MD FG Email Caregiver

Appendix A MD FG Email

Dear <Participant Name>,

The National Center on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention (CDC) is holding focus groups with caregivers of people with muscular dystrophies (MD). The purpose of the focus groups is to learn about the healthcare and other experiences of caregivers of people with MD. The focus groups will be held online using a tablet, laptop, or desktop computer. Some more information about the focus group is below.

• You must be 18 years or older. If you care for a person with MD, that person must be under the age of 18.

• The focus groups will last approximately 90 minutes.

• We ask that you keep your camera on during the entire focus group.

• You will receive $75 for your time.

• The focus groups will be recorded only to help with note taking and will not be shared.

• Nothing said during the focus groups will be linked to your name.

• Your participation in the focus group is voluntary and you can refuse to answer any question for any reason. Also, you can stop participating at any time, for any reason, without penalty.

• The information collected will help the CDC to understand healthcare experiences and help people with MD get the care they need.

If you are interested in participating in a focus group, please use the link below to answer some short questions to confirm that you are eligible to participate.

<Link>

If you have any questions about the project or your participation, you may contact Lindsay Gutekunst, Project Director, at lgutekunst@krcresearch.com.

Sincerely,

L indsay Gutekunst  |  Senior Vice President

(202) 585-2922 (office) 

lgutekunst@krcresearch.com

733 10th Street NW Suite 500, Washington, DC 20001

Our insight. Your breakthrough. |  www.krcresearch.com

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