CATI Script ENGLISH

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
PROJECT – HRS R658

INTRO1
Hello, my name is _______, and I am calling from American Directions Research Group. I am calling
on behalf of the U.S. Department of Health and Human Services. We're conducting a national survey
about organ donation. Am I speaking to someone 18 or older? (Skip: If "Yes", continue; if "No", ask to
speak to someone who is 18 or older)
1.
2.
3.
4.
5.

Respondent available -(Continue)
No one 18 or older in household – (Thank and Terminate)
Respondent not available/Not a good time -(Set time to call back)
(Soft Refusal)
(Hard Refusal) -(Thank and Terminate)

(Skip this question if cell/landline data present in sample file)
S1B Have I reached you on a cellphone or landline phone?
1. Landline
2. Cell
3. (DK)
4. (Refused)
(If S1B = Landline)
S1 First, I would like to identify the adult living in your household, 18 or older, who had the most
recent birthday. Who would that be?
1.
2.
3.
4.
5.

Respondent -(Skip to S1B)
Someone else in household -(Ask to speak to that person, then reset to Introduction)
No adults 18 or over in household – (Thank, Terminate, and Tally)
Respondent not available – (Record First name and set time to call back)
(Refusal) – (Thank and Terminate)

(If S1B = Cell)
S1C For your safety, are you currently driving?
1. Yes [SET CALLBACK IF DRIVING, ELSE CONTINUE]
2. No
3. (DK)
4. (Refused)
INTRO 2
This is an important study of people's opinions about organ donation. Your assistance in this study is
voluntary, but your opinions are needed to provide an accurate understanding of the public's views. If

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
there is any question you do not wish to answer, just tell me. Your answers are confidential and will be
combined with those of others. You, as an individual, will never be identified. The questions will
require about 20 minutes of your time.
Q1

In the past year, have you heard, read, or seen any information at all about organ donation
or transplantation?
1.
2.
3.
4.

Yes
No
Don’t Know
Refused

[IF NECESSARY READ] By ORGAN DONATION, I mean the donation of organs,
such as hearts or kidneys from a person who has died, or the donation of organs, such as
kidneys or parts of a liver or lung, from a person who is alive. Transplantation is the
surgical transfer of an organ from one person to another. Organ donation does not include
donation of bone marrow or tissue, such as skin or corneas.
Q2

(If Q1 = Yes) In the past year, how have you seen or heard about organ donation or
transplantation?
[RESPONSE CODES]
1. Yes
2. No
3. DK
4. Refused
How about [READ AND ROTATE]:
A.
B.
C.
D.
E.
F.
G.

A discussion with a family member
A discussion with a friend
Information provided by a medical professional, clinic, or doctor's office
Information provided by a member of the clergy of your religious organization
Information provided by an attorney
Personal experience or involvement with organ, eye, and or tissue donation
A billboard or a poster in a public place

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
H.
I.
J.
K.
L.
M.
N.
O.
P.
Q.
R.
S.
T.
Q2A

News coverage (TV, radio, newspaper, or internet)
Your work or school
A Motor Vehicles Office (MVA, DMV, or SOS)
An advertisement on TV
An advertisement on the radio
A movie and/or a TV show
A community activity, such as a health fair
An organ or tissue donation organization
A senior center or other older adult setting
Social media such as Facebook, Instagram, YouTube, or Twitter
Search engines, such as Google, Yahoo, or Bing
Other websites
Some other source

(If Q2T = Yes)
What is that other source? [open-ended response RECORD VERBATIM]

Q2B

(If Q2Q = Yes)
Which social media websites? [open-ended response RECORD VERBATIM]

Q2C

(If Q2R = Yes)
Which search engine websites? [open-ended response RECORD VERBATIM]

Q2D

(If Q2S = Yes)
Which other websites? [open-ended response RECORD VERBATIM]

Q2E

(If Q2Q or Q2R or Q2S = Yes)
When you are online, do you typically use a computer, a hand-held mobile device, such as a
smart phone or tablet, or do you use both?
1. Computer
2. Mobile device
3. Both
4. DK
5. Refused

Q3

Which sources of information would be most likely to influence how you think or act about
organ donation and transplantation? [open-ended response RECORD VERBATIM]

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
Q4

In general, do you strongly support, support, oppose, or strongly oppose the donation of
organs for transplantation?
1. Strongly support
2. Support
3. Oppose
4. Strongly oppose
5. DK
6. Refused

Q13

Have you signed up to be an organ donor?
1. Yes
2. No
3. DK
4. Refused

Q13A

(If Q13 = Yes) (rotate Q13A A-C) How did you sign up?
1. Yes
2. No
3. DK
4. Refused
A Your State’s Department of Motor Vehicles, Motor Vehicle Department, or Secretary of
State Office
B. At a donor registration drive or event
C. Through a mobile phone app
D. Through a website
E. Some other way

Q13B

(If Q13AD = Yes)
What other way did you sign up to be an organ donor? [open-ended response RECORD
VERBATIM]

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
Q13C

(If Q13A = D (website))
Did you sign up using a hand-held mobile device such as a smart phone or tablet?
1. Yes
2. No
3. DK
4. Refused

Q5

(If Q13 NOT = Yes)
Would you want your organs to be donated after your death? Would you say definitely yes,
probably yes, probably no, or definitely no?
1. Definitely Yes
2. Probably Yes
3. Probably No
4. Definitely No
5. DK
6. Refused

Q14B

(If Q5 = definitely yes or probably yes)
Would you be willing to sign up to be an organ donor?
1. Yes
2. No
3. DK
4. Refused

Q14C

(If Q14B NOT = Yes)
Is there a particular reason why you do not want sign up to be an organ donor? [open-ended
response RECORD VERBATIM]

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
Q14C1

(If Q14C = “don’t know” or “no reason”)
Would you say it is for one of these reasons?
1. Yes
2. No
3. DK
4. Refused

A.
B.
C.
D.
E.
Q14D

Haven’t thought about it
I would need more information
Because of medical reasons
I feel I am too old to donate
I don’t believe I will receive the best medical treatment if I’m a donor

(If Q14B NOT = No)
Is there a particular reason why you have not signed up to be an organ donor? [open-ended
response RECORD VERBATIM]

Q14E

(If Q5 = definitely yes or probably yes)
Would you be willing to sign up to be an organ donor through a hand-held mobile device
such as a smart phone or tablet?
1. Yes
2. No
3. DK
4. Refused

Q6A

(If Q5 NOT = definitely yes or probably yes)
Is there a particular reason why you do not want your organs donated upon your death? If
Yes, what might that reason be?
1. [open-ended response RECORD VERBATIM]
2. DK
3. Some Other Reason

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
Q6A1

(If Q6A = “don’t know” or “no reason”)
Would you say it is for one of these reasons?
1. Yes
2. No
3. DK
4. Refused

A.
B.
C.
D.
E.
F.
G.
Q6B

It’s against my religion
For medical reasons
I don’t want my body cut up or disfigured
Donation costs might be passed to my family
They might take my organs before death
I don’t believe I will receive the best medical treatment if I’m a donor
I feel I am too old to donate

(If Q5 NOT = definitely yes or probably yes)
Have you discussed with a member of your family your wish not to donate your organs after
your death?
1. Yes
2. No
3. DK
4. Refused

Q6BB

(If Q5 NOT = definitely yes or probably yes)
Is there one thing that could change your mind to want to be a donor?
1. Yes [SPECIFY AND RECORD VERBATIM]
2. No
3. DK
4. Refused

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
Q6BC

(If Q13 = Yes)
If you had to identify the biggest reason or reasons why you want to be an organ donor,
what would those be? [Open-ended response RECORD VERBATIM]

Q6BD

(If Q6BC= “don’t know” or “no reason”)
Would you say it is for one of these reasons?
1. Yes
2. No
3. DK
4. Refused

A. To save a life
B. I won’t need them any longer
C. It’s the right thing to do

Q6C

(If Q13 = Yes)
Have you discussed your wish to be an organ donor with a member of your family?
1. Yes
2. No
3. DK
4. Refused

Q7

(If Q6C NOT Yes)
How willing are you to discuss your wishes about organ donation with your family? Would
you say very willing, somewhat willing, not very willing, or not at all willing?
1. Very willing
2. Somewhat willing
3. Not very willing
4. Not at all willing
5. DK
6. Refused

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
Q8

(If Q6C = not very willing or not at all willing or DK)
Is there a particular reason why you are unwilling to discuss donation with your family?
1. Yes
2. No
3. DK
4. Refused

Q8A

(If Q8 = Yes)
What is that reason?
1. [SPECIFY AND RECORD VERBATIM]
2. DK
3. No Reason

Q8B

(If Q8A = “don’t know” or “no reason”)
Would you say it is for one of these reasons? [MULTIPUNCH SELECT ALL THAT
APPLY]
A.
B.
C.
D.
E.
F.
G.
H.
I.

Q9

I don’t want to discuss death with my family
My family wouldn’t understand
My family believes the body should be buried whole
My family is too young to discuss this
I am not in good health
My donor registration is not my family’s business
Whether or not I become a donor is my family’s decision to make
Talking about death may increase the chance of dying
Someone in my family may need my organs.

(If Q6B NOT N/A or No Family Members or Q6C NOT N/A or No Family Members)
Has any member or your family told you about his or her wish to donate or not to donate his
or her organs after death?
1. Yes
2. No
3. DK
4. Refused

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
Q10

(If Q6B NOT N/A or No Family Members or Q6C NOT N/A or No Family Members)
If you didn’t know your family member’s wishes, how likely would you be to donate his or
her organs upon his or her death, if it were up to you? Would you be very likely, somewhat
likely, not very likely, or not at all likely?
1. Very likely
2. Somewhat likely
3. Not very likely
4. Not at all likely
5. DK
6. Refused

Q11

(If Q6B NOT N/A or No Family Members or Q6C NOT N/A or No Family Members)
If a family member had requested that his or her organs be donated upon death how likely
would you be to donate his or her organs, if it were up to you? Would you be very likely,
somewhat likely, not very likely, or not at all likely?
1. Very likely
2. Somewhat likely
3. Not very likely
4. Not at all likely
5. DK
6. Refused

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
Q12

Now, I am going to read you a number of statements. For each one, please tell me if you
strongly agree, somewhat agree, somewhat disagree, or strongly disagree.

1. Strongly Agree
2. Somewhat Agree
3. Somewhat Disagree
4. Strongly Disagree
5. DK
6. Refused

A. It is important for a person's body to have all of its parts when it is buried.
B. It is important for people to tell their families whether or not they would want their
organs to be donated upon death.
C. Most members of my family would support the idea of organ donation.
D. Receiving organ transplants improve people’s lives.
E. Organ donation allows something positive to come out of a person's death.
F. A deceased person's next of kin should be able to override the deceased person's wish to
donate his or her organs.
G. Organs should be distributed so that the expected life of the organ is similar to the
expected life of the recipient. For example, older people should generally get older
organs and younger people should get younger organs.
H. All people who need an organ transplant should be able to receive a transplant.

Q14F

Do you believe these statements about organ donation are true?
1. Yes
2. No
3. DK
4. Refused
A. Kidneys can be donated from a living donor.
B. Parts of livers can be donated from a living donor.
C. Parts of lungs can be donated from a living donor.

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
Q14E

Have you ever donated an organ or a part of an organ?
1. Yes
2. No
3. DK
4. Refused

Q15

Assuming you are medically able, how likely would you be to agree to donate an organ
while you are living to [INSERT ROTATED CHOICES]? Would you say very likely,
somewhat likely, not very likely, or not at all likely?
1. Very likely
2. Somewhat likely
3. Not very likely
4. Not at all likely
5. DK
6. Refused

A. A close friend
B. A family member
C. An acquaintance
D. Someone you don’t know
Q15A

(If Q15 = not very likely or not at all likely)
What are your reasons for not agreeing to donate an organ while you are living? [Openended response RECORD VERBATIM]

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
Q16

Now I am going to read you several statements. For each one, please tell me whether you
strongly agree, somewhat agree, somewhat disagree, or strongly disagree. [ROTATE
STATEMENTS]
1. Strongly Agree
2. Somewhat Agree
3. Somewhat Disagree
4. Strongly Disagree
5. DK
6. Refused

A. Minority patients are less likely to receive organ transplants.
B. You are worried that a loved one's body would be disfigured if his or her organs were
donated.
C. It is possible for a brain-dead person to recover from his or her injuries.
D. People who choose to donate a family member's organs end up paying extra medical
bills.
E. Organ donation helps families cope with their grief.
F. Every year, thousands of people die due to a lack of donated organs for transplantation.
G. If you indicate you intend to be a donor, doctors will be less likely to try to save your
life.
H. A person's wish to donate his or her organs should be honored under all circumstances,
even over the objections of surviving family members.
I. Transplants often go to undeserving people.
Q16AA J. You would agree to receive an organ transplant if it would save your life.
K. The U.S. transplant system uses a fair approach to distribute organs to patients.

[IF Q16A=1,2 ASK Q16AA, ALL OTHERS GOTO Q16N]
Why do you think minority patients are less likely to receive organ transplants? [open ended
response RECORD VERBATIM]
Q16N

Please choose the statement that comes closest to your view (Rotate)
1. If I were a donor, I would like my organs to go to the more medically urgent patients
regardless of where they live in the U.S., OR
2. If I were a donor, I would like my organs to go to a patient in my local area even if they
are not the more medically urgent patients waiting for an organ.
3. DK
4. Refused

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
Q17

Some countries assume that people will be organ donors upon their death, unless there are
strong objections from the family. This is sometimes called presumed consent. Would you
strongly support, support, oppose, or strongly oppose using this presumed consent approach
in the United States?
1. Strongly support
2. Support
3. Oppose
4. Strongly oppose
5. DK
6. Refused

Q17A

(If Q17 = oppose or strongly oppose)
Is there a particular reason why you oppose presumed consent? [Open-ended response
RECORD VERBATIM]

Q17C

If the United States changed to a presumed consent system, where people will be organ
donors unless they opted out, would you choose to opt out?
1. Yes
2. No
3. DK
4. Refused

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
Q18

It has been suggested that more organs would be donated if families who donate the organs
of a deceased loved one received assistance in paying funeral expenses, a cash award to the
donor's estate, or a cash award to a charity of the family's choice. Would payments like
these make you more likely or less likely to donate (read and rotate), or would it have no
effect.
1. More Likely
2. Less Likely
3. No Effect
4. DK
5. Refused

A. Your own organs
B. A family member’s organs at their time of death
Q19

(If Q18A or Q18B = more likely)
Is there a particular reason why a payment would make you more likely to donate your
organs or a family member's organs?
1. Yes
2. No
3. DK
4. Refused

Q19A

(If Q19= Yes)
What reason? [Open-ended response RECORD VERBATIM]

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
Q20

(If Q18A or Q18B = less likely)
Is there a particular reason why a payment would make you less likely to donate your
organs or a family member's organs?
1. Yes
2. No
3. DK
4. Refused

Q20A

(If Q20= Yes)
What reason? [Open-ended response RECORD VERBATIM]

Q22

Now I am going to read you several statements. For each one, please tell me whether you
strongly agree, somewhat agree, somewhat disagree, or strongly disagree.
1. Strongly Agree
2. Somewhat Agree
3. Somewhat Disagree
4. Strongly Disagree
5. DK
6. Refused

A. Given equal need, a poor person has as good a chance as a rich person of getting an
organ transplant.
B. Doctors do everything they can to save a person's life before organ donation is even
considered.
C. Organ transplantation is an experimental medical procedure.
D. Organ donation is against my religion.
E. It is impossible to have a regular funeral service following organ donation.
F. Many people on the national transplant waiting list die because the organ they need isn’t
donated in time.

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
Q15E

Recent medical breakthroughs have resulted in successful face and hand transplants for
people who have suffered the loss of limbs or facial disfigurement from traumatic injuries,
such as accidents and war. How willing would you be [INSERT ROTATED CHOICES]?
Would you say you are very willing, somewhat willing, not very willing, or not at all
willing?
1. Very Willing
2. Somewhat Willing
3. Not Very Willing
4. Not at all Willing
5. DK
6. Refused

A. Upon your death to donate your hands
B. Upon your death to donate your face

Q15E1

If your family member signed up to be an organ donor, upon their death will you also be
willing to [INSERT ROTATED CHOICES]? Would you be very willing, somewhat
willing, not very willing, or not at all willing?
1. Very Willing
2. Somewhat Willing
3. Not Very Willing
4. Not at all Willing
5. DK
6. Refused
A. Donate your family member’s hands
B. Donate your family member’s face

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
Q23A

Have you, or has anyone close to you, ever been an organ donor?
1. Yes
2. No
3. DK
4. Refused

Q23B

Have you, or has anyone close to you, ever received an organ transplant?
1. Yes
2. No
3. DK
4. Refused

Q23C

Are you, or is anyone close to you, currently waiting for an organ?
1. Yes
2. No
3. DK
4. Refused

Q26A

Do you believe there is an age when someone is too old to donate an organ upon their
death?
1. Yes
2. No
3. DK
4. Refused

Q26A2

(If Q26A = Yes)
What is that age? [RECORD NUMERIC]

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
Q26B

Do you believe there is an age when someone is too old to receive an organ?
1. Yes
2. No
3. DK
4. Refused

Q26B2

(If Q26B = Yes)
What is that age? [RECORD NUMERIC]

Q28

In general, how would you rate your overall health? Would you say excellent, very good,
good, fair, poor?
1. Excellent
2. Very Good
3. Good
4. Fair
5. Poor
6. DK
7. Refused

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
Q29

What best describes your religion, if any? Would you say Protestant, Evangelical, Roman
Catholic, Orthodox, Mormon, Jewish, Muslim, Buddhist, atheist, agnostic, or something
else?
1. Protestant
2. Evangelical
3. Roman Catholic
4. Orthodox
5. Mormon
6. Jewish
7. Muslim
8. Buddhist
9. atheist
10. agnostic
11. something else
12. DK
13. Refused

Q30

How important is religion to you?
1. Very Important
2. Somewhat Important
3. Not Very Important
4. Not at all important
5. DK
6. Refused

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
D1

What is your sex?
1. Male
2. Female
3. Other
4. DK
5. Refused

D2

What is your age? [RECORD NUMERIC]

D3

What is the highest level of education you have completed? [READ CHOICES]
1. less than high school graduate
2. high school graduate
3. some college
4. trade/technical/vocational training
5. college graduate
6. post-graduate work/degree
7. DK
8. Refused

D4A

What is your current marital status?
1. single/never been married
2. married
3. separated
4. divorced
5. widowed
6. domestic partnership/living with partner (not legally married)
7. DK
8. Refused

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
D7

Do you work in the healthcare profession?
1. Yes
2. No
3. DK
4. Refused

D8

What is your zip code?
1. [RECORD 5 DIGIT NUMERIC]
2. DK
3. Refused

D11

What best describes your race (can select more than one option)? Would you say [READ
CHOICES]
1. White
2. Black or African American
3. Asian
4. American Indian or Alaskan Native
5. Native Hawaiian or Other Pacific Islander
6. or something else
7. DK
8. Refused

D12

Would you describe yourself as Hispanic or Latino?
1. Yes
2. No
3. DK
4. Refused

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
D13

What best describes your current employment status? [READ CHOICES]
1. Employed full-time
2. Employed part-time
3. Taking care of home or family but not working for pay
4. Not employed but looking for work
5. Student
6. Retired
7. Unable to work
8. Other
9. DK
10. Refused

D14

Do you currently have any type of health insurance plan or health coverage?
1. Yes
2. No
3. DK
4. Refused

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
D15

(If D14 = Yes)
What best describes the source of your health plan. If you have more than one, please select
your primary plan. [READ CHOICES]
1. Private plan, such as through an employer
2. The federal insurance exchange at healthcare.gov, or a state insurance plan
3. Medicaid
4. Medicare
5. Veterans’ Affairs
6. TRICARE/Military Health System
7. Other government or state plan
8. Other
9. DK
10. Refused

D9

What is your total ANNUAL household income, before taxes? Please include income from
wages and salaries, remittances from family members living elsewhere, farming, and all
other sources. Please say “yes” when we reach your annual household income.
[READ CHOICES]
1. Less than $20,000,
2. $20,000 or more, but less than $30,000
3. $30,000 or more, but less than $40,000
4. $50,000 or more but less than $60,000
5. $60,000 or more, but less than $75,000
6. $75,000 or more but less than $100,000
7. $100,000 or more, but less than $150,000
8. $150,000 or more
9. DK
10. Refused

NATIONAL SURVEY OF ORGAN DONATION ATTITUDES AND PRACTICES
Computer-Assisted-Telephone-Interviewing (CATI) Script (English Version)
Those are all the questions. Thank you for your participation.