Revised Pregnancy Registry Information - 31MAR2016

Att. N -- Pregnancy Registry Information Sheet Revised 31MAR2016.pdf

CDC Emergency Operations Center Zika Related Clinical Inquiries and Surveillance

Revised Pregnancy Registry Information - 31MAR2016

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CDC’s Response to Zika

US Zika Pregnancy Registry
What Pregnant Women Need to Know
What is the purpose of the registry?
CDC developed the US Zika Pregnancy Registry to:
ŠŠ Learn more about the effects of Zika virus infection (Zika) during pregnancy
ŠŠ Learn more about the growth and development of babies whose mothers
had Zika while pregnant.
CDC will collect health information about Zika among pregnant women and
babies across the United States for the registry. CDC and health departments
will use the information from this registry to help pregnant women and families
affected by Zika. The knowledge gained from this registry will help doctors
and other healthcare providers care for pregnant women and their babies.

Who is being included in the registry?
Women living in the United States who have been infected with Zika during pregnancy and their babies
can be included in the registry.

What will be done with the information collected?
The identity of people in the registry will be kept private and secured. The information your doctor or other
healthcare provider shares will be added to the registry with information about other pregnant patients
with Zika, and the babies born to these mothers, to help CDC and state health departments develop a
clearer picture of how Zika affects pregnant women and their babies.

What do I have to do to be in the registry?
You will not need to do extra paperwork, go to extra appointments, or have extra tests to be part
of the registry. CDC and your health department will work with your doctor and other healthcare
providers to collect all of the information needed. For this registry, CDC and your health
department will:
ŠŠ Collect information about your pregnancy,
ŠŠ Collect information about you and your baby around the time the baby is born, and
ŠŠ Contact the baby’s doctor or other healthcare provider to collect information about the baby’s
growth and development up to his or her first birthday.
If you change doctors or healthcare providers, please request they contact registry staff through
the email address below.

How much does this cost?
Being in the registry will not cost you any money.

What if I have questions about being in the registry?
For more information, call 404-788-7100, visit CDC’s registry webpage or send questions to
ZIKApregnancy@cdc.gov.
*Puerto Rico is establishing a separate Zika Active Pregnancy Surveillance System (ZAPSS)

CS264086-B

March 18, 2016

www.cdc.gov/zika


File Typeapplication/pdf
File TitleUS Zika Pregnancy Registry - What Pregnant Women Need to Know
AuthorDepartment of Health and Human Services
File Modified2016-03-18
File Created2016-03-18

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