Supporting Statement B
Family-to-Family Health Information Center Feedback Surveys
New- OMB Control No. 0906-XXXX
The Health Resources and Services Administration will require each of the 59 Family-to-Family Health Information Centers (F2F HIC) to randomly select families and professionals who have received one-to-one service or training from their center and ask them to respond to one of three survey instruments. The three separate surveys (see Appendix A) are for (1) families who receive one-to-one service, (2) professionals who receive one-to-one service, and (3) individuals who attend trainings. Survey responses may be collected in-person or via telephone, e-mail, text message, social media, or other technology-based platform. Under randomized sampling, the F2F HICs will not influence the survey findings by collecting feedback from regular, satisfied customers. The method should be consistent and the centers should use the same system every year to identify a random sample of individuals to be surveyed. Responses from the same family or professional should not exceed more than once a year.
Respondent Universe and Sampling Methods
The respondent universe includes families and professionals of Children and Youth with Special Health Care Needs (CYSHCN) as well as training participants. Separate surveys have been developed for each type of respondent (i.e., family, professional, or training participant). The first question in each survey is considered a screener question. The survey instruments are provided in Appendix A. Answers from the feedback surveys can be logged in a spreadsheet or form similar to the Sample F2F HIC Survey Data Log found in Appendix B. Responses to the survey questions range from “strongly agree” to “strongly disagree,” and have a corresponding numeric value.
2. Procedures for the Collection of Information
Families and professionals who receive service on a one-to-one basis (e.g., in-person, over the phone, and/or via social media) and training from the F2F HICs will be randomly selected and contacted to answer questions (approximately 9 minutes). Specifically, feedback will be gathered on how well the F2F HIC met their needs, the utility of service and information received, and whether the center is a reliable resource that is worth sharing with other families and professionals.
F2F HICs are encouraged to use the most cost-effective and practical means for contacting individuals. Training participants can add survey data questions to an existing post-training evaluation form. When conducting follow-up phone calls, in particular, the evaluator should follow the script provided on the “F2F HIC Feedback Survey Script” (see Appendix C). The evaluator should read the question, and follow up each question with the response options provided (i.e., 1 if you strongly disagree, 2 if you disagree, etc.).
Volunteers or student interns can administer surveys, if practical. Some F2F HICs have part-time evaluators and thus, it is up to the organization to select the most appropriate approach. HRSA requires all F2F HIC grant recipients to submit the feedback survey data annually to the HRSA-funded National Center for Family/Professional Partnerships (NCFPP). The NCFPP will clean, aggregate, and report the data to HRSA.
Each year, HRSA will determine and provide the number of survey responses the F2F HICs must submit. HRSA has chosen to use a sample of families and professionals served/trained by all F2F HICs. This sample size is calculated using the total number of families and professionals served/trained for all F2F HICs in the previous reporting year (totals from data provided in the EHB). The sample size is calculated with a 95% confidence level and 5% margin of error. Below is a sample calculation using 2016-2017 actual data.
Sample calculations based on 2016-2017 data:
Total sample Surveys
Total served by needed to achieve required for
Survey Type All F2F HICs (N) 95% confidence (n) each F2F HIC
Families (one-to-one) 100,484 383 6
Professionals (one-to-one) 35,553 381 6
Training Participants 133,540 383 6
Total Surveys Required for each F2F HIC = 18
Methods to Maximize Response Rates and Deal with Nonresponse
F2F HICs may provide incentives to survey respondents in the form of payments, gifts or family support stipends utilizing program funds. Payments or gifts are not to exceed $25 per respondent.
Tests of Procedures or Methods to be Undertaken
F2F HICs will be encouraged to use technology-based methods to gather feedback.
Majority of F2F HICs have a system in place to record and track services provided to families on a monthly basis. The idea is to build upon the preexisting data collection system. Those that do not have an electronic system to collect survey data can use a paper log to record calls from families each month.
5. Individuals Consulted on Statistical Aspects and Individuals Collecting and/or Analyzing Data
HRSA received feedback from grant recipients regarding the survey methodology, feasibility of collecting data elements, and challenges with collecting data via telephone and random emails. In addition, from January 2015 – July 2017, HRSA consulted with F2F HICs who will report the feedback data and federal and non-federal staff to inform the methodology and development of the survey.
The following are individuals who provided consultation on the statistical aspect of the design and or involved in data collection and analysis of the survey.
Tami Allen
Families Together, Inc.
1518 Taylor Plaza - Garden City, KS 67846-4055
(620) 276-6364; tami@familiestogetherinc.org
Diana Autin
Statewide Parent Advocacy Network (SPAN) of NJ
35 Halsey Street
Newark, NJ 07102
(973) 642-8100, Ext. 105; Diana.autin@spanadvocacy.org
Beverly Baker
Family Voices, Inc.
PO Box 18
Lincolnville, ME 04849
(207) 458-1009; BBaker@familyvoices.org
Alma Ellis
University of Southern Mississippi, Institute for Disability Studies
3825 Ridgewood Road, Room 721
Jackson, MS 39211
(601) 432-6975; aellis@ihl.state.ms.us
Debi Gilbert
Health and Family Services, Kentucky Cabinet for CSHCN
310 Whittington Parkway
Louisville, KY 40222
(502) 429-4430 Ext. 2069; DebbieA.Gilbert@ky.gov
Sondra Gilbert
Health and Family Services, Kentucky Cabinet for CSHCN
310 Whittington Parkway
Louisville, KY 40222
(270) 687-7038 ext.2123; Sondra.Gilbert@ky.gov
Pip Marks
Support for Families of Children with Disabilities
1663 Mission St. 7th floor
San Francisco, CA 94103
(415) 282-7494; pmarks@familyvoicesofca.org
Michael McCarthy
Children’s Hospital of Ohio
MailStop
Code: MLC4002, Division Line: DDBP UC UCEDD
3333
Burnet Ave
Cincinnati,
OH 45229
(513) 803-3620; mccarml@ucmail.uc.edu
Jeanne McMahon
SPAN of NJ
35 Halsey Street
Newark, NJ 07102
(973) 642-8100; jmcmahon@spanadvocacy.org
Susan Murdock
Virginia Commonwealth University, Partnership for People with Disabilities
700 E. Franklin Street, 1st Floor
Richmond, VA 23219
(804) 828-0352; murdocksj@vcu.edu
Nithya Narayan
Children’s Hospital of Ohio
MailStop Code: MLC4002, Division Line: DDBP UC UCEDD
3333 Burnet Ave
Cincinnati, OH 45229
513-803-3846; Nithya.narayan@cchmc.org
Fanny Ochoa
SPAN of NJ
35 Halsey Street
Newark, NJ 07102
(973) 642-8100; fochoa@spanadvocacy.org
Ilka Riddle
Children’s Hospital of Ohio
MailStop
Code: MLC4002, Division Line: DDBP UC UCEDD
3333
Burnet Ave
Cincinnati,
OH 45229
(513) 803-3620; ilka.riddle@cchmc.org
Carmen Sanchez
U.S. Department of Education, Office of Special Education and Rehabilitation Programs
550 12th St. SW
Washington, DC 20202
(202) 245-6595; Carmen.Sanchez@ed.gov
LaShawn Smith
University of Southern Mississippi, Institute for Disability Studies
3825 Ridgewood Road, Room 721
Jackson, MS 39211
(601) 432-6975; ksmith@ihl.state.ms.us
Elizabeth Sweet
HHS, SAMHSA, Center for Mental Health
Services
5600 Fishers Lane, Room 14-N10C
Rockville, MD 20857
(240) 276-1925; Elizabeth.Sweet@samhsa.hhs.gov
| File Type | application/vnd.openxmlformats-officedocument.wordprocessingml.document |
| Author | Zerislassie, Tigisty (HRSA) |
| File Modified | 0000-00-00 |
| File Created | 2021-01-15 |