Content by Responder

Att 12_content by respondent.docx

[NCBDDD] Documenting Outcomes Associated with Persistent Tic Disorders (Including Tourette Syndrome) in Children, Adolescents, and Young Adults Through Surveillance

Content by Responder

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Attachment 12: Summary of content assessed across respondent groups.

Content

Adult

(18-26 years)

Parent

Teen

(12-17 years)

Older child

(9-11 years)

Younger child

(4-8 years)

Content assessed by clinician or trained staff member

Yale Global Tic Severity Scale (YGTSS)

X

X (for/with child)

X

X

X

Ask Suicide Screening Questions (ASQ)

X

X (with children 9 and older)

X

X


Content assessed by self-report survey

Demographics

X

X

sexual orientation only



Self-injury/suicide

X


X



Self-report of depression symptoms

X (PHQ-9)


X (PHQ-A)



Self-report of anxiety symptoms

X (GAD-7)


X (SCARED)

X (SCARED)


Healthcare transition

X

X (for parents of 12-17-year-olds only)

X



Previous diagnosis of co-occurring disorders

X

X




Treatment

X

X




Costs

X

X






The YGTSS and ASQ will be completed by trained professionals. Parents will participate in providing information on tic symptoms for the YGTSS and may be present for the ASQ; therefore, although these measures are assessing the children, the time for these measures is included in the estimated burden for both parents and children. The remaining content will be assessed by surveys of respondents in the following categories: adults aged 18-26 years, parents of children aged 4-17 years, teens aged 12-17 years, and children aged 9-11 years.



Abbreviations

ASQ: Ask Suicide Screening Questions; GAD-7: Generalized Anxiety Disorder 7-item; PHQ-9: Patient Health Questionnaire; PHQ-A: Patient Health Questionnaire – Adolescent version; SCARED: Screen for Child Anxiety Related Disorders; YGTSS: Yale Global Tic Severity Scale




File Typeapplication/vnd.openxmlformats-officedocument.wordprocessingml.document
AuthorTinker, Sarah (CDC/NCBDDD/DHDD)
File Modified0000-00-00
File Created2025-07-01

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