimally effective
Not at all effective
Decline to answer

G7. What do you think about whether HIV PrEP helps prevent other kinds of sexually transmitted infections (STIs), like gonorrhea or chlamydia?

PrEP has no effect on other STIs
PrEP helps to prevent other STIs
Decline to answer

G8. To what extent do you think taking PrEP will affect your likelihood to use condoms?

Significantly less likely
Somewhat less likely
Will not change
Somewhat more likely
Significantly more likely
Decline to answer

G9. Who knows that you are planning to start PrEP? (Check all that apply)

Family member(s)
Friend(s)
Romantic partner(s)
Sex partner(s)
Health care provider (other than your PrEP provider)
Other(s), please specify
No one
Decline to answer

Now we want to ask you a few questions about your feelings related to starting PrEP.

[G10 only 3, 9, and 15M surveys]

G9. Please select how much you agree with the following statements:

	Strongly Agree	Agree	Neither Agree nor Disagree	Disagree	Strongly Disagree	Decline to answer
I worry people will assume I sleep around if they know I take PrEP
I worry people will assume that I am HIV+ if they know I take PrEP
I worry people will think my partner(s) are HIV+ if they know I take PrEP
I worry about listing PrEP as one of my current medications during doctor appointments
I feel ashamed to tell other people I am taking PrEP
I worry people will think I am a bad person if they know I take PrEP
I worry people will think I am gay if they know I take PrEP
I worry my friends will find out that I take PrEP
I worry my family will find out that I take PrEP
I worry my sex partners will find out that I take PrEP
I think people will give me a hard time if I tell them I take PrEP
I think people will judge me if they know I am taking PrEP

[Skip to Section K]

H. PrEP Restart

H1. What kind of PrEP are you planning to start?

Other (please specify): ________
Decline to answer

[if injectable PrEP is selected in H1]

H2. Which type of injectable PrEP are you planning to start?

Apretude®, cabotegravir (injection every two months)
Yeztugo®, lenacapavir (injection every six months)

[H4-H10 if on PrEP at previous survey, otherwise skip to H11]

H5. Why did you stop taking this medication? (Choose all that apply)

I couldn't afford it anymore
I didn’t think that I was at risk for HIV anymore
My insurance would not cover it, or I lost my insurance
I didn't want to keep taking a pill every day
My parent(s) or guardian(s) found out and made me stop
I kept forgetting to take my pill
I had trouble getting to follow-up appointments
I had issues getting PrEP or with the pharmacy
I was having side effects
People reacted negatively when they found out I was taking PrEP
I was worried about the long term effects of PrEP on my health
I had a medical problem that made it unsafe to continue taking PrEP
I started using condoms all of the time
I couldn’t take the medication (tasted bad, pill was too big)
Other, please specify: _________________________________________________
Decline to answer

H6. Please rank the reasons why you stopped PrEP at that time in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from H5] rank Most Important, Important, Least Important

Decline to answer

H7. Did you talk with your doctor/health care provider before stopping PrEP?

No
Yes
Decline to answer

H8. Please choose the statements that describe your sexual behavior after you stopped taking PrEP. (Choose all that apply)

I did not have any sexual contact after I stopped taking PrEP [Skip to H10]
I had oral sex after I stopped taking PrEP
I had anal sex after I stopped taking PrEP
I had vaginal sex when I stopped taking PrEP (put your penis in a vagina or a neovagina)
Decline to answer

H9. Please choose the statements that describe your use of condoms after you stopped taking PrEP. (Choose all that apply)

I used a condom with every sexual contact after I stopped taking PrEP
I used a condom for most sexual contacts after I stopped taking PrEP
I used a condom for some sexual contacts after I stopped taking PrEP
I did not use condoms after I stopped taking PrEP
Decline to answer

No
Yes
Decline to answer

[For those not on PrEP at previous survey]

No
Yes
Decline to answer

Other (please specify): ________
Decline to answer

[If other kinds of kinds of PrEP selected in H12 go to H13 otherwise H14]

H13. Please rank them in order of use (1=first type of PrEP used since last survey, 2 = 2^nd type of PrEP used, etc.).

H14. When did you last start this medication: [pull answer #1 from H12]? It’s OK if you don’t know the exact date. Please provide your best guess.

H15. When did you last stop this medication: [pull answer #1 from H12]? It’s OK if you don’t know the exact date. Please provide your best guess.

H16. Why did you start using [pull answer #1 from H12]? (Check all that apply)

Recommended by doctor/health care provider
Recommended by a friend, partner, or family member
Cost
Side effects
Insurance issues
Easier to use
Safer to use
More effective at preventing HIV infection
Required fewer visits/labs/pharmacy visits
Dosing schedule was easier to remember
People were less likely to find out I was taking PrEP
Other, specify: __________
Decline to answer

[Selected multiple options=H16, otherwise H17]

H17. Please rank the reasons why you started using [insert PrEP method started] in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from H115] rank Most Important, Important, Least Important
Decline to answer

H18. Why did you stop taking this medication, [pull answer #1 from H12]? (Choose all that apply)

I wanted to switch to a different kind of PrEP
I couldn't afford it anymore
I didn’t think that I was at risk for HIV anymore
My insurance would not cover it, or I lost my insurance
I didn't want to keep taking a pill every day
My parent(s) or guardian(s) found out and made me stop
I kept forgetting to take my pill
I had trouble getting to follow-up appointments
I had issues getting PrEP or with the pharmacy
I was having side effects
People reacted negatively when they found out I was taking PrEP
I was worried about the long term effects of PrEP on my health
I had a medical problem that made it unsafe to continue taking PrEP
I started using condoms all of the time
I couldn’t take the medication (tasted bad, pill was too big)
Other, please specify: _________________________________________________
Decline to answer

H19. Please rank the reasons why you stopped using that type of PrEP at that time in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from H18] rank Most Important, Important, Least Important
Decline to answer

[If >1 PrEP method selected in H12 = H20; Otherwise skip to H26].

H20. When did you last start this medication: [pull answer #2 from H12]? It’s OK if you don’t know the exact date. Please provide your best guess.

H21. When did you last stop this medication: [pull answer #2 from H12]? It’s OK if you don’t know the exact date. Please provide your best guess.

H22. Why did you start using [pull answer #2 from H12]? (Check all that apply)

Recommended by doctor/health care provider
Recommended by a friend, partner, or family member
Cost
Side effects
Insurance issues
Easier to use
Safer to use
More effective at preventing HIV infection
Required fewer visits/labs/pharmacy visits
Dosing schedule was easier to remember
People were less likely to find out I was taking PrEP
Other, specify: __________
Decline to answer

[Selected multiple options=H23, otherwise H24]

H23. Please rank the reasons why you started using [insert PrEP method started] in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from H22] Most Important, Important, Least Important

Decline to answer

H24. Why did you stop taking this medication, [pull answer #2 from H12]? (Choose all that apply)

I wanted to switch to a different kind of PrEP
I couldn't afford it anymore
I didn’t think that I was at risk for HIV anymore
My insurance would not cover it, or I lost my insurance
I didn't want to keep taking a pill every day
My parent(s) or guardian(s) found out and made me stop
I kept forgetting to take my pill
I had trouble getting to follow-up appointments
I had issues getting PrEP or with the pharmacy
I was having side effects
People reacted negatively when they found out I was taking PrEP
I was worried about the long term effects of PrEP on my health
I had a medical problem that made it unsafe to continue taking PrEP
I started using condoms all of the time
I couldn’t take the medication (tasted bad, pill was too big)
Other, please specify: _________________________________________________
Decline to answer

H25. Please rank the reasons why you stopped using that type of PrEP at that time in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from F24] rank Most Important, Important, Least Important
Decline to answer

[All those planning to restart]

H26. Why have you decided to restart PrEP? (Choose all that apply)

I’m having sex with or thinking about having sex with someone who is living with HIV
I’m having sex with or thinking about having sex with someone whose HIV status I Decline to answer
I want to be in control of my sexual health
I want to reduce my anxiety around sex
I want to increase my sexual satisfaction and intimacy
I want to be safe and healthy
I want to have a better future
I am having sex with multiple partners
I don’t always use condoms (or don’t like using them)
My partner won’t use condoms
I had a previous HIV scare
My health care provider recommended it
I was recently diagnosed with a sexually transmitting infection (STI)
Many people in my community take PrEP
Other, please specify:
Decline to answer

[Selected multiple options=H27, otherwise H28]

H27. Please rank the reasons why you are restarting PrEP in order of importance, in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from H26] rank Most Important, Important, Least Important
Decline to answer

H28. Who knows that you are planning to restart PrEP? (Check all that apply)

Family member(s)
Friend(s)
Romantic partner(s)
Sex partner(s)
Health care provider (other than your PrEP provider)
Other(s), please specify
No one
Decline to answer

H29. What do you think about how effective PrEP is at preventing someone from getting HIV, when it is taken the way it is prescribed?

Very/completely effective
Somewhat effective
Minimally effective
Not at all effective
Decline to answer

H30. What do you think about whether HIV PrEP helps prevent other kinds of sexually transmitted infections (STIs), like gonorrhea or chlamydia?

PrEP has no effect on other STIs
PrEP helps to prevent other STIs
Decline to answer

H31. To what extent do you think restarting PrEP will affect your likelihood to use condoms?

Significantly less likely
Somewhat less likely
Will not change
Somewhat more likely
Significantly more likely
Decline to answer

Now we want to ask you a few questions about your feelings related to previously taking PrEP.

[H32 and H32 only 3, 9, and 15M surveys]

H33. Please select how much you agree with the following statements:

	Strongly Agree	Agree	Neither Agree nor Disagree	Disagree	Strongly Disagree	Decline to answer
I have been rejected romantically for taking PrEP
I have been judged by a health care provider because of taking PrEP
I have been blamed by people in my community for spreading HIV through PrEP use
I have been slut-shamed for taking PrEP (or told that I am a "Truvada or Descovy slut/whore")
I have been unfairly discriminated against for taking PrEP
I have been yelled at or scolded because of taking PrEP
I have experienced physical violence because of taking PrEP

Now we want to ask you a few questions about your feelings related to restarting PrEP.

H34. Please select how much you agree with the following statements:

	Strongly Agree	Agree	Neither Agree nor Disagree	Disagree	Strongly Disagree	Decline to answer
I worry people will assume I sleep around if they know I take PrEP
I worry people will assume that I am HIV+ if they know I take PrEP
I worry people will think my partner(s) are HIV+ if they know I take PrEP
I worry about listing PrEP as one of my current medications during doctor appointments
I feel ashamed to tell other people I am taking PrEP
I worry people will think I am a bad person if they know I take PrEP
I worry people will think I am gay if they know I take PrEP
I worry my friends will find out that I take PrEP
I worry my family will find out that I take PrEP
I worry my sex partners will find out that I take PrEP
I think people will give me a hard time if I tell them I take PrEP
I think people will judge me if they know I am taking PrEP

I2. Why did you stop taking this medication? (Choose all that apply)

I couldn't afford it anymore
I didn’t think that I was at risk for HIV anymore
My insurance would not cover it, or I lost my insurance
I didn't want to keep taking a pill every day
My parent(s) or guardian(s) found out and made me stop
I kept forgetting to take my pill
I had trouble getting to follow-up appointments
I had issues getting PrEP or with the pharmacy
I was having side effects
People reacted negatively when they found out I was taking PrEP
I was worried about the long term effects of PrEP on my health
I had a medical problem that made it unsafe to continue taking PrEP
I started using condoms all of the time
I couldn’t take the medication (tasted bad, pill was too big)
Other, please specify: _________________________________________________
Decline to answer

I3. Please rank the reasons why you stopped PrEP at that time in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from I2] rank Most Important, Important, Least Important
Decline to answer

I4. Did you talk with your doctor/health care provider before stopping PrEP?

No
Yes
Decline to answer

I5. Please choose the statements that describe your sexual behavior after you stopped taking PrEP. (Choose all that apply)

I did not have any sexual contact after I stopped taking PrEP [Skip to I7]
I had oral sex after I stopped taking PrEP
I had anal sex after I stopped taking PrEP
I had vaginal sex when I stopped taking PrEP (put your penis in a vagina or neovagina)
Decline to answer

I6. Please choose the statements that describe your use of condoms after you stopped taking PrEP. (Choose all that apply)

I used a condom with every sexual contact after I stopped taking PrEP
I used a condom for most sexual contacts after I stopped taking PrEP
I used a condom for some sexual contacts after I stopped taking PrEP
I did not use condoms after I stopped taking PrEP
Decline to answer

No
Yes
Decline to answer

[For those not on PrEP at previous survey]

No
Yes
Decline to answer

Other (please specify): ________
Decline to answer

[If more than one than one modality selected in I9, otherwise I11]

I10. Please rank them in order of use (1=first type of PrEP used since last survey, 2 = 2nd type of PrEP used, etc.).

I11. When did you last start this medication: [pull answer #1 from I9]? It’s OK if you don’t know the exact date. Please provide your best guess.

I12. When did you last stop this medication: [pull answer #1 from I9]? It’s OK if you know the exact date. Please provide your best guess.

I13. Why did you start using [pull answer #1 from I9]? (Check all that apply)

Recommended by doctor/health care provider
Recommended by a friend, partner, or family member
Cost
Side effects
Insurance issues
Easier to use
Safer to use
More effective at preventing HIV infection
Required fewer visits/labs/pharmacy visits
Dosing schedule was easier to remember
People were less likely to find out I was taking PrEP
Other, specify: __________
Decline to answer

[Selected multiple options=I14, otherwise I15]

I14. Please rank the reasons why you started using [insert PrEP method started] in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from I13] rank Most Important, Important, Least Important

I15. Why did you stop taking this medication, [pull answer #1 from I9]? (Choose all that apply)

I wanted to switch to a different kind of PrEP
I couldn't afford it anymore
I didn’t think that I was at risk for HIV anymore
My insurance would not cover it, or I lost my insurance
I didn't want to keep taking a pill every day
My parent(s) or guardian(s) found out and made me stop
I kept forgetting to take my pill
I had trouble getting to follow-up appointments
I had issues getting PrEP or with the pharmacy
I was having side effects
People reacted negatively when they found out I was taking PrEP
I was worried about the long term effects of PrEP on my health
I had a medical problem that made it unsafe to continue taking PrEP
I started using condoms all of the time
I couldn’t take the medication (tasted bad, pill was too big)
Other, please specify: _________________________________________________
Decline to answer

I16. Please rank the reasons why you stopped using that type of PrEP at that time in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from I15] rank Most Important, Important, Least Important
Decline to answer

[If >1 PrEP method selected in I9 = I17; Otherwise skip to I23].

I17. When did you last start this medication: [pull answer #2 from I9]? It’s OK if you don’t know the exact date. Please provide your best guess.

I18. When did you last stop this medication: [pull answer #2 from I9]? It’s OK if you don’t know the exact date. Please provide your best guess.

I19. Why did you start using [pull answer #2 from I9]? (Check all that apply)

Recommended by doctor/health care provider
Recommended by a friend, partner, or family member
Cost
Side effects
Insurance issues
Easier to use
Safer to use
More effective at preventing HIV infection
Required fewer visits/labs/pharmacy visits
Dosing schedule was easier to remember
People were less likely to find out I was taking PrEP
Other, specify: __________
Decline to answer

[Selected multiple options=I19, otherwise I20]

I20. Please rank the reasons why you started using [insert PrEP method started] in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from I19] rank Most Important, Important, Least Important

Decline to answer

I21. Why did you stop taking this medication, [pull answer #2 from I9]? (Choose all that apply)

I wanted to switch to a different kind of PrEP
I couldn't afford it anymore
I didn’t think that I was at risk for HIV anymore
My insurance would not cover it, or I lost my insurance
I didn't want to keep taking a pill every day
My parent(s) or guardian(s) found out and made me stop
I kept forgetting to take my pill
I had trouble getting to follow-up appointments
I had issues getting PrEP or with the pharmacy
I was having side effects
People reacted negatively when they found out I was taking PrEP
I was worried about the long term effects of PrEP on my health
I had a medical problem that made it unsafe to continue taking PrEP
I started using condoms all of the time
I couldn’t take the medication (tasted bad, pill was too big)
Other, please specify: _________________________________________________
Decline to answer

I22. Please rank the reasons why you stopped using that type of PrEP at that time in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from I21] rank Most Important, Important, Least Important

Decline to answer

I23. What kind of PrEP are you considering starting? [Should only be able to choose one response.]

Other (please specify): ________
Decline to answer

[if I23 is injectable PrEP]

I24. Which type of injectable PrEP are you planning to start?

Apretude®, cabotegravir (injection every two months)
Yeztugo®, lenacapavir (injection every six months)

I26. Why are you considering restarting PrEP? (Choose all that apply)

I’m having sex with or thinking about having sex with someone who is living with HIV
I’m having sex with or thinking about having sex with someone whose HIV status I don’t know
I want to be in control of my sexual health
I want to reduce my anxiety around sex
I want to increase my sexual satisfaction and intimacy
I want to be safe and healthy
I want to have a better future
I am having sex with multiple partners
I don’t always use condoms (or don’t like using them)
My partner won’t use condoms
I had a previous HIV scare
My health care provider recommended it
I was recently diagnosed with a sexually transmitting infection (STI)
Many people in my community take PrEP
Other, please specify:
Decline to answer

[Selected multiple options=I27, otherwise I28]

I27. Please rank the reasons why you are considering restarting PrEP in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from I26] rank Most Important, Important, Least Important
Decline to answer

I28. Who knows that you are considering restarting PrEP? (Check all that apply)

Family member(s)
Friend(s)
Romantic partner(s)
Sex partner(s)
Health care provider (other than your PrEP provider)
Other(s), please specify
No one
Decline to answer

I’m concerned about potential side effects
I don’t know if I want to use this type of PrEP [pipe in type from I23]
I’m not at risk for HIV
My insurance might not cover it or I lost my insurance
I don’t want my parent(s) or guardian(s) to find out I’m taking PrEP
It will be hard to get to follow-up appointments
People might react negatively if they find out I’m taking PrEP
I’m using condoms all the time
Other, please specify: _________
Decline to answer

I30. Please rank the reasons why you are unsure about restarting PrEP in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from I29] rank Most Important, Important, Least Important

Decline to answer

I can’t afford it right now
I’m not at risk for HIV
My insurance will not cover it, or I don’t have insurance
I don’t want to take a pill every day
My parent(s) or guardian(s) will find out
I will forget to take my pill
I will have trouble getting to follow-up appointments
I will have issues getting PrEP or with the pharmacy
I am concerned about side effects
People will react negatively if they find out I’m taking PrEP
I am worried about the long term effects of PrEP on my health
I have a medical problem that makes it unsafe to take PrEP
I use condoms all of the time
Other, please specify: _________________________________________________
Decline to answer

I32. Please rank the reasons why you do not plan to restart PrEP in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from I31] rank Most Important, Important, Least Important

Decline to answer

I33. What would motivate you to restart PrEP? Select all that apply.

Having sex with someone who is living with HIV
Having sex with someone whose HIV status is unknown
Having sex with multiple partners
Not using condoms regularly or partner(s) do/does not want to use condoms
Receiving more information on the safety of [pipe in PrEP modality from I23]
Receiving more information on the effectiveness of [pipe in PrEP modality from I23]
More people in your community start using PrEP
It was easier to attend follow-up visits
Fewer follow-up appointments/labs needed
Having better health insurance
Support from family and/or friends
Support from medical providers
Support from my partner(s)
Other, specify: ______
Decline to answer

I34. Please rank the reasons what would motivate you to restart PrEP in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from I33] rank Most Important, Important, Least Important

Decline to answer

Now we want to ask you a few questions about your feelings related to previously taking PrEP.

[I35 and I35 only 3, 9, and 15M surveys]

I35. Please select how much you agree with the following statements:

	Strongly Agree	Agree	Neither Agree nor Disagree	Disagree	Strongly Disagree	Decline to answer
I have been rejected romantically for taking PrEP
I have been judged by a health care provider because of taking PrEP
I have been blamed by people in my community for spreading HIV through PrEP use
I have been slut-shamed for taking PrEP (or told that I am a "Truvada or Descovy slut/whore")
I have been unfairly discriminated against for taking PrEP
I have been yelled at or scolded because of taking PrEP
I have experienced physical violence because of taking PrEP

Now we want to ask you a few questions about your feelings related to possibly restarting PrEP.

I36. Please select how much you agree with the following statements:

	Strongly Agree	Agree	Neither Agree nor Disagree	Disagree	Strongly Disagree	Decline to answer
I worry people will assume I sleep around if they know I take PrEP
I worry people will assume that I am HIV+ if they know I take PrEP
I worry people will think my partner(s) are HIV+ if they know I take PrEP
I worry about listing PrEP as one of my current medications during doctor appointments
I feel ashamed to tell other people I am taking PrEP
I worry people will think I am a bad person if they know I take PrEP
I worry people will think I am gay if they know I take PrEP
I worry my friends will find out that I take PrEP
I worry my family will find out that I take PrEP
I worry my sex partners will find out that I take PrEP
I think people will give me a hard time if I tell them I take PrEP
I think people will judge me if they know I am taking PrEP

I37. What do you think about how effective PrEP is at preventing someone from getting HIV, when it is taken the way it is prescribed?

Very/completely effective
Somewhat effective
Minimally effective
Not at all effective
Decline to answer

I38. What do you think about whether HIV PrEP helps prevent other kinds of sexually transmitted infections (STIs), like gonorrhea or chlamydia?

PrEP has no effect on other STIs
PrEP helps to prevent other STIs
Decline to answer

I39. To what extent do you think restarting PrEP would affect your likelihood to use condoms?

Significantly less likely
Somewhat less likely
Will not change
Somewhat more likely
Significantly more likely
Decline to answer

J1. What kind of PrEP are considering starting? [Should only be able to choose one response]

Other (please specify): ________
Decline to answer

[If J1=injectable PrEP]

J2. Which type of injectable PrEP are you considering starting?

Apretude®, cabotegravir (injection every two months)
Yeztugo®, lenacapavir (injection every six months)

J4. Why are you considering starting PrEP? (Choose all that apply)

I’m having sex with or thinking about having sex with someone who is living with HIV
I’m having sex with or thinking about having sex with someone whose HIV status I don’t know
I want to be in control of my sexual health
I want to reduce my anxiety around sex
I want to increase my sexual satisfaction and intimacy
I want to be safe and healthy
I want to have a better future
I am having sex with multiple partners
I don’t always use condoms (or don’t like using them)
My partner won’t use condoms
I had a previous HIV scare
My health care provider recommended it
I was recently diagnosed with a sexually transmitting infection (STI)
Many people in my community take PrEP
Other, please specify:
Decline to answer

[Selected multiple options=J4, otherwise J5]

J5. Please rank the reasons why you are considering starting PrEP in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from J2] rank Most Important, Important, Least Important
Decline to answer

J7. Who knows that you are considering starting PrEP? (Check all that apply)

Family member(s)
Friend(s)
Romantic partner(s)
Sex partner(s)
Health care provider (other than your PrEP provider)
Other(s), please specify
No one
Decline to answer

I’m concerned about potential side effects
I don’t know if I want to use this type of PrEP [pipe in type from J4]
I’m not at risk for HIV
My insurance might not cover it or I lost my insurance
I don’t want my parent(s) or guardian(s) to find out I’m taking PrEP
It will be hard to get to follow-up appointments
People might react negatively if they find out I’m taking PrEP
I’m using condoms all the time
Other, please specify: _________
Decline to answer

J8. Please rank the reasons why you are unsure about staring PrEP in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from J7] rank Most Important, Important, Least Important

I can’t afford it right now
I’m not at risk for HIV
My insurance will not cover it, or I don’t have insurance
I don’t want to take a pill every day
My parent(s) or guardian(s) will find out
I will forget to take my pill
I will have trouble getting to follow-up appointments
I will have issues getting PrEP or with the pharmacy
I am concerned about side effects
People will react negatively if they find out I’m taking PrEP
I am worried about the long term effects of PrEP on my health
I have a medical problem that makes it unsafe to take PrEP
I use condoms all of the time
Other, please specify: _________________________________________________
Decline to answer

J10. Please rank the reasons why you do not plan to start PrEP in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from J9] rank Most Important, Important, Least Important
Decline to answer

J11. What would motivate you to start PrEP? Select all that apply.

Having sex with someone who is living with HIV
Having sex with someone whose HIV status is unknown
Having sex with multiple partners
Not using condoms regularly or partner(s) do/does not want to use condoms
Receiving more information on the safety of [pipe in PrEP modality from J2]
Receiving more information on the effectiveness of [pipe in PrEP modality from J2]
More people in your community start using PrEP
It was easier to attend follow-up visits
Fewer follow-up appointments/labs needed
Having better health insurance
Support from family and/or friends
Support from medical providers
Support from my partner(s)
Other, specify: ______
Decline to answer

J12. Please rank the reasons what would motivate you to start PrEP in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from J11] rank Most Important, Important, Least Important
Decline to answer

Now we want to ask you a few questions about your feelings related to possibly starting PrEP.

[J13 only 3, 9, and 15M surveys]

J13. Please select how much you agree with the following statements:

	Strongly Agree	Agree	Neither Agree nor Disagree	Disagree	Strongly Disagree	Decline to answer
I worry people will assume I sleep around if they know I take PrEP
I worry people will assume that I am HIV+ if they know I take PrEP
I worry people will think my partner(s) are HIV+ if they know I take PrEP
I worry about listing PrEP as one of my current medications during doctor appointments
I feel ashamed to tell other people I am taking PrEP
I worry people will think I am a bad person if they know I take PrEP
I worry people will think I am gay if they know I take PrEP
I worry my friends will find out that I take PrEP
I worry my family will find out that I take PrEP
I worry my sex partners will find out that I take PrEP
I think people will give me a hard time if I tell them I take PrEP
I think people will judge me if they know I am taking PrEP

J14. What do you think about how effective PrEP is at preventing someone from getting HIV, when it is taken the way it is prescribed?

Very/completely effective
Somewhat effective
Minimally effective
Not at all effective
Decline to answer

J15. What do you think about whether HIV PrEP helps prevent other kinds of sexually transmitted infections (STIs), like gonorrhea or chlamydia?

PrEP has no effect on other STIs
PrEP helps to prevent other STIs
Decline to answer

J16. To what extent do you think taking PrEP will affect your likelihood to use condoms?

Significantly less likely
Somewhat less likely
Will not change
Somewhat more likely
Significantly more likely
Decline to answer

My doctor/health care provider recommended this kind for me
I know people who use this kind of PrEP
I think this kind of PrEP is more effective than other kinds
I think this kind of PrEP is safer than other kinds
I don’t want to have to get shots/injections
I don’t want to have to attend an appointment every two-six months for a shot/injection
With a shot/injection I would be concerned about long-acting side effects (that is, side effects that don’t go away for a long time because I received an injection)
I don’t think I would remember to take intermittent PrEP as prescribed
I don’t think intermittent PrEP would work for me because it is difficult to predict when I’m going to have sex
I prefer to have a regular routine of taking PrEP
Other, please specify
Decline to answer

[Selected multiple options=K2, otherwise K13]

K2. Please rank the reasons why you have chosen daily oral PrEP, in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from K1] rank Most Important, Important, Least Important
Decline to answer

My doctor/health care provider recommended this kind for me
I know people who use this kind of PrEP
I think this kind of PrEP is more effective than other kinds
I think this kind of PrEP is safer than other kinds
I don’t want to have to get shots/injections
I don’t want to have to attend an appointment every two-six months for a shot/injection
With a shot/injection I would be concerned about long-acting side effects (that is, side effects that don’t go away for a long time because I received an injection)
I don’t want to have to take a pill every day
I think it is easier to take PrEP only when I need it
Intermittent PrEP is less expensive
Other, please specify
Decline to answer

[Selected multiple options=K4, otherwise Section K13]

K4. Please rank the reasons why you have chosen intermittent oral PrEP, in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from K3] rank Most Important, Important, Least Important

Decline to answer

My doctor/health care provider recommended this kind for me
I know people who use this kind of PrEP
I think this kind of PrEP is more effective than other kinds
I think this kind of PrEP is safer than other kinds
I don’t want to have to take a pill every day
I don’t think I would remember to take daily oral PrEP the way it is prescribed
I’m concerned that someone would find out I use PrEP if I had to take pills
I don’t think I would remember to take intermittent PrEP as prescribed
I don’t think intermittent PrEP would work for me because it is difficult to predict when I’m going to have sex
Other, please specify
Decline to answer

[Selected multiple options=K6, otherwise Section K14]

K6. Please rank the reasons why you have injectable PrEP, in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from K5] rank Most Important, Important, Least Important

Decline to answer

My doctor/health care provider recommended this kind for me
I know people who use this kind of PrEP
I think this kind of PrEP is more effective than other kinds
I think this kind of PrEP is safer than other kinds
I don’t want to have to get shots/injections
I don’t want to have to attend an appointment every two-six months for a shot/injection
With a shot/injection I would be concerned about long-acting side effects (that is, side effects that don’t go away for a long time because I received an injection)
I don’t think I would remember to take intermittent PrEP as prescribed
I don’t think intermittent PrEP would work for me because it is difficult to predict when I’m going to have sex
I prefer to have a regular routine of taking PrEP
Other, please specify
Decline to answer

[Selected multiple options=K8, otherwise K13]

K8. Please rank the reasons why you are considering daily oral PrEP, in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from K7] rank Most Important, Important, Least Important

Decline to answer

My doctor/health care provider recommended this kind for me
I know people who use this kind of PrEP
I think this kind of PrEP is more effective than other kinds
I think this kind of PrEP is safer than other kinds
I don’t want to have to get shots/injections
I don’t want to have to attend an appointment every two-six months for a shot/injection
With a shot/injection I would be concerned about long-acting side effects (that is, side effects that don’t go away for a long time because I received an injection)
I don’t want to have to take a pill every day
I think it is easier to take PrEP only when I need it
Intermittent PrEP is less expensive
Other, please specify
Decline to answer

[Selected multiple options=K10, otherwise Section K13]

K10. Please rank the reasons why you are considering intermittent oral PrEP, in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from K9] rank Most Important, Important, Least Important

Decline to answer

My doctor/health care provider recommended this kind for me
I know people who use this kind of PrEP
I think this kind of PrEP is more effective than other kinds
I think this kind of PrEP is safer than other kinds
I don’t want to have to take a pill every day
I don’t think I would remember to take daily oral PrEP the way it is prescribed
I’m concerned that someone would find out I use PrEP if I had to take pills
I don’t think I would remember to take intermittent PrEP as prescribed
I don’t think intermittent PrEP would work for me because it is difficult to predict when I’m going to have sex
Other, please specify
Decline to answer

[Selected multiple options=K12, otherwise Section K14]

K12. Please rank the reasons why you are considering injectable PrEP, in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from K11] rank Most Important, Important, Least Important

Decline to answer

[If F1, G1, H1 = Injectable PrEP then Skip to K14]

K13. Compared to taking oral PrEP pills, how difficult do you think it would be to use injectable PrEP as prescribed (getting your PrEP shot every two-six months on time)?

Injectable PrEP would be LESS difficult to take as prescribed, compared to oral PrEP
SAME, the type of PrEP would not change my ability to take PrEP as prescribed
Injectable PrEP would be MORE difficult to take as prescribed, compared to oral PrEP
Decline to answer

[If F1, G1, H1 = Intermittent PrEP then Skip to Section L]

K14. Compared to [pipe in current PrEP modality], how difficult do you think it would be to use on-demand PrEP (taking two pills 2-24 hours before sex, one pill 24 hours after the first dose, and one pill 24 hours after the second dose)?

On-demand PrEP would be LESS difficult to take, compared to [pipe in current PrEP modality]
SAME, on-demand PrEP would not change my ability to take PrEP
On-demand PrEP would be MORE difficult to [pipe in current PrEP modality]
Decline to answer

[if E3 is yes (about to restart PrEP]

K15. Compared to [pipe in PrEP modality planning to restart], how difficult do you think it would be to use on-demand PrEP (taking two pills 2-24 hours before sex, one pill 24 hours after the first dose, and one pill 24 hours after the second dose)?

On-demand PrEP would be LESS difficult to take, compared to [pipe in current PrEP modality]
SAME, on-demand PrEP would not change my ability to take PrEP
On-demand PrEP would be MORE difficult to [pipe in current PrEP modality]
Decline to answer

[if E4 is yes (planning to start or unsure)]

K16.Compared to [pipe in PrEP modality planning to start], how difficult do you think it would be to use on-demand PrEP (taking two pills 2-24 hours before sex, one pill 24 hours after the first dose, and one pill 24 hours after the second dose)?

On-demand PrEP would be LESS difficult to take, compared to [pipe in current PrEP modality]
SAME, on-demand PrEP would not change my ability to take PrEP
On-demand PrEP would be MORE difficult to [pipe in current PrEP modality]
Decline to answer

[if E4 is unsure (unsure if they are going to start PrEP)]

K17. Compared to [pipe in PrEP modality they are thinking about starting], how difficult do you think it would be to use on-demand PrEP (taking two pills 2-24 hours before sex, one pill 24 hours after the first dose, and one pill 24 hours after the second dose)?

On-demand PrEP would be LESS difficult to take, compared to [pipe in current PrEP modality]
SAME, on-demand PrEP would not change my ability to take PrEP
On-demand PrEP would be MORE difficult to [pipe in current PrEP modality]
Decline to answer

L. PREP ADHERENCE AND BARRIERS

[All follow-up visits]

L1. In the past 7 days, how many days did you take PrEP?

Text box: 1-7

0 ________________________[__]_____________________________ 100

Decline to answer

L3. What has gotten in the way of you taking your PrEP on a daily basis? (Choose all that apply)

I have not had any trouble taking my regular PrEP doses
Couldn't get my pills at the drug store or pharmacy
Ran out of my prescription and never started again
Did not have health insurance to pay for the prescriptions
Made me sick to my stomach or tasted bad
Forgot to take my pill
I got a headache, rash, or other physical symptom
It got in the way of my daily schedule
Didn't feel like taking it, needed a break
Change in living situation/moved
Worried that someone will think I have HIV
Got sick with another illness, wasn't feeling well (e.g., cold, flu, etc.)
Don't think I need the pills anymore, I can stay healthy without them
Family and/or friends didn't help me remember
Family and/or friends told me I shouldn't take them
Nowhere to keep the pills at school or work
Didn't understand why I had to take the pills
I kept getting sick even when I did take the pills
Taking it reminded me of HIV
Other, please specify
Decline to answer

[Selected multiple options=L4, otherwise L5]

L4. Please rank the things that have gotten in the way of taking PrEP, in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from L3] rank Most Important, Important, Least Important
Decline to answer

L5. We are interested in how you feel about the following statements. Please answer by indicating your confidence about each statement on a scale from 1 (not confident) to 10 (totally confident).

Take PrEP on a weekend:

Take PrEP when dealing with schedule changes:

Take PrEP when having medication side effects:

Keep your PrEP medical appointments:

Follow a plan for taking PrEP:

Decline to answer

[Skip to Section L18]

L6. In the past 3 months, did you have any condomless anal sex?

Yes
No
Decline to answer

[if yes to condomless anal sex, otherwise skip to L11]

L7. In the past 3 months, what percent of the time did you take your full dose of intermittent PrEP as prescribed (i.e., before & after any condomless anal sex)? A full dose includes the pills taken before sex and after sex as in the figure. Use the scale below. 0% would mean ‘NONE’ of the time and 100% would mean ‘ALL’ of the time. If you are unsure, make a guess.

% medication taken:

0 ________________________[__]_____________________________ 100

Decline to answer

Figure.

Shape4
Shape3

[IF L6 =100%, skip to L10]

L8. In the past 3 months, what percent of the time did you do the following before having any condomless anal sex? Note: Your responses should add up to 100%. If any of the categories do not apply to you, please enter “0”. [Add logic so that these responses must sum to 100%]

Did not take any of the 4 pills: ___%
Took 1 of the 4 pills: ____ %
Took 2 of the 4 pills: ____ %
Took 3 of the 4 pills: ___ %
Took 4 of the 4 pills: ___%
Decline to answer

L9. What has gotten in the way of you taking your intermittent PrEP as prescribed (i.e., before & after having any condomless anal sex)? (Choose all that apply)

I have not had any trouble taking my PrEP doses
Couldn't get my pills at the drug store or pharmacy
Ran out of my prescription and never started again
Forgot to take my pills before sex
Forgot to take my pills after sex
Didn’t know I was going to have sex and I didn’t have any PrEP with me
Didn’t think I needed to take all the pills
Did not have health insurance to pay for the prescriptions
Made me sick to my stomach or tasted bad
I got a headache, rash, or other physical symptom
Didn't feel like taking it, needed a break
Change in living situation/moved
Worried that someone will think I have HIV
Got sick with another illness, wasn't feeling well (e.g., cold, flu, etc.)
Don't think I need the pills anymore, I can stay healthy without them
Family and/or friends didn't help me remember
Family and/or friends told me I shouldn't take them
Nowhere to keep the pills at school or work
Didn't understand why I had to take the pills
I kept getting sick even when I did take the pills
Taking it reminded me of HIV
Other, please specify
Decline to answer

[Selected multiple options=L10, otherwise L11]

L10. Please rank the things that have gotten in the way of taking PrEP, in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from L7] rank Most Important, Important, Least Important
Decline to answer

L11. We are interested in how you feel about the following statements. Please answer by indicating your confidence about each statement on a scale from 1 (not confident) to 10 (totally confident).

Take PrEP when dealing with schedule changes:

Take PrEP when having medication side effects:

Keep your PrEP medical appointments:

Follow a plan for taking PrEP:

Decline to answer

[Skip to L19]

L12. When was the date of your last PrEP injection? (If exact date is unknown, then use the 1^st of the month of injection).

___dd/mm/yyyy____

Decline to answer

L13. When is the date of your next PrEP injection? (If exact date is unknown, then use the 1^st of the month of injection).

___dd/mm/yyyy____

Decline to answer

L14. In the past 3 months, have you missed any injections?

[Yes=L15, otherwise L16]

No
Yes
Decline to answer

L15. What has gotten in the way of you getting your PrEP injections? (Choose all that apply)

I have not had any trouble getting my regular PrEP injections
Couldn't get an injection appointment
Appointment location was too far away or couldn’t get transportation
Dissatisfied with quality of clinic services
Negative attitudes held by clinic staff
Worried about paying for the injection
Irritation at the injection site
I had some other physical symptom
Forgot to schedule or attend my appointment
It got in the way of my schedule
Didn't feel like taking it, needed a break
Change in living situation/moved
Worried that someone will think I have HIV
Got sick with another illness, wasn't feeling well (e.g., cold, flu, etc.)
Don't think I need the injections anymore, I can stay healthy without them
Family and/or friends didn't help me remember
Family and/or friends told me I shouldn't get them
Didn't understand why I had to get the injections
I kept getting sick even when I did get the injections
Getting them reminded me of HIV
Other, please specify
Decline to answer

[Selected multiple options=L16, otherwise L17]

L16. Please rank the things that have gotten in the way of taking PrEP, in order of importance, in order of importance by selecting most important, important, and least important for each reason you selected.

[Answers from L14] rank Most Important, Important, Least Important
Decline to answer

L17. We are interested in how you feel about the following statements. Please answer by indicating your confidence about each statement on a scale from 1 (not confident) to 10 (totally confident).

Keep your injectable PrEP appointments:

Follow a plan for getting your PrEP:

Decline to answer

[ALL PARTICIPANTS]

[L18 only 3, 9, and 15M]

L18. Please rate how much each of the following items influences your decision about taking PrEP.

	Not at all	A little bit	A moderate amount	A lot	Decline to answer
Having to talk to a healthcare provider about my sex life
Having to talk to a healthcare provider about PrEP
Friends finding out that I am on PrEP
Sexual partner(s) finding out that I am on PrEP
Family members finding out that I am on PrEP
The long-term effects of PrEP on my health
The possibility that PrEP might not provide complete protection against HIV
The possibility that if I become HIV positive, certain medications won’t work
The potential side effects of PrEP
Having to remember to take a pill or get an injection
Getting transportation to PrEP appointments/labs
Returning for PrEP follow-up appointments and labs
Getting a PrEP prescription refilled
Using insurance to get coverage for PrEP costs
Getting the costs of PrEP covered (including office visits or office visit co-pays, lab costs, transportation costs)

[6, 12, and 18M surveys only]

[M11 only 12M survey]

In this section, we will ask questions about your devices and your social media and internet use.

M1. On average, how many hours a day do you spend on the Internet, other than for work or school? (Round to the nearest hour) _______ [integer 0-24]

Decline to answer

M2. Which of the following devices do you own? (Check all that apply)

[If cell phone then M4, if smartphone then M3, otherwise M4]

Cell phone (basic mobile phone for calling or texting; does not have internet access, apps, or a touch screen)
Smartphone (advanced mobile phone with internet access, apps, and a touch screen)
Desktop computer
Laptop computer
Tablet computer
E-book reader
Fitness tracker or smart watch
Other, please specify
Decline to answer

M3. How often do you use apps on your smartphone (for example: TikTok, Instagram, dating apps, banking apps, Snapchat)?

More than once a day
About once a day
A few times a week
About once a week
Less than once a week
I do not use apps on my phone
Decline to answer

M4. Do you regularly share your phone with one or more other people (such as a partner, family member, or friends)?

Yes
No
Decline to answer

M5. What kind of phone service do you have?

I have a prepaid account
I have a monthly contract
I’m on a shared plan
Other, please specify
Decline to answer

M6. How many times in the past 3 months has your phone been disconnected, because the bill was not paid, or because your phone was lost or stolen?

[Never=M8, otherwise M7]

Never
Once
Twice
3 to 5 times
More than 5 times
Other, please specify
Decline to answer

M7. The last time your phone was disconnected, for how long was it disconnected?

1 day or less
2 to 7 days
1 to 4 weeks
1 month or more
Other, please specify
Decline to answer

M8. How often do you use websites or apps for the following reasons:

	Never	Rarely	Sometimes	Often	Decline to answer
Make new friends
Chat with friends
Find a date
Meet partners for sex
Look for work opportunities
Track your health behaviors (diet, exercise, medication management, etc.)
Create event reminders (take a daily pill, exercise, etc.)

M9. What are the 3 social media platforms you use most often?

YouTube
LinkedIn
Reddit
WhatsApp
Snapchat
Twitter
Facebook
Instagram
TikTok
Other, please specify
Decline to answer

M10. [Ybarra scale] In the past 3 months, have you searched online for any of the following topics for yourself? (Check all that apply)

Sexuality or sexual attraction
How to have sex or sexual positions
HIV/AIDS or other sexually transmitted diseases
Condoms or other types of birth control
PrEP (Pre-Exposure Prophylaxis)
PEP (Post Exposure Prophylaxis)
Fitness or weight issues
Drugs or alcohol
Violence or abuse
Medications or medication side effects
Depression, anxiety, or suicide
None
Decline to answer

[M11 only 12M survey]

M11. Please indicate your agreement with the following statements

	Strongly Agree	Agree	Neither Agree nor Disagree	Disagree	Strongly Disagree	Decline to Answer
I know what health resources are available on the Internet.	( )	( )	( )	( )	( )	( )
I know how to find helpful health resources on the Internet.	( )	( )	( )	( )	( )	( )
I know how to use the Internet to answer my questions about health.	( )	( )	( )	( )	( )	( )
I know how to use the health information I find on the Internet to help me.	( )	( )	( )	( )	( )	( )
I have the skills I need to evaluate the health resources I find on the Internet.	( )	( )	( )	( )	( )	( )
I can tell high quality health resources from low quality health resources on the Internet.	( )	( )	( )	( )	( )	( )
I feel confident in using information from the Internet to make health decisions.	( )	( )	( )	( )	( )	( )
I know where to find helpful health resources on the Internet.	( )	( )	( )	( )	( )	( )

[ALL FOLLOW-UP SURVEYS]

N1. How do you define your primary relationship status? [Routing question, may not skip]

Single [Skip to Section O]
Casually dating/friends with benefits [Skip to Section O]
In a relationship (Have a partner/partners or spouse)
Other, please specify [Skip to Section O]
Decline to answer [Skip to Section O]

[6, 12, 18 MONTH ONLY]

People have different sexual health priorities. For example, some people prioritize staying HIV-negative; others want to have as much fun as possible with their partners; others want to feel as close and connected to their partners as possible.

N2. For these next questions, we are interested in you and your primary romantic partner’s sexual health priorities. Thinking about you and your primary partner’s sexual health priorities, please indicate the extent to which you agree or disagree with the following statements.

	Strongly Agree	Agree	Neither Agree nor Disagree	Disagree	Strongly Disagree	Decline to answer
I feel like my partner and I are “on the same page” in terms of the decisions we make about sexual health and risk	( )	( )	( )	( )	( )	( )
When it comes to sexual decision-making, I feel like my partner and I are “of the same mind”	( )	( )	( )	( )	( )	( )
Sometimes I feel like my priorities for my sexual health are incompatible with my partner’s goals	( )	( )	( )	( )	( )	( )
I’m confident that my partner and I generally share the same priorities when it comes to sexual health	( )	( )	( )	( )	( )	( )
Making sexual health decisions with my partner can be difficult because we have different priorities	( )	( )	( )	( )	( )	( )

[ALL FOLLOW-UP SURVEYS]

This set of questions will ask about your sexual behaviors. Sometimes sharing information about sexual behaviors can make people feel uncomfortable. We want you to remember that all this information is kept confidential and is collected only for research purposes. This information will help this study learn more about PrEP and HIV prevention. Please be as honest as possible. If you are unsure of any answers in this section, please make your best guess.

O1. In the past 3 months, how many sexual partners have you had sex with? [NumSexPartner] ______ (range 0-99) (text field)

Decline to answer

[If NumSexPartner =0 then skip to Section P]

[If NumSexPartner = 1 then O2-O5]

[If NumSexPartner > 1 then O6-O9]

The following questions ask about your sexual behavior during the past 3 months. Our focus in this section will be exclusively on anal sex. Therefore, only include partners with whom you had anal sex.

O2. In the past 3 months, did you have receptive anal sex with this person (you were the bottom)? [ReceptiveAI]

[Yes = O3, otherwise O?]

Yes
No
Decline to answer

O3. About this person, did they put their penis in your rectum without a condom? [ReceptiveAINoCondom]

Yes
No
Decline to answer

O4. Regarding this person… [OneRecAIHIVStatus]

They told you they were HIV negative and you had no reason to doubt it. [Negative]
They told you they were HIV positive and they were undetectable
They told you they were HIV positive but did NOT say they were undetectable.
You were not completely sure of this person’s HIV status. [StatusUnknown]
Decline to answer

O5. Was this person using PrEP? [OneRecAIPrep]

Yes
No
I don’t know
Decline to answer

[Skip to O10]

O6. In the past 3 months, with how many of these [NumSexPartner] people did you have receptive anal sex (you were the bottom)? [ReceptiveAI]

_________ (range 0-[NumSexPartner]) (fill-in) [If >0 then O7, otherwise O14]

Decline to answer

O7. Of these [ReceptiveAI] people, how many put their penises in your rectum without a condom? ___ [ReceptiveAINoCondom] (Range 0-[ReceptiveAI]) (fill-in)

Decline to answer

O8. Of the [ReceptiveAI] people you had receptive anal sex with, how many… (Please enter a number in each box. Enter 0 (zero) if none. Your answers must add up to [ReceptiveAI]).

Told you they were HIV negative and you had no reason to doubt it? ____
Told you they were HIV positive and they were undetectable? ____
Told you they were HIV positive but did NOT say they were undetectable. ____
Were you not completely sure of their HIV status? ____
Decline to answer

_____(TOTAL) [MultRecAIHIVTotal] This number must be the sum of the previous 3 responses, and should tally as the answers are populated. Validate that [MultRecUAIHIVTotal] = [ReceptiveAI]

Decline to answer

O9. To your knowledge, how many of these people were taking PrEP? [MultRecAIPrep] ____ (range 0-[ReceptiveAI]) (fill-in)

Decline to answer

[Skip to O14]

[If NumSexPartner = 1 then O10-O13]

[If NumSexPartner > 1 then O14-O17]

O10. We have a few more questions about your sexual behavior with the person who was your anal sex partner in the past 3 months.

In the past 3 months, did you have insertive anal sex with this person (you were the top)? [InsertiveAI]

[Yes = O11, otherwise O18]

Yes
No
Decline to answer

O11. About this person, did you put your penis in their rectum without a condom? [InsertiveAINoCondom]

Yes
No
Decline to answer

[Skip to O13 if already answered O4]

O12. Regarding this person… [OneRecAIHIVStatus]

They told you they were HIV negative and you had no reason to doubt it. [Negative]
They told you they were HIV positive and they were undetectable
They told you they were HIV positive but did NOT say they were undetectable.
You were not completely sure of this person’s HIV status. [StatusUnknown]
Decline to answer

[Skip to O18 if already answered O5]

O13. Was this person using PrEP? [OneRecAIPrep]

Yes
No
I don’t know
Decline to answer

[Skip to O18]

O14. We have a few more questions about your sexual behavior with the people who were your anal sex partners in the past 3 months.

In the past 3 months, with how many of these [NumSexPartner] people did you have insertive anal sex (you were the top)? [InsertiveAI] ___ (range 0-[NumSexPartner]) (fill-in) [If >0 then O15, otherwise O22]

Decline to answer

O15. Of these [InsertiveAI] people, how many of their rectums did you put your penis into without a condom? _____ [InsertiveAINoCondom] (range 0-[InsertiveAI]) (fill-in)

Decline to answer

O16. Of the [InsertiveAI] people you had insertive anal sex with, how many… (Please enter a number in each box. Enter 0 (zero) if none. Your answers must add up to [InsertiveAI]).

Told you they were HIV negative and you had no reason to doubt it? ____
Told you they were HIV positive and they were undetectable? ____
Told you they were HIV positive but did NOT say they were undetectable. ____
Were you not completely sure of their HIV status? ____
Decline to answer

_____(TOTAL) [MultInsAIHIVTotal] This number must be the sum of the previous 3 responses, and should tally as the answers are populated. Validate that [MultInsUAIHIVTotal] = [InsertiveAI]

Decline to answer

O17. To your knowledge, how many of these people were taking PrEP?

[MultRecAIPrep] ____ (range 0-[InsertiveAI]) (fill-in)

Decline to answer

[Skip to O22]

We will now ask you questions about your experience with vaginal sex in the past 3 months. Our focus in this section is exclusively on vaginal sex.

[If NumSexPartner = 1 then O18-O21]

[If NumSexPartner > 1 then O22-O25]

O18. In the past 3 months, did you have vaginal sex with this person (did you put your penis in their vagina or neovagina)? [VI]

[Yes = O19, otherwise ]

Yes
No
Decline to answer

O19. About this person, did you put your penis in their vagina (or neovagina) without a condom? [InsertiveVINoCondom]

Yes
No
Decline to answer

O20. Regarding this person… [OneRecAIHIVStatus]

They told you they were HIV negative and you had no reason to doubt it. [Negative]
They told you they were HIV positive and they were undetectable
They told you they were HIV positive but did NOT say they were undetectable.
You were not completely sure of this person’s HIV status. [StatusUnknown]
Decline to answer

O21. Was this person using PrEP? [OneRecAIPrep]

Yes
No
I don’t know
Decline to answer

[Skip to routing before O26]

Strongly Agree

Neither Agree nor Disagree

Strongly Disagree

Decline to answer

Most people in my community would discriminate against someone with HIV

Most people in my community would support the rights of a person with HIV to live and work wherever they wanted to

Most people in my community would not be friends with someone with HIV

Most people in my community think that people who got HIV through sex or drug use have gotten what they deserve

O22. In the past 3 months, with how many sexual partners did you have vaginal sex (you put your penis in someone’s vagina or neovagina)? [VI] ___ (range 0-[NumVagSexPartner]) (fill-in) [If >0 then O23, otherwise routing before O26]

Decline to answer

O23. Of these [InsertiveVI] people, how many of their vaginas (or neovaginas) did you put your penis into without a condom?___ [InsertiveVINoCondom] (range 0-[InsertiveAI]) (fill-in)

Decline to answer

O24. Of the [InsertiveVI] people you had vaginal sex with, how many… (Please enter a number in each box. Enter 0 (zero) if none. Your answers must add up to [InsertiveVI]).

Told you they were HIV negative and you had no reason to doubt it? ____
Told you they were HIV positive and they were undetectable? ____
Told you they were HIV positive but did NOT say they were undetectable. ____
Were you not completely sure of their HIV status? ____
Decline to answer

_____(TOTAL) [MultInsVIHIVTotal] This number must be the sum of the previous 3 responses, and should tally as the answers are populated. Validate that [MultInsVIHIVTotal] = [InsertiveVI]

Decline to answer

O25. To your knowledge, how many of these people were taking PrEP?

[MultRecVIPrep] ____ (range 0-[InsertiveVI]) (fill-in)

Decline to answer

[If O2 = NO, N6 = 0, O10 = NO, O14 = 0 then no anal sex reported, skip to O27]

O26. Now we are going to ask you to think back to any anal sex you had in the past 2 months (8 weeks). You may refer back to your sex tracker in the app if that would be helpful. If you are unsure of any answers below, please make your best guess.

Thinking back to the past week, [pipe in date range here with calendar]:

How many times did you have any anal sex?