60-Day Published Notice - Be the Match Patient Support Center Survey

60-Day Published Notice - Be the Match Patient Support Center Survey.pdf

Be the Match® Patient Services Survey

60-Day Published Notice - Be the Match Patient Support Center Survey

OMB: 0906-0004

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26483

Federal Register / Vol. 85, No. 86 / Monday, May 4, 2020 / Notices
through the Runaway and Homeless
Youth (RHY) Program funding. RHY
data collection is integrated with the
U.S. Department of Housing and Urban
Development’s (HUD) Homeless
Management Information System
(HMIS).
DATES: Comments due within 60 days of
publication. In compliance with the
requirements of Section 3506(c)(2)(A) of
the Paperwork Reduction Act of 1995,
the Administration for Children and
Families (ACF) is soliciting public
comment on the specific aspects of the
information collection described above.
ADDRESSES: Copies of the proposed
collection of information can be

obtained and comments may be
forwarded by emailing infocollection@
acf.hhs.gov. Alternatively, copies can
also be obtained by writing to the
Administration for Children and
Families, Office of Planning, Research,
and Evaluation (OPRE), 330 C Street
SW, Washington, DC 20201, Attn: ACF
Reports Clearance Officer. All requests,
emailed or written, should be identified
by the title of the information collection.
SUPPLEMENTARY INFORMATION:
Description: The RHY Program has a
requirement to collect information from
all youth who receive shelter and
supportive services with RHY funding.
In April 2015, ACYF, through a formal

Memorandum of Understanding,
integrated the RHY data collection with
HUD’s HMIS and HUD’s data standards
along with other federal partners. HUD’s
data standards has its own OMB
clearance, but ACYF is requesting
approval for the RHY data collection
efforts as HUD’s will no longer include
all federal partners. The data collection
instrument includes universal data
elements, which are collected by all
federal partners and program specific
elements, which are tailored to each
program using HUD’s HMIS.
Respondents: Youth who receive
emergency and longer-term shelter and
supportive services under RHY funding.

ANNUAL BURDEN ESTIMATES
Total
number of
respondents

Instrument

RHY–HMIS: ..........................................................................
Basic Center Program (Intake) ............................................
RHY–HMIS: ..........................................................................
Basic Center Program (Exit) ................................................
RHY–HMIS: Transitional Living Program (including Maternity Group Home program and TLP Demonstration Programs; Intake) ..................................................................
RHY–HMIS: Transitional Living Program (including Maternity Group Home program and TLP Demonstration Programs; Exit) ......................................................................
RHY–HMIS: ..........................................................................
Street Outreach Program (Contact) .....................................
RHY–HMIS: ..........................................................................
Street Outreach Program (Engagement) .............................

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Estimated Total Annual Burden
Hours: 54,170.
Comments: The Department
specifically requests comments on (a)
whether the proposed collection of
information is necessary for the proper
performance of the functions of the
agency, including whether the
information shall have practical utility;
(b) the accuracy of the agency’s estimate
of the burden of the proposed collection
of information; (c) the quality, utility,
and clarity of the information to be
collected; and (d) ways to minimize the
burden of the collection of information
on respondents, including through the
use of automated collection techniques
or other forms of information
technology. Consideration will be given
to comments and suggestions submitted
within 60 days of this publication.
Authority: Reconnecting Homeless Youth
Act of 2008 (P.L. 110–378) through FY 2013

Total
number of
responses per
respondent

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0.38

46,740

15,580

123,000

1

0.33

40,590

13,530

18,000

1

0.38

6,840

2,280

18,000

1

0.33

5,940

1,980

108,000

1

0.5

54,000

18,000

30,000

1

0.28

8,400

2,800

and more recently reauthorized by the
Juvenile Justice Reform Act through FY 2019.
Mary B. Jones,
ACF/OPRE Certifying Officer.
[FR Doc. 2020–09458 Filed 5–1–20; 8:45 am]
BILLING CODE 4182–04–P

of 1995, HRSA announces plans to
submit an Information Collection
Request (ICR), described below, to the
Office of Management and Budget
(OMB). Prior to submitting the ICR to
OMB, HRSA seeks comments from the
public regarding the burden estimate,
below, or any other aspect of the ICR.

DEPARTMENT OF HEALTH AND
HUMAN SERVICES

DATES:

Health Resources and Services
Administration

ADDRESSES:

Agency Information Collection
Activities: Proposed Collection: Public
Comment Request Information
Collection Request Title: Be The
Match® Patient Support Center Survey;
OMB No. 0906–0004—Revision
Health Resources and Services
Administration (HRSA), Department of
Health and Human Services.
ACTION: Notice.
AGENCY:

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Annual
burden
hours

1

In compliance with the
requirement for opportunity for public
comment on proposed data collection
projects of the Paperwork Reduction Act

19:03 May 01, 2020

Total
burden
hours

123,000

SUMMARY:

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Average
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hours per
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Comments on this ICR should be
received no later than July 6, 2020.
Submit your comments to
paperwork@hrsa.gov.

To
request more information on the
proposed project or to obtain a copy of
the data collection plans and draft
instruments, email paperwork@hrsa.gov
or call Lisa Wright-Solomon, the HRSA
Information Collection Clearance Officer
at (301) 443–1984.

FOR FURTHER INFORMATION CONTACT:

When
submitting comments or requesting
information, please include the ICR title
for reference.
Information Collection Request Title:
Be The Match® Patient Support Center
Survey; OMB No. 0906–0004—Revision.

SUPPLEMENTARY INFORMATION:

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26484

Federal Register / Vol. 85, No. 86 / Monday, May 4, 2020 / Notices

Abstract: The C.W. Bill Young Cell
Transplantation Program (Program) was
established by the Stem Cell
Therapeutic and Research Act of 2005
(Pub. L. 109–129) and was reauthorized
in 2015 (Pub. L. 114–104). The
Program’s Office of Patient Advocacy is
operated by the National Marrow Donor
Program® (NMDP)/Be The Match®).
NMDP/Be The Match® has specific
requirements under its HRSA contract
to conduct surveys to assess patient
satisfaction. As such, NMDP/Be The
Match® will elicit feedback from
marrow and cord blood transplant
patients, caregivers, and family
members who had contact with the Be
The Match® Patient Support Center for
navigation services, educational
information, and support. The survey
also includes demographic questions to
determine the representativeness of
findings. The objectives of the survey
are to: (1) Determine the level of
satisfaction with existing services of the
Patient Support Center and (2)
determine areas for improvement as
well as opportunities for the
development of new programs and
services.
Need and Proposed Use of the
Information: Barriers restricting access
to transplant-related care and
educational information are multifactorial. Feedback from participants is
essential to understand the changing
needs for services, and information, as
well as to demonstrate the effectiveness
of existing services. The primary use for
information gathered through the survey
is to determine the helpfulness of
participants’ initial contact with the Be
The Match® Blood and Marrow
Transplant (BMT) Navigators and to
identify areas for improvement in the
delivery of services. The BMT
Navigators are Certified Oncology

Patients or Nurse Navigators, who
respond to requests for information and
support. Stakeholders (e.g., participants,
program managers, Be The Match®
leadership, and HRSA) use this
evaluation data to share patients’
experiences as well as make program
(by program managers and leadership)
and resource allocation (by HRSA)
decisions.
Online and paper-based surveys will
be administered to all participants
(patients, caregivers, and family
members) who have contact with the Be
The Match® Patient Support Center. All
participants that provided an email
address will be invited to complete the
survey online. All other participants
will be mailed a survey with a pre-paid
reply envelope. Survey respondents will
be notified via email and cover letter
and informed in the survey instructions
that participation is voluntary, and
responses will be kept confidential. A
follow-up notification will be sent
within two (2) weeks to nonrespondents. The survey will be
available in English and Spanish
languages.
The survey will measure: (1) Overall
satisfaction; (2) if the contact helped the
participant feel more confident in
coping with the area of concern
regarding the call; (3) if the contact
helped the participant feel more
hopeful; (4) if the contact helped the
participant feel less alone; (5) increased
awareness of available resources; (6) if
the contact helped the participant feel
more informed about treatment options;
(7) if participant’s questions were
answered through contact with the Be
The Match® Patient Support Center, and
(8) types of challenges faced by
participant. The survey data will be
analyzed quarterly and rolled up for an
annualized analysis. The results of the
analyses will be shared with program

managers and HRSA. Feedback
indicating a need for improvement will
be reviewed by program managers
biannually, and implementation of
results, program changes, or additions
will be documented.
Proposed changes to the survey
instrument include minor changes to
selected questions and a reduction in
the overall number of questions. The
estimated amount of respondents will
increase as it will be easier for them to
complete the survey online. As a result
of fewer questions along with the
addition of an online platform, the
respondent’s burden will decrease.
Likely Respondents: Respondents will
include all patients, caregivers, and
family members who have contact with
Be The Match® Patient Services
Coordinators via phone or email for
transplant navigation services and
support. The decision to survey all
participants was made based on
historical evidence of patients’
unavailability due to frequent
transitions in health status.
Burden Statement: Burden in this
context means the time expended by
persons to generate, maintain, retain,
disclose, or provide the information
requested. This includes the time
needed to review instructions; to
develop, acquire, install and utilize
technology and systems for the purpose
of collecting, validating and verifying
information, processing and
maintaining information as well as
disclosing and providing information; to
train personnel and to be able to
respond to a collection of information;
to search data sources; to complete and
review the collection of information;
and to transmit or otherwise disclose
the information. The total annual
burden hours estimated for this ICR are
summarized in the table below.

TOTAL ESTIMATED ANNUALIZED BURDEN HOURS
Number of
respondents

Form name

Be The Match® Patient Support Center Survey ..................

Number of
responses per
respondent

4,000

Total
responses

1

4,000

Average
burden per
respondent
(in hours)
* 0.17

Total
burden hours
** 680

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* Decreased from .25 burden per respondent.
** Increased from 105 hours but due to an almost tenfold increase in number of respondents HRSA specifically requests comments on (1) the
necessity and utility of the proposed information collection for the proper performance of the agency’s functions, (2) the accuracy of the estimated burden, (3) ways to enhance the quality, utility, and clarity of the information to be collected, and (4) the use of automated collection techniques or other forms of information technology to minimize the information collection burden.
Maria G. Button,
Director, Executive Secretariat.
[FR Doc. 2020–09417 Filed 5–1–20; 8:45 am]
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