Appendix B_SCDTDP Data Summit Participants

Appendix B: SCDTDP Data Summit Participants

SDCTDP Data Summit Participants
Organization	Contact Person	Role	E-mail
Boston Medical Center	William Adams, MD	Pediatrician, informatics researcher	Bill.Adams@bmc.org
Northeast Coordinating Center	Michele Ako	Research intern, pediatric hematology
Northeast Coordinating Center	Nina Anderson	Primary care provider	nina@tovacommunityhealth.org
SCDAA	Mary Brown	President & CEO of the Sickle Cell Disease Foundation of California	maryb@scdfc.org
NICHQ	Emily Clermont	Senior Project Manager
Northeast Coordinating Center	Alice Cohen	Hematologist	acohen@barnabashealth.org
Heartland Sickle Cell Disease Network	Ben Cooper	Data Manager	ben.cooper@wustl.edu
AHRQ	Denise Dougherty	Federal Partner	Denise.Dougherty@ahrq.hhs.gov
Emory University School of Medicine	Jim Eckman	Hematologist	jeckman@emory.edu
NICHQ	Patricia Finnerty	Improvement Advisor	pfinnerty@nichq.org
FDA	Jonathan Goldsmith	Federal Partner	Jonathan.Goldsmith@fda.hhs.gov
CDC	Althea Grant	Epidemiologist	ang4@CDC.GOV
The Johns Hopkins School of Medicine	Carlton Haywood	Epidemiologist, clinical researcher, patient with SCD	chaywoodjr@jhu.edu
NICHQ	Charlie Homer	Pediatrician, former CEO of NICHQ
CDC	Mary Hulihan	Health Sciences Researcher	ibx5@cdc.gov
Pacific Sickle Cell Regional Collaborative	Alan Ikeda	Pediatric Hematologist	aikeda@cure4thekids.org
HRSA	Donnell Ivy	Project Officer	eivy@hrsa.gov
Boston Medical Center	Trish Kavanagh	Pediatrician	Patricia.Kavanagh@bmc.org
Heartland Sickle Cell Disease Network	Allison King	Pediatric Hematologist	King_A@kids.wustl.edu
NHLBI	Norma Lerner	Federal Partner	norma.lerner@nih.gov
HRSA	Michael Lu	Associate Administrator, MCHB, HRSA	Michael.Lu@hrsa.hhs.gov
Sickle Cell Treatment and Outcomes Research in the Midwest (STORM)	Tammy Nordheim	Project Manager	Tamara.Nordheim@cchmc.org
Pacific Sickle Cell Regional Collaborative	Diane Nugent	Pediatric Hematologist	dianenugent7@gmail.com
NICHQ/ Children’s Hospital at Montefiore	Suzette Oyeku	Pediatrician, NCC Medical Director	soyeku@nichq.org
Pacific Sickle Cell Regional Collaborative	Susan Paulukonis	Epidemiologist	Susan.paulukonis@cdph.ca.gov
HRSA	Madelyn Reyes	Federal Partner	mreyes1@hrsa.gov
NIH	Yaffa Rubinstein	Federal Partner	Yaffa.Rubinstein@nih.gov
Sickle Cell Treatment and Outcomes Research in the Midwest (STORM)	Kay Saving	Pediatric Hematologist	kls@uicomp.uic.edu
HRSA	Joan Scott	Genetic Service Branch Chief, Division of Services for Children with Special Health Needs, Health Resources and Services Administration	JScott2@hrsa.gov
NICHQ	Avery Seefeld	Project Manager
Sickle Cell Treatment and Outcomes Research in the Midwest (STORM)	Lisa Shook	Health services researcher	Lisa.Shook@cchmc.org
The Children’s Hospital of Philadelphia	Kim Smith-Whitley	Pediatric hematologist	whitleyk@email.chop.edu
Northeast Coordinating Center	Rosalyn Stewart	Pediatrician	rstewart@jhmi.edu
HRSA	Bonnie Strickland	retired	retired
Northeast Coordinating Center	John Strouse	Pediatric hematologist	jstrous1@jhmi.edu
HRSA	Christina Turgel	Federal Partner	CTurgel@hrsa.gov
NICHQ	Kate Vaughan	Associate Director
FDA	Nicole Verdun	Federal Partner	nicole.verdun@fda.hhs.gov
NHLBI	Ellen Werner	Program Director at National Heart, Lung, and Blood Institute/NIH	wernere@nhlbi.nih.gov
Northeast Coordinating Center	Lauren Whiteman	Program Coordinator; Analyst	Lwhitem1@jhmi.edu