Privacy Act Statement

Protocol, PFAS/viral infection, v1.0

Last Revised: July 19, 2021

Reading Level 8.3

Appendix K – Privacy Act Statement

Evaluating the Association between Serum Concentrations of Per- and Polyfluoroalkyl Substances (PFAS) and Symptoms and Diagnoses of Selected Acute Viral Illnesses

Privacy Act Statement

The Privacy Act of 1974, 5 USC 552a, provides protection to individuals by ensuring that personal information collected by Federal agencies is limited to that which is legally authorized and necessary and is maintained in a manner which precludes unwarranted intrusions upon individual privacy.

Authority

The Agency for Toxic Substance and Disease Registry (ATSDR) and the Centers for Disease Control and Prevention’s (CDC) National Center for Environmental Health (NCEH) are authorized to conduct this study under the 1980 Comprehensive Environmental Response, Compensation, and Liability Act (CERCLA), as amended by the 1986 Superfund Amendments and Reauthorization Act (SARA) (42 U.S.C. 9601, 9604), and the Public Health Service Act Section 301 (42 U.S.C. 241) and Section 311 (42 U.S.C. 243), respectively.

Purpose

The purpose of this research study is to see if the amount of PFAS in a person’s blood is related to viral illnesses. This can include getting the COVID-19 virus.

CDC/ATSDR is collecting this information for:

• Adult consent, parental permission, and child assent to participate in surveys.

• Contacting you to remind you to complete the surveys.

• Linking to data from previous ATSDR PFAS investigations and research studies.

• Contacting you for future studies.

Routine Uses

• Routine uses as described in System of Records Notice (SORN) No. 09-19-0001 - ‘‘Records of Persons Exposed or Potentially Exposed to Toxic or Hazardous Substances.” See https://www.gpo.gov/fdsys/pkg/FR-2011-01-25/pdf/2010-33004.pdf.

Disclosure

Providing this information is voluntary. CDC/ATSDR need this information for you or your child to take part in the study. Both agencies need up-to-date contact information to send your or your child’s surveys and survey reminders. If you permit, CDC/ATSDR would like to keep your contact information for future studies.

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