NonSubstantive Change Request Justification

Change Request Memo - EO14168 Template_updated.docx

[NCBDDD] Population-based Surveillance of Outcomes, Needs, and Well-being of Children and Adolescents with Congenital Heart Defects

NonSubstantive Change Request Justification

OMB: 0920-1382

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Non-substantive Change Request

OMB Control Number 0920-1382

Congenital Heart Survey To Recognize Outcomes, Needs, and wellbeinG of KIDS

Date Submitted: 02/25/2025


Summary of request: CDC/NCBDDD is requesting a change request to revise questions to align with EO 14168 Defending Women From Gender Ideology Extremism and Restoring Biological Truth to the Federal Government.


Description of Changes Requested: This request updates sex questions used in Congenital Heart Survey To Recognize Outcomes, Needs, and wellbeinG of KIDS to be in accordance with EO 14168. Please check the boxes below if your request includes:

Shape1

x


Revision of an existing question(s)

Deletion of an existing question(s)


If revising an existing question, CDC is advised to use one of the two versions below and can state that CDC will be changing the current Gender/Sex question to:


What is your Sex?

- Male

- Female


OR


What is your Sex?

- Male

- Female

- Undetermined

- Missing Value [Null]


If removing an existing question, the question to be removed can be included here.


Description of these actions could also be included in the Table at the bottom of this document.


Description of Changes to Burden (if applicable):

** If changes are only made to Gender/Sex question these are expected to result in no change in Burden Hours. Program can state: “There is no change in Burden Hours associated with the modifications made to comply with EO 14168” **



There is no change in Burden Hours associated with the modifications made to comply with EO 14168.



Other Considerations (optional): CDC can include other aspects associated with the submission of this Non-Substantive Change Request here (e.g., timing sensitivities, implementation requirements, etc.,).


Only one site (Massachusetts) used a phone script for recruitment, and this site finished recruitment for CHSTRONG KIDS in 2024. Therefore, we have not provided an update to their phone script (Attachment 32_ MA Phone Script, “CHSTRONG KIDS Phone Script”) with this change request.


Table A: Description of Changes (optional, helpful if multiple changes to multiple forms):

Type of Change

Question/Item

Requested Change

Congenital Heart Survey To Recognize Outcomes, Needs, and wellbeinG of KIDS; Childhood Experiences Section; Question #84 j.

(English Paper Survey, pg 19;

Spanish Paper Survey, pg 20;

Somali Paper Survey, pg 20;

English Online Survey, pg 39;

Spanish Online Survey pg 38)

Question Revision

84. To the best of your knowledge, has this child EVER experienced any of the following:  

j. Treated or judged unfairly because of their sexual orientation or gender identity?  

84. To the best of your knowledge, has this child EVER experienced any of the following:  

j. Treated or judged unfairly because of their sexual orientation?  

Survey Question Crosswalk; Question 83

Question Revision

To the best of your knowledge, has this child EVER experienced any of the following:  

Treated or judged unfairly because of their sexual orientation or gender identity?  

To the best of your knowledge, has this child EVER experienced any of the following:  

Treated or judged unfairly because of their sexual orientation?  













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AuthorZirger, Jeffrey (CDC/OD/OS)
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