Appendix C_SCDTDP Oversight Steering Committee Members

Appendix C: SDCTDP Oversight Steering Committee Members

SDCTDP Oversight Steering Committee Members
Committee Member	Organization	Email
Jim Eckman	OSC Chair Professor Emeritus, Hematology and Oncology, Emory University School of Medicine	jeckman@emory.edu
Keith Marsolo	Associate Professor in the Division of Biomedical Informatics, Cincinnati Children’s Hospital Medical Center	keith.marsolo@cchmc.org
Senator Gladys Robinson	Deputy Minority Leader of the North Carolina Senate	Gladys.Robinson@ncleg.net
Carlton Haywood	Core faculty member at the Johns Hopkins Berman Institute of Bioethics, associate faculty at the Welch Center for Prevention, Epidemiology, and Clinical Research, and an assistant professor in the Division of Hematology at the Johns Hopkins School of Medicine	chaywoodjr@jhu.edu
Lanetta Jordan	Associate Professor of the Department of Epidemiology and Public Health Sciences at the University of Miami, Miller School of Medicine Senior Medical Advisor, Centers for Disease Control and Prevention	ljordan@fscdr.org
Mary Brown	President & CEO of the Sickle Cell Disease Foundation of California	maryb@scdfc.org
Talana Hughes	Executive Director, Sickle Cell Disease Association of Illinois	talanahughes@scdai.org
Trish Kavanagh	Assistant Professor of Pediatrics, Boston University, Boston Medical Center	Patricia.Kavanagh@bmc.org
Kim Smith-Whitley	Medical Director of the Sickle Cell Clinical Program, the Clinical Director of the Division of Hematology, an Associate Professor of Pediatrics at Children’s Hospital of Philadelphia	whitleyk@email.chop.edu
Mary Hulihan, MPH	Health Scientist at Centers for Disease Control and Prevention	ibx5@cdc.gov
Althea Grant, PhD, MPH	Chief, Epidemiology and Surveillance Branch, Division of Blood Disorders (DBD), NCBDDD, ONDIEH	ang4@CDC.GOV
Ellen Werner	Program Director at National Heart, Lung, and Blood Institute/NIH	wernere@nhlbi.nih.gov
Allison King	Washington University Saint Louis, Heartland Team lead	King_A@kids.wustl.edu
Diane Nugent	Pacific Team Co-Lead	dianenugent7@gmail.com
Marsha Treadwell	Pacific Team Co-Lead	mtreadwell@mail.cho.org
Rosalyn Stewart	Northeast Team Co-Lead	rstewart@jhmi.edu
John Strouse	Northeast Team Co-Lead	jstrous1@jhmi.edu
Lisa Shook	Midwest Team Lead	Lisa.Shook@cchmc.org
Jean Raphael	Attending Physician - Texas Children's Hospital Assistant Professor of Pediatrics, Department of Pediatrics, Section of Academic General Pediatrics, Baylor College of Medicine	raphael@bcm.edu
William G Adams	SCDTDP Informatics Director	Bill.Adams@bmc.org
Suzette Oyeku	SCDTDP Medical Director	soyeku@nichq.org
Donnell Ivy	HRSA Project Officer	eivy@hrsa.gov
Andrea Williams	HRSA Public Health Analyst	Awilliams2@hrsa.gov
Joan Scott	Genetic Service Branch Chief, Division of Services for Children with Special Health Needs, Health Resources and Services Administration	JScott2@hrsa.gov