Form CMS-10632 Appendix A - Organization Survey: Informed Consent and S

Evaluating Coverage to Care (C2C) (CMS-10632)

CMS-10632.Appendix A - Organizational Survey

Organizational Survey

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EVALUATION OF COVERAGE TO CARE


Appendix A


Organization Survey: Informed Consent and Survey


(CMS-10632; 0938-New)










NOTE: This survey is annotated to show (1) headers for each module; (2) the objective for that section; and (3) question numbers and instructions to the survey programmer.



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OMB No.: 0938-XXXX

Expiration Date: MM/DD/YYYY


INFORMED CONSENT FOR ORGANIZATIONS

Thank you for agreeing to participate in this survey. The RAND Corporation is conducting a study for the Centers for Medicare & Medicaid Services on From Coverage to Care, or C2C. As you may know, From Coverage to Care aims to help people with new health care coverage understand their benefits and connect to primary care. It is also designed to help community organizations and providers support people as they connect to care.


Purpose of the survey


You have been selected to take this survey because our information suggests your organization has previously ordered C2C materials from CMS. [IF RELEVANT: Your name was provided as the person most appropriate to complete this survey on behalf of your organization.] The goal of this survey is to provide feedback on the C2C materials and messages from the perspective of the organizations that have used them to help CMS understand how the materials are being used and how they can be improved.


The goals of this survey are to learn more about:

  1. How your organization has used or uses C2C materials.

  2. Which materials or messages are most helpful and suggestions you have for improvement.

  3. How C2C materials and messages reach people, and how individuals seem to respond to them.


Procedures


The survey should last approximately 15-20 minutes. We will not collect personally identifiable information, and your answers cannot be linked back to you. This survey contains questions related to your experiences with C2C. Question types include multiple choice (single and multi-answer options) and fill in the blank questions. You may skip any questions you do not feel comfortable answering.


This survey does not require the assistance of outside resources. Completing the questions to the best of your ability, or based on minimal information searching, is acceptable for this survey.


Potential risks and discomforts


There are no identifiable risks associated with this survey. All information will be kept confidential. Your name will not be collected or linked to the data you provide at any time. The researchers will provide an electronic copy of this written consent directly to all research participants prior to conducting the survey.


Potential benefits


This research is not designed to help you directly, but the results may help improve C2C materials, messages, and outreach practices to encourage improved community health. We hope that, in the future, other people and organizations might benefit from this study.



Confidentiality


We will not collect any identifiable information, thus confidentiality will be maintained, except as required by law. Should you choose not to participate in the study, information on your refusal to participate will not be released to CMS or your organization. The data collected through this survey will be summarized in aggregate form, grouped with data others provide for reporting and presentation.


Survey responses will be securely stored on password-protected computers. Any hard copies of the data will remain in the possession of the principal investigator in a locked office. All data will be destroyed (i.e., shredded or erased) after a minimum of five years after data collection.


Compensation


You will receive a $25 gift card electronically upon completion of the survey for your time. At the end of the survey, you will be provided with a link to access the gift card.


Right to withdraw and questions


Your participation in this research is completely voluntary. You may choose not to take part at all. If you decide to participate in this research, you may stop participating at any time.


If you have questions or concerns about this study please contact the Principal Investigator of the study, Tom Concannon at 617-338-2059 x8615 or by emailing tconcann@rand.org


Participant Rights


If you have questions about your rights as a research participant or wish to report a research-related concern, you can contact RAND Human Subjects Protection Committee (HSPC) toll-free at (866) 697-5620 or by emailing hspcinfo@rand.org. If possible, when you contact the Committee, please reference Study #2015-1002.


This research has been reviewed according to the RAND Corporation HSPC procedures for research involving human subjects.



Module 1: Organizational Module

Research questions addressed:

  • What kinds of organizations were reached by C2C?


        1. What best describes your organization? (Please choose most appropriate)

          1. Health care provider —primary or preventive care

          2. Health care provider — urgent care, emergency care or hospital

          3. Health care provider — mental or behavioral health care

          4. Health care insurer

          5. Social service agency

          6. Public health organization (local, state, or federal)

          7. Consumer/patient advocacy organization

          8. Other community organization such as school or faith-based organization

          9. Navigator/assister/certified application counseling organization

          10. Other (please specify) ____________________


        1. What best describes your organization’s funding or tax status? (Please choose most appropriate)

          1. Private, not for profit (501c status) organization

          2. Private, for profit organization/company

          3. State government organization

          4. County governmental organization

          5. Local/city governmental organization

          6. Other (please specify: ___________________)


        1. How many employees does your organization have in total? (Please choose most appropriate)

          1. Small (less than 25 employees)

          2. Medium (26-99 employees)

          3. Large (100-249 employees)

          4. Very large (250+ employees)

Module 2: Organizational History with C2C and CMS

Research questions addressed:

  • What are effective strategies for dissemination from CMS to organizations?


        1. How did your organization first learn about C2C? (Please choose one)

          1. CMS website

          2. CMS correspondence such as newsletter or distribution list

          3. Webinar where C2C was discussed

          4. CMS regional office/distribution

          5. From another organization in my community

          6. From a professional organization/society

          7. From a person in your community

          8. From the media

Oonline search

          1. Don’t know

          2. Other (please specify: _________________)


        1. When did your organization first learn about C2C? (Choose most appropriate estimate)

a. In the last six months

b. Between six and twelve months ago

c. More than a year ago

e. Don’t know

Module 3: C2C Ordering and Distribution Practices

Research questions addressed:

  • What did organizations do with the C2C materials and messages?

  • Which C2C materials and messages did they use?


Now we are interested to learn a little more about your organization’s experience with C2C.


        1. Why did your organization decide to use C2C materials? (Please choose all that apply)

    1. Addressed a knowledge gap in my community

    2. Addressed a knowledge gap in our organization/helped us to know how to talk about these issues

    3. Easy to use formats/easy to understand

    4. Free resources

    5. Other (Please specify: ____________________________)


  1. Which C2C materials did your organization order? Please select all that apply (Include categorized list of materials in drop box)

    1. A Roadmap to Better Care and a Healthier You Booklet

    2. Roadmap Poster

    3. 5 Ways to Make the Most of Your Health Coverage

    4. Step 1: Put Your Health First

    5. Step 2: Understand Your Health Coverage

    6. Step 3: Know Where to Go

    7. Step 4: Pick a Provider

    8. Step 5: Make an Appointment

    9. Step 6: Be Prepared for Your Visit

    10. Step 7: Decide if the Provider is Right for You

    11. Step 8: Next Steps After Your Appointment

    12. Sample Insurance Card

    13. Differences Between Your Provider’s Office and the Emergency Department

    14. Sample Explanation of Benefits

    15. Preventive Service Flyers

    16. Put Your Health First Infographics

    17. Partnership Toolkit

    18. Enrollment Toolkit

    19. Discussion Guide for Community Partners


  1. How did your organization determine what types of C2C materials to order? (Please choose all that apply)

          1. We selected materials that address the questions our community members have

          2. We selected materials that come in a language (other than English)

          3. We selected materials that can be easily handed out to community members

          4. We selected materials that address the needs of our staff

          5. Other (please specify: ________________________)


  1. For how many sites or locations does your organization place orders of C2C materials? (Please choose most appropriate)

  1. 1 site

  2. 2-5 sites

  3. More than 5 sites


  1. Was your organization satisfied with the time it took to receive C2C materials?

    1. Yes

    2. No

    3. Don’t know


  1. Does your organization plan to order more C2C materials in the future?

  1. Yes (go to next question)

  2. No (skip to question 13)

  3. I do not know if my organization plans to order more C2C materials (go to next question)


  1. How does your organization figure out when to order more C2C materials? (Please choose most appropriate, then skip to question 14)

  1. We order them when our existing supply is low

  2. We order them before community events or open enrollment season

  3. We have regularly scheduled orders

  4. Our organization’s leadership tells us when to order more

  5. Unknown – we have not ordered more materials yet

  6. Other (please specify: __________________________)


  1. Why did your organization stop ordering C2C materials? (Please choose all that apply)

  1. Our organization has enough C2C materials to last us for a long time

  2. The materials were not helpful to my community

  3. We use other materials to address these topics (If checked, what is the name of those materials? _______)

  4. We did not have the resources (such as staff, storage space, etc.) to use C2C materials

  5. The materials were not available in a language we use (If checked, what language is needed? ____________________)

  6. We no longer provide services relevant to C2C (for example, we do not provide patient navigation services anymore)

  7. Other (please specify: __________________________)


  1. (If any of options b-k selected in question 13 above:) In the space below, briefly describe the most important factor causing your organization to stop using C2C materials? (1-2 sentences, Fill in blank)


Thank you. We would now like to understand just a bit more about how your organization may communicate or disseminate C2C information in your community.


Research questions answered:

  • How did organizations share the information with other organizations and what are best practices?

  • How did organizations use the materials with community members and what are best practices?


  1. How does your organization share C2C information and materials with patients and other members of your community? (Please choose all that apply)

  1. Hand out materials and talk about them during community health fairs

  2. Hand out materials and talk about them during health insurance enrollment sessions

  3. Use materials in courses/training we offer

  4. Place materials on table or wall displays in our organization or other public spaces for community members to pick up

  5. Distribute materials to other partner organizations who pass them out

  6. Mail materials to community members

  7. Hand out or mail materials in response to community member requests

  8. Other (please specify: _________________________)


  1. Of the ways selected in the last question, in your experience, what forms of sharing C2C materials were most helpful to community members? (Please choose top 3)

  1. Hand out materials and talk about them during community events/health fairs

  2. Hand out materials and talk about them during enrollment sessions

  3. Place materials on table or wall displays in our organization or other public spaces for community members to pick up

  4. Distribute materials to other organizations who pass them out

  5. Mail materials to community members

  6. Hand out or mail materials in response to community member requests

  7. Other (please specify: _________________________)


  1. How has your organization shared C2C materials and messages with other organizations in your community? (Please choose all that apply)

  1. Told colleagues or other community organizations about C2C

  2. Mailed C2C materials to other organizations

  3. Distributed C2C materials to other organizations at community events (for example, at a health fair)

  4. Presented C2C information to organizations (for example, at a local meeting)

  5. Other (Please specify: _______________)


  1. In your experience, what forms of sharing C2C materials with other organizations were most helpful to them? (Please choose one)

    1. Told colleagues or other community organizations about C2C

    2. Mailed C2C materials to other organizations

    3. Distributed C2C materials to other organizations at community events (for example, at a health fair)

    4. Presented C2C information to organizations (for example, at a local meeting)

    5. Other (Please specify:_____)


  1. Has working with C2C made your organization form or strengthen any relationships with other organizations in the community?

    1. Yes, we formed relationships with organizations we haven’t worked with before

    2. Yes, we strengthened existing relationships

    3. No (SKIP to question 21)



  1. Do you plan to continue these relationships in the future?

        1. Yes

        2. No

        3. Not sure


  1. Was use of C2C a burden for your organization?

  1. Yes, a large burden (please describe: ____________________)

  2. Yes, a small burden

  3. Not a burden


  1. Did your organization train any of its staff to give out the C2C materials or talk about its topics?

  1. Yes, for all staff

  2. Yes, for some staff

  3. No (Skip to question 23)


  1. Did this training use CMS partner and presentation tools, such as the C2C Partner Toolkit or the C2C Community Presentation slide deck?

  1. Yes

  2. No

  3. Don’t know


  1. Has your organization ever tried to order C2C materials that were unavailable or out of stock?

    1. Yes

    2. No (skip to Q26)

    3. Don’t know


  1. Did you use the “notify me” button on the CMS ordering website to learn when the materials were available?

    1. Yes

    2. No (skip to Q26)

    3. Don’t know


  1. Did you receive an email from CMS telling you when the materials were in stock?

    1. Yes

    2. No

    3. Don’t know


  1. What would be most useful to your organization to help you use and distribute C2C materials and messages? (1-2 sentences, open response)

Module 4: Perceptions of Community Needs and Value of C2C

We are interested in getting some feedback on the most pressing needs in your community at this point in time.


Research questions answered:

  • What factors influenced which materials and messages organizations decided to use and how to use them?

  1. When it comes to health care in your community, what would you say are the biggest barriers individuals face? (Please rank up to 3)

          1. Individuals do not know how to access health care services

          2. Individuals do not know how to find a regular provider or source of care

          3. Individuals do not understand the importance of health care

          4. Individuals do not understand the importance of health insurance

          5. Individuals do not understand how to use their insurance benefits

          6. Individuals do not understand when it is appropriate to use emergency or urgent care services

          7. Other (please specify:)______________


For the next four questions, consider if the following issues would be considered a priority for your organization and if any messaging was used on the topic.



A. Is this topic an area of focus or a top priority of your organization?

B. Did your organization use any messaging or materials in its work on this topic? (Please choose all that apply)

28. Access to health services

(Yes/No drop down menu – SKIP part B if NO)

  1. Use C2C materials on this topic

  2. Use other materials on this topic (please specify: ___________________)

  3. Created our own materials/messages on this topic


29. Find a regular provider or source of care

(Yes/No drop down menu – SKIP part B if NO)

  1. Use C2C materials on this topic

  2. Use other materials on this topic (please specify: ___________________)

  3. Created our own materials/messages on this topic


30.Understand insurance benefits and how to use insurance

(Yes/No drop down menu – SKIP part B if NO)

  1. Use C2C materials on this topic

  2. Use other materials on this topic (please specify: ___________________)

  3. Created our own materials/messages on this topic


31. Access appropriate care/services

(Yes/No drop down menu – SKIP part B if NO)

  1. Use C2C materials on this topic

  2. Use other materials on this topic (please specify: ___________________)

  3. Created our own materials/messages on this topic



Module 5: Perceptions of Community Engagement with C2C

Research questions answered:

  • Did C2C contribute to a change in community members’ knowledge and understanding of health insurance and how it works?

  • Did C2C contribute to a change in community members’ knowledge and understanding of how to access care as a result of C2C materials or messages?


Now we want to ask you about whether you think the community better understands health insurance and how to access care


In the next question, please think about your community members’ reactions to C2C. Then please rate how much you agree or disagree with each statement.

1 Strongly disagree

2 Disagree

3 Neutral

4 Agree

5 Strongly agree

99 Don’t know/I don’t work with the community directly








32. After using C2C materials …


  1. Members of my community understand why prevention and primary care is important for their health

  2. Members of my community gain a better understanding of health insurance and how to use it

  3. Members of my community can choose coverage that best meets their needs and expectations

  4. Members of my community reduce the inappropriate use of emergency or urgent care

  5. Members of my community engage in more regular and or/preventive care

  6. Members of my community are more able to find a provider and make an appointment

  7. The topics covered in C2C materials are helpful to members of my community


In the next question, please think about organizations you shared C2C materials with in your community. Then please rate how much you agree or disagree with each statement.


1 Strongly disagree

2 Disagree

3 Neutral

4 Agree

5 Strongly agree

99 Don’t know/I didn’t share materials with other organizations









33. After seeing or using C2C materials…

  1. The topics covered in C2C materials are helpful to other organizations in my community

  2. Organizations in my community felt more prepared to talk to people about why prevention and primary care is important for their health

  3. Organizations in my community felt more prepared to talk to people about health insurance and how to use it

  4. Organizations in my community felt more prepared to help people choose coverage that best meets their needs and expectations

  5. Organizations in my community felt more prepared to help reduce the inappropriate use of emergency or urgent care

  6. Organizations in my community felt more prepared to encourage the use of more regular and or/preventive care

  7. Organizations in my community felt more prepared to help people find a provider and make an appointment


Now we are interested in your organization’s feedback about C2C materials and messages. Please tell us about your organization’s experience with the C2C materials with which it is familiar.


Research questions answered:

  • Which C2C materials did they use?

  • Which materials and messages did organizations find most helpful, and why?

  • What factors influenced what materials and messages organizations decided to use and how to use them?



  1. For each of the materials you ordered, please rate how helpful the material was to your organization? [Populated with list selected from Q7]

1 Very helpful

2 Helpful

3 Neither helpful nor unhelpful

4 Unhelpful

5 Very unhelpful



  1. [For responses of very helpful or helpful, ask] Why was that material helpful to your organization? (please choose all that apply)

          1. It addressed one of the biggest health care-related problems or needs in my community

          2. It was the easiest set of materials for our organization to communicate with community members

          3. It was the easiest set of materials for community members to understand

          4. Other (please specify: _____________________)

  1. [For responses of very unhelpful or unhelpful, ask] Why was that material unhelpful to your organization? (please choose all that apply)

  1. It did not address relevant needs in my community

  2. It was the most difficult set of materials for our organization to communicate with community members

  3. It was the most difficult set of materials for community members to understand

  4. Other (please specify: _____________________)


  1. Has your organization used any of the C2C online resources? (check all that apply)

  1. Someone in our organization has visited the C2C website

  2. Someone in our organization has downloaded C2C materials

  3. Someone in our organization has watched the C2C videos available on the website

  4. Our organization uses the C2C website or other online resources to discuss C2C topics with community members/patients

  5. Other (please specify): _________________________


  1. What additional topics or issues do you think should be added to C2C? (1-2 sentences, open response)


  1. What additional C2C materials or products would be helpful for community members (for example, materials for a special population or health concern)?

Module 6: Respondent Demographics

Please answer some brief questions about yourself.


  1. How long have you worked at the organization? (________) Years


  1. Thinking about your organization’s use of C2C, what were your roles? (Please choose all that apply)

          1. I placed the C2C product orders for my organization

          2. I trained staff in my organization to communicate C2C topics and materials with community members

          3. I provided management support for the use of C2C in my organization

          4. I used C2C materials with community members

          5. Other (please specify:) ____________________


  1. What is your job title? (open response) : ____________


  1. Is there anything else you would like to tell us about your experience with C2C? (open response)


THANK YOU FOR COMPLETING THIS SURVEY.


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