Thank You Note

Att 14_Thank you note.docx

[NCBDDD] Documenting Outcomes Associated with Persistent Tic Disorders (Including Tourette Syndrome) in Children, Adolescents, and Young Adults Through Surveillance

Thank You Note

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Dear [participant name],


Thank you for participating in the Tic Information Collection System (TICS). Your participation is important to us and has added to what we know about how persistent tic disorders and Tourette syndrome (PTD/TS) affect children, adolescents, and young adults. The findings from the TICS may help identify unmet needs of children, adolescents, and young adults with PTD/TS and may also help individuals with PTD/TS and their families plan for the future. 


Your gift card worth $20.00 is included to thank you for your time and effort.


If you have any questions or concerns, please contact [Name, Project Manager at phone number].


Thank you again for completing this important survey.



Sincerely,


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Site Lead/PI

Site


[optional 2nd contact signature]


Name

Affiliation






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Contact information specific to each site to be inserted above

Site 1a: Adam Lewin, Ph.D. ABPP, University of South Florida Division of Pediatric Neuropsychiatry – Rothman Center, St. Petersburg, FL, 727-828-6420

Site 1b: Name, degree, University of South Florida Division of Pediatric Neurology, Tampa, FL, phone number, or Adam Lewin, Ph.D. ABPP, University of South Florida Division of Pediatric Neuropsychiatry – Rothman Center, St. Petersburg, FL, 727-828-6420

Site 2 (tentative, to be confirmed): Kevin J. Black, M.D., Washington University School of Medicine Tourette Association Center of Excellence, St. Louis, MO; 314-362-5041, or Katrina Hermetet, Ph.D., NCSP. Tourette Association of America. 718-224-2999, ext. 250.

Site 3 (tentative, to be confirmed): Barbara J. Coffey, M.D., M.S.; Miami Miller School of Medicine Tourette Association Center of Excellence, Miami, FL, 305-243-4136, or Katrina Hermetet, Ph.D., NCSP. Tourette Association of America. 718-224-2999, ext. 250.

Site 4 (tentative, to be confirmed): Joohi Jimenez-Shahed, M.D., Mount Sinai West, Mount Sinai Tourette Association of America Center of Excellence, New York, NY, 212-523-8335, or Katrina Hermetet, Ph.D., NCSP, Tourette Association of America. 718-224-2999, ext. 250.


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