Form 1 GHR Survey Instrument

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OMB Control Number: 0925-0648
Expiration Date: May 31, 2021
Public reporting burden for this collection of information is estimated to
average 3 minutes per response, including the time for reviewing instructions,
searching existing data sources, gathering and maintaining the data needed,
and completing and reviewing the collection of information. An agency may
not conduct or sponsor, and a person is not required to respond to, a
collection of information unless it displays a currently valid OMB control
number. Send comments regarding this burden estimate or any other aspect
of this collection of information, including suggestions for reducing this
burden, to: NIH, Project Clearance Branch, 6705 Rockledge Drive, MSC
7974, Bethesda, MD 20892-7974, ATTN: PRA (0925-0648). Do not return
the completed form to this address.

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How would you describe yourself? (Please choose the best answer.)
Library or information professional
Educator or trainer
General public
Physician
Patient, family, or friend of patient
Genetic counselor
Student
Researcher
Other (please specify)

Why are you visiting Genetics Home Reference today? (Please choose the best
answer.)
To learn about a specific condition affecting me, a friend, or a family member
Just curious
To gather information about a patient under my care
To interpret genetic testing results
For an assignment for work or school
Other (please specify)

How do you plan to use this information?
For my own knowledge
To share with a family member, friend, patient, or student
To share with health professionals or researchers

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What is your highest level of education completed?
Less than high school
High school/GED
Some college
2 year degree
4 year degree
Master's degree (MPA, MBA, MPH, etc.)
Doctorate
Professional certificate or other degree

How often do you visit Genetics Home Reference?
First time
Daily
Once a week
Once a month
Every six months or less

GHR Perception Attributes

The publisher of Genetics Home Reference, the National Library of Medicine
(NLM), is the world's largest biomedical library and part of the U.S. National
Institutes of Health (NIH).

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On a scale from 1 (very unaware) to 5 (very aware), how aware are you that
Genetics Home Reference is a product of NLM?
Very unaware (1)
2
3
4
Very aware (5)

How important is it to you that Genetics Home Reference is from NLM?
Not at all important
Slightly important
Moderately important
Very important
Extremely important

On a scale from 1 (very unaware) to 5 (very aware), how aware are you that
Genetics Home Reference is a product of NIH?
Very unaware (1)
2
3
4
Very aware (5)

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How important is it to you that Genetics Home Reference is from NIH?
Not at all important
Slightly important
Moderately important
Very important
Extremely important

Why have you chosen Genetics Home Reference today?
It was recommended to me by someone I know.
When I saw the page in my search results, it looked like it would answer my
question.
I followed a link from another web site.
The name Genetics Home Reference suggested it would contain the
information I need.
It's my preferred source for health information.
Other (specify).

Which types of information provided by Genetics Home Reference do you value?
(Please select all that apply.)
How a condition is inherited
Information about a specific genetic variation or mutation
The frequency of a particular condition
Links to information about how to diagnose or treat a particular disease
Signs and symptoms of a particular disease or health condition
Information about a particular gene's function
The genetic cause of a particular condition
Links to advocacy, support, or educational resources
General information about DNA and genetics
Other (please specify)

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How understandable is the information on this website?
Not at all understandable
Not very understandable
Somewhat understandable
Understandable
Very understandable

How often do you use the following NLM resources for genetics information?
(Please choose the best answer for each resource. If you do not use a given
resource, choose "Never".)
Never

Occasionally

Monthly

Weekly

Daily

MedlinePlus
(consumer health
information)
Genetic Testing
Registry
(information about
genetic tests)
MedGen
(information about
medical genetics)
NCBI Gene
(information about
genes in a wide
range of species)
NCBI Bookshelf
(books and
documents about
life sciences and
healthcare)

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