NPCR-CSS Standard Data Items Collected

Data Items by Diagnosis Year 1995-2020

Record ID and Demographic Section—(Name and [Number])
Item #
10
20
40
50
80
89
90
95
96

Required Status
1995–2020

3310

Record Type
Patient ID Number (unique)
Registry ID
NAACCR Record Version
Address at Dx—State
County at DX Analysis
County at Dx Reported
County at Dx GeoCode 2000
County at Dx GeoCode 2010
Rural-Urban Continuum/Beale Code 2003

Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes

3312
100
130
135
145
365
367
160
161
162
163
164
190
191
192
193
220
230
240
241
252
254

Rural-Urban Continuum/Beale Code 2013
Address at Dx—Postal Code
Census Tract 2000
Census Tract 2010
Census Tract Poverty Indicator
Census Tr Certainty 2000
Census Tr Certainty 2010
Race 1
Race 2
Race 3
Race 4
Race 5
Spanish/Hispanic Origin
NHIA Derived Hisp Origin
IHS Link
Race--NAPIIA
Sex
Age at Diagnosis
Date of Birth
Date of Birth Flag
Birthplace State
Birthplace Country

Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes

Cancer Identification Section—(Name and [Number])
Item #
380
390
391
400
410
440

Required Status
1995–2020

Sequence Number—Central
Date of Diagnosis
Date of Diagnosis Flag
Primary Site
Laterality
Grade

Yes
Yes
Yes
Yes
Yes
Yes
June 2021
NPCR-CSS 2021 Data Submission
1995-2020 Diagnosis Years

New

Footnote

1

1
1
2
2
19
2
2

3
4
3

3843
3844
3845
490
500
501
522
523
630
2152

Grade Clinical
Grade Pathological
Grade Post Therapy
Diagnostic Confirmation
Type of Reporting Source
Casefinding Source
Histologic Type ICD-O-3
Behavior Code ICD-O-3
Primary Payer at DX
CoC Accredited Flag

Yes
Yes
Yes
Yes
Yes
As available
Yes
Yes
As available
Yes

Treatment First Course Section—(Name and [Number])
Item #
1260
1261
1270
1271
3170
3171
1200
1201
1290
1292
1294
1340
1210
1211
1360
1380
1430
1220
1221
1390
1230
1231
1400
1240
1241
1410
1250
1251
1420
1506
1570
1639
3250
1285

Date of Initial Rx—SEER
Date of Initial Rx Flag
Date of 1st Crs Rx—COC
Date of 1st Crs Rx Flag
RX Date Mst Defn Srg
RX Date Mst Defn Srg Flag
RX Date Surgery
RX Date Surgery Flag
Rx Summ—Surg Primary Site
Rx Summ—Scope Reg LN Sur
Rx Summ—Surg Oth Reg/Dis
Reason for No Surgery
RX Date Radiation
RX Date Radiation Flag
RX Summ—Radiation
RX Summ—Surg/Rad Seq
Reason for No Radiation
RX Date Chemo
RX Date Chemo Flag
Rx Summ—Chemo
RX Date Hormone
RX Date Hormone Flag
Rx Summ—Hormone
RX Date BRM
RX Date BRM Flag
Rx Summ—BRM
RX Date Other
RX Date Other Flag
Rx Summ—Other
Phase I Radiation Treatment Modality
Rad—Regional Rx Modality
RX Summ—Systemic/Sur Seq
RX Summ--Transplant/Endocr
RX Summ--Treatment Status
Stage/Prognostic Factors Section—(Name and [Number])

Item #

24
24
24

18
5
5
24

Required Status
1995–2020
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
As available
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Required Status
1995–2020

June 2021
NPCR-CSS 2021 Data Submission
1995-2020 Diagnosis Years

6
6
6
6
7
7
7
7
7
7
7
7
7
7
7
7
7
7
7
7
7
7
7
7
7
7
7
7
7
7
7
7
7
7

820
830
759
760
764
756
995
2800
2810

2880
2890
2862
2864
2869
3020
3769
3800
3816
3817
3827
3855
3915
3920
3926
3927

Item #
1750
1751
1760
1762
1775
1782
1783
1784
1785
1786
1787
1788
1790
1791
1910
1914

Regional Nodes Positive
Regional Nodes Examined
SEER Summary Stage 2000
SEER Summary Stage 1977
SEER Summary Stage 2018
Tumor Size Summary
AJCC ID
CS Tumor Size
CS Extension
CS Site-Specific Factor 1 for:
C50 (breast)
C70.0-C70.9, C71.0-C71.9, C72.0-C72.9, C75.1-C75.3
(brain, CNS)
C619 (prostate)
CS Site-Specific Factor 2 for C50 (breast)
CS Site-Specific Factor 8 for C619 (prostate)
CS Site-Specific Factor 10 for C619 (prostate)
CS Site-Specific Factor 15 for breast (C50)

Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes

Yes

20

As available
Yes
As available
As available
Yes
Yes

Over-ride CS 20
Schema ID
Brain Molecular Markers
Breslow Tumor Thickness
Estrogen Receptor Summary
HER2 Overall Summary
Progesterone Receptor Summary
PSA (Prostatic Specific Antigen) Lab Value
Schema Discriminator 1
Schema Discriminator 2

Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes

Date of Last Contact
Date of Last Contact Flag
Vital Status
Vital Status Recode
Record Number Recode
Surv-Date Active Followup
Surv-Flag Active Followup
Survival Months Active Followup
Surv-Date Presumed Alive
Surv-Flag Presumed Alive
Survival Months Presumed Alive
Surv-Date Dx Recode
Follow-Up Source
Follow-Up Source Central
Cause of Death
SEER Cause-Specific COD

11

Yes

Derived SS2000

Follow-Up/Recurrence/Death Section—(Name and
[Number])

NEW

17
17
8
8
8
9
24
9
12

11

NEW

21
12
16
16
24
24
24
24
24
24
24
24
24

Required Status
1995–2020
Yes
Yes
Yes
As available
Yes
As available
As available
As available
As available
As available
As available
As available
As available
As available
Yes
As available

June 2021
NPCR-CSS 2021 Data Submission
1995-2020 Diagnosis Years

22
22
22
22
22
22
14
14

1915
1920

Item #
1990
2000
2010
2020
2030
2040
2050
2060
2070
2071
2074

SEER Other COD
ICD Revision Number

As available
As available

Over-Rides/Conversion/System Admin. Section—(Name and Required Status
[Number])
1995–2020
Over-Ride Age/Site/Morph
Over-Ride SeqNo/DxConf
Over-Ride Site/Lat/Sequence Number
Over-Ride Surg/Dxconf
Over-Ride Site/Type
Over-Ride Histology
Over-Ride Report Source
Over-Ride Ill-define Site
Over-Ride Leuk, Lymphoma
Over-Ride Site/Behavior
Over-Ride Site/Lat/Morph
NPCR Site-Specific Field

Item #
9980
9981
9960
9961
9965
9966
9967
9968
9990
9991
9405
9993

Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Required Status
1995–2020
Yes
Yes
As available
As available
As available
As available
As available
As available

15
15
13
13
13
13
13
13

IHS Purchased/Referred Care Delivery Area (PRCDA)

Yes

23

Urban Indian Health Organization (UIHO)
2018-2019 Congressional Districts (tract-based)
EPHT Sub-County Areas (tract-based)

Yes
Yes
Yes

EDP MDE Link
EDP MDE Link Date
Height
Weight
Tobacco Use Cigarettes
Tobacco Use Smoke
Tobacco Use Smokeless
Tobacco Use NOS

NOTE 1: Code “999” for unknown and invalid. Do not include cases with code “998” in
the submission file. If State law precludes the registry from identifying specific counties on
a file of individual records, recode all valid county codes to “000” and convert county
codes to the derived Rural Urban Continuum variables. The Rural Urban Continuum
variables are required only if County at Dx Reported is not submitted. See Submission
Specifications document for more details.
Yes
90 County at Dx Reported
Yes
3310 Rural-Urban Continuum/Beale Code 2003
Yes
3312 Rural-Urban Continuum/Beale Code 2013
NOTE 2: Census Tract 2000 [130] is recommended for reportable cases diagnosed in
1998-2002 and required for reportable cases diagnosed in 2003-2009. Census Tract 2010
[135] is required for reportable cases diagnosed in 2010 and later.
Yes
130 Census Tract 2000
Yes
135 Census Tract 2010
Yes
365 Census Tr Certainty 2000
Yes
367 Census Tr Certainty 2010
June 2021
NPCR-CSS 2021 Data Submission
1995-2020 Diagnosis Years

NEW
NEW

23
23
23

NOTE 3: Report the results from the NAACCR*Prep Program. See the Submission
Specifications document and/or Attachment 1 for more details. Please note that code 9,
unknown, is not a valid code for the NHIA data item.
Yes
191 NHIA Derived Hisp Origin
Yes
193 Race--NAPIIA
NOTE 4: Report the results of cases submitted for IHS linkage using codes 0 or 1. See the
Submission Specifications document for further details.
Yes
192 IHS Link
NOTE 5: For reportable cases diagnosed in 2001 or later, data are to be coded using the
ICD-O-3 manual and submitted with these original ICD-O-3 values. For reportable cases
diagnosed before 2001, data are to be coded using the ICD-O-2 manual. Prior to
submission, convert these ICD-O-2 codes to ICD-O-3 codes.
Yes
522 Histologic Type ICD-O-3
Yes
523 Behavior Code ICD-O-3
NOTE 6: For cases diagnoses 2006 and later, submit either the SEER or COC field; for
reportable cases diagnosed prior to 2006, submit as available.
Yes
1260 Date of Initial Rx—SEER
Yes
1261 Date of Initial Rx Flag
Yes
1270 Date of 1st Crs Rx—COC
Yes
1271 Date of 1st Crs Rx Flag
NOTE 7: For reportable cases diagnosed outside the requirements specified below, submit
as available. Report the following treatment information for diagnosis years and primary
sites as indicated below. Pay close attention to the varying years. Generally, treatment
dates begin with diagnosis year 2011 while treatment modalities, other than surgery
related, begin with diagnosis year 2010. CCRs should consolidate all treatment data before
submission to CDC.
Yes
1285 RX Summ--Treatment Status
Yes
3170 RX Date Mst Defn Srg
Yes
3171 RX Date Mst Defn Srg Flag
Yes
1200 RX Date Surgery
Yes
1201 RX Date Surgery Flag
Yes
1290 Rx Summ—Surg Primary Site
Yes
1292 Rx Summ—Scope Reg LN Sur
Yes
1294 Rx Summ—Surg Oth Reg/Dis
Yes
1340 Reason for No Surgery
1210 RX Date Radiation

Yes

1211 Rx Date Radiation Flag

Yes

1360
1380
1430
1220

RX Summ—Radiation

As available

RX Summ—Surg/Rad Seq

Yes

Reason for No Radiation

Yes

RX Date Chemo

Yes
June 2021
NPCR-CSS 2021 Data Submission
1995-2020 Diagnosis Years

Diagnosis
Year
Required
2010+
2015+
2015+
2011+
2011+
2001+
2001+
2001+
2001+
2011-2014
2015+
2011-2014
2015+
2010-2014
2015-2017
2010-2014
2015+
2011-2014
2015+
2011-2014
2015+

Primary Site(s)

All sites
All sites
All sites
All sites
All sites
All sites
All sites
All sites
All sites
Breast, Colon, Rectum
All Sites
Breast, Colon, Rectum
All Sites
Breast, Colon, Rectum
All sites
Breast, Colon, Rectum
All sites
Breast, Colon, Rectum
All Sites
Breast, Colon, Rectum
All Sites

1221
1390
1230
1231
1400
1240
1241
1410
1250
1251

RX Date Chemo Flag

Yes

Rx Summ—Chemo

Yes

RX Date Hormone

Yes

RX Date Hormone Flag

Yes

Rx Summ—Hormone

Yes

RX Date BRM

Yes

RX Date BRM Flag

Yes

Rx Summ—BRM

Yes

RX Date Other

Yes

RX Date Other Flag

Yes

Rx Summ—Other
1420
1506 Phase I Radiation Treatment Modality
1570
1639

Yes
Yes

Rad—Regional Rx Modality

Yes

RX Summ—Systemic/Sur Seq

Yes

RX Summ--Transplant/Endocr
Yes
3250
NOTE 8: For reportable cases diagnosed 1995-2000, code using SEER Summary Staging
Guide 1977. For reportable cases diagnosed in 2001-2003 and 2016-2017, code using
SEER Summary Staging Manual 2000. Report Summary Stage 2000 as available for
diagnosis years 2004-2015. For reportable cases diagnosed in 2018 and later, code using
Yes
759 SEER Summary Stage 2000
Yes
760 SEER Summary Stage 1977
Yes
764 SEER Summary Stage 2018
NOTE 9: For reportable cases diagnosed 2008-2015, CS Tumor Size [2800] is required.
For cases diagnosed 2004-2007, submit as available. Tumor Size Summary [756] is
required to be submitted for reportable cases diagnosed 2016 and forward.
Yes
756 Tumor Size Summary
Yes
2800 CS Tumor Size
NOTE 10: Required to be submitted for reportable cases diagnosed 2010-2015. Submit as
available for reportable cases diagnosed 2004-2009.
2880 CS Site-Specific Factor 1 for
C34 (lung)
Yes
C692 with 9510/3, 9511/3, 9512/3, 9513/3 (retinoblastoma)
Yes
NOTE 11: Required to be submitted for reportable cases diagnosed 2010-2017. Submit
SSF 1 and SSF 2 as available for reportable cases diagnosed 2004-2009.
Yes
2880 CS Site-Specific Factor 1 for C50 (breast)
June 2021
NPCR-CSS 2021 Data Submission
1995-2020 Diagnosis Years

2011-2014
2015+
2010-2014
2015+
2011-2014
2015+
2011-2014
2015+
2010-2014
2015+
2011-2014
2015+

Breast, Colon, Rectum
All Sites
Breast, Colon, Rectum
All sites
Breast, Colon, Rectum
All Sites
Breast, Colon, Rectum
All Sites
Breast, Colon, Rectum
All sites
Breast, Colon, Rectum
All Sites

2011-2014
2015+
2010-2014
2015+
2011-2014
2015+
2011-2014
2015+
2010-2014
2015+
2018+
2010-2014
2015-2017
2010-2014
2015+
2010-2014
2015+

Breast, Colon, Rectum
All Sites
Breast, Colon, Rectum
All sites
Breast, Colon, Rectum
All Sites
Breast, Colon, Rectum
All Sites
Breast, Colon, Rectum
All sites
All sites
Breast, Colon, Rectum
All sites
Breast, Colon, Rectum
All sites
Breast, Colon, Rectum
All sites

Yes
2890 CS Site-Specific Factor 2 for C50 (breast)
NOTE 12: Required to be submitted for reportable cases diagnosed 2004-2015.
2810 CS Extension
Yes
Yes
3020 Derived SS2000
NOTE 13: For reportable cases diagnosed 2004 and later, submit the Height, Weight, and
Tobacco data items as available and in the appropriate locations for the NAACCR Record
layout version specified in the 2021 NPCR-CSS Submission Specifications.
As available
9960 Height
As available
9961 Weight
As available
9965 Tobacco Use Cigarettes
As available
9966 Tobacco Use Smoke
As available
9967 Tobacco Use Smokeless
NOS
As
available
9968 Tobacco Use
p
g
,
p
[1791] is required. For cases diagnosed 1995-2006, Follow-Up Source [1790] submit as
available.
As available
1790 Follow-Up Source
Yes
1791 Follow-Up Source Central
NOTE 15: For linkage results of reportable breast, cervical, and colorectal cancer cases.
Report the EDP MDE Link Variable and EDP MDE Link Date in the appropriate locations
for the NAACCR Record layout version specified in the 2021 NPCR-CSS Submission
Specifications.
Yes
9980 EDP MDE Link
Yes
9981 EDP MDE Link Date
NOTE 16: Over-Ride CS 20 [3769] is designated as a flag to identify cases directly coded
using SEER Summary Stage 2000 [759]. Use code 1 to indicate when SEER Summary Stage
2000 is directly coded, rather than derived using the Collaborative Staging Data Collection
System. Otherwise, “Over-Ride CS 20” must be blank.
Yes
3769 Over-ride CS 20
Yes
3020 Derived SS2000
NOTE 17: For reportable COLORECTAL CANCER CASES ONLY; submit Regional
Nodes Positive [820] and Regional Nodes Examined [830] as available for diagnosis years
1995-2011. For diagnosis year 2012 and later, Regional Nodes Positive [820] and
Regional Nodes Examined [830] are required for all sites .
Yes
820 Regional Nodes Positive
Yes
830 Regional Nodes Examined
NOTE 18: For reportable cases diagnosed 2012 forward, submit as available.
As available
501 Casefinding Source
NOTE 19: Required to be submitted for reportable cases diagnosed 2014 and forward.
Submit as available for reportable cases diagnosed prior to 2014.
Yes
145 Census Tract Poverty Indicator
NOTE 20: Required to be submitted for reportable cases diagnosed 2011-2017. Submit as
available for reportable cases diagnosed 2004-2010.
CS Site-Specific Factor 1 for C70.0-C70.9, C71.0-C71.9, C72.0Yes
2880 C72.9, C75.1-C75.3 (brain, CNS)
NOTE 21: Required to be submitted for reportable cases diagnosed 2011-2017. Submit as
available for reportable cases diagnosed 2010.
2869 CS Site-Specific Factor 15 for breast (C50)

Yes

June 2021
NPCR-CSS 2021 Data Submission
1995-2020 Diagnosis Years

NOTE 22: Submit Active Follow-up data items only if active follow-up is conducted on all
cases. Submit Presumed Alive data items only if linkage with the NDI is conducted and
match results included in the submission file.
1782 Surv-Date Active Followup
1783 Surv-Flag Active Followup
1784 Survival Months Active Follow-up
As available
1785 Surv-Date Presumed Alive
1786 Surv-Flag Presumed Alive
1787 Survival Months Presumed Alive
NOTE 23: Report the results derived using NAACCR*Prep in the appropriate locations for
the NAACCR Record layout version specified in the 2021 NPCR-CSS Submission
Yes
9990 IHS Purchased/Referred Care Delivery Area (PRCDA)
Yes
9991 Urban Indian Health Organization (UIHO)
Yes
2018-2019 Congressional Districts (tract-based)
Yes
EPHT Sub-County Areas (tract-based)
NOTE 24: Required to be submitted for reportable cases diagnosed 2018 and forward.
Yes
995 AJCC ID
Yes
2152 CoC Accredited Flag
Yes
3800 Schema ID
Yes
3816 Brain Molecular markers
Yes
3817 Breslow Tumor Thickness
Yes
3827 Estrogen Receptor Summary
Yes
3843 Grade Clinical
Yes
3844 Grade Pathological
Yes
3845 Grade Post Therapy
Yes
3855 HER2 Overall Summary
Yes
3915 Progesterone Receptor Summary
Yes
3920 PSA (Prostatic Specific Antigen) Lab Value
Yes
3926 Schema Discriminator 1
Yes
3927 Schema Discriminator 2

June 2021
NPCR-CSS 2021 Data Submission
1995-2020 Diagnosis Years