OMB
No. 2900-XXXX
Estimated
Burden: 1473 hours
Expiration Date: 03/31/2018
The Paperwork Reduction Act of 1995: This information is collected in accordance with section 3507 of the Paperwork Reduction Act of 1995. Accordingly, we may not conduct or sponsor and you are not required to respond to, a collection of information unless it displays a valid OMB number. We anticipate that the time expended by all individuals who complete this survey will average 2-45 minutes. This includes the time it will take to follow instructions, gather the necessary facts and respond to questions asked. Customer satisfaction is used to gauge customer perceptions of VA services as well as customer expectations and desires. The results of this telephone/mail survey will lead to improvements in the quality of service delivery by helping to by evaluating the effects of the VA PACT initiative and by testing new, innovative strategies for patient care that can be spread if proven effective. Participation in this survey is voluntary and failure to respond will have no impact on benefits to which you may be entitled.
BASELINE SURVEY
CV1. Date enrolled: / /
CV2. Data entered by: (initials)
CV3. Data checked by: (initials)
CV4.
Poorly Controlled Patient 1Peer Mentor 2
CV5. Arm
Control 1
Peer Mentoring 2
FFM 3
Baseline measurements
BM1. Initial HbA1c: _________________________________________
BM2. Blood Pressure 1: _________________________________________
BM3. Blood Pressure 2: _________________________________________
BM4. Blood Pressure Average: _________________________________________
BM5. Direct LDL: _________________________________________
BM6. Height: _________________________________________
BM7. Weight: _________________________________________
BM8. BMI: ______________________________________________
BM9. Primary Care Physician: ________________________________________
DIABETES MEDICATIONS (DM HEALTH HISTORY)
Let’s start with a few questions about your diabetes.
A1. What year were you first told you had diabetes? / /
A2. How old were you when you learned you had diabetes?
A3. What medications do you currently use to treat your diabetes?
|
Yes |
No |
A3A. Oral medications/pills |
1 |
0 |
A3B. Insulin |
1 |
0 |
A4. Which of the following medications do you currently take?
Medicine |
Yes |
No |
A4A. Acarbose |
1 |
0 |
A4B. Chlorpropamide |
1 |
0 |
A4C. Glimepiride |
1 |
0 |
A4D. Glipizide |
1 |
0 |
A4E. Glyburide |
1 |
0 |
A4F. Insulin Aspart |
1 |
0 |
A4G. Insulin Detemir (Levemir) |
1 |
0 |
A4H. Insulin Glargine |
1 |
0 |
A4I. Insulin Human 50/50 |
1 |
0 |
A4J. Insulin Human 70/30 |
1 |
0 |
A4K. Insulin Lente Pork |
1 |
0 |
A4L.Insulin Lispro 75/25 |
1 |
0 |
A4M. Insulin NPH Human, Novolin N |
1 |
0 |
A4N. Insulin NPH Pork |
1 |
0 |
A4O. Insulin Regular Human, Novolin R |
1 |
0 |
A4P. Metformin |
1 |
0 |
A4Q. Nateglinide |
1 |
0 |
A4R. Pioglitazone |
1 |
0 |
A4S. Repaglinide |
1 |
0 |
A4T. Rosiglitazone |
1 |
0 |
A4U. Sitagliptin |
1 |
0 |
A4V.Tolazamide |
1 |
0 |
A4W. Tolbutamide |
1 |
0 |
A4X. Troglitazone |
1 |
0 |
If you answered yes to A3B, ask A5-A7:
|
Once a Day in the Morning |
Once a Day in the Evening |
Twice a Day |
Three Times a Day |
Four or More Times a Day |
I use an Infusion Pump |
A5. How many times during the day do you usually take your insulin? |
1 |
2 |
3 |
4 |
5 |
6 |
A6. How old were you when you started taking insulin? years
A7. Have you taken insulin for as long as you have had diabetes?
Yes |
1 |
No |
0 |
A8. How difficult is it for you to pay for you diabetes medication?
Not at All Difficult |
Some What Difficult |
Moderately Difficult |
Very Difficult |
Extremely Difficult |
1 |
2 |
3 |
4 |
5 |
(HYPOGLYCEMIC SYMPTOMS)
DM Symptoms |
|
||||||
|
0 Times |
1 Time |
2 Times |
3 Times |
4-6 Times |
7-12 Times |
Don’t Know |
A9. How many times in the LAST 3 MONTHS have you had a low blood sugar (glucose) reaction with symptoms such as sweating, weakness, anxiety, trembling, hunger or headaches? |
1 |
2 |
3 |
4 |
5 |
6 |
77 |
A10. How many times in the LAST YEAR have you had severe low blood sugar reactions such as passing out or needing help to treat the reaction? |
1 |
2 |
3 |
4 |
5 |
6 |
77 |
A11. How many days in the LAST 3 MONTHS have you had high blood sugar with symptoms such as thirst, dry mouth and skin, less appetite, nausea, or fatigue? |
1 |
2 |
3 |
4 |
5 |
6 |
77 |
IfA10 is greater than 0 then ask:
A11a. Who helped you___________________________?
A11b. What kind of help did they give you_________________________________________?
A11c. Did you have to call 911? Yes 1/No 0
A11d. Did you go to an emergency room? Yes 1/No 0
A11e. Were you admitted to the hospital overnight? Yes 1/No 0
A11f. Is there anything else I should know?__________________________________________
A12. Morisky Medication Adherence (SELF MANAGEMENT BEHAVIOR)
|
Yes |
No |
A12A. Do you ever forget to take your diabetes medicine? |
1 |
0 |
A12B. Are you always careful about taking your diabetes medicine? |
1 |
0 |
A12C. When you feel better do you sometimes stop taking your diabetes medicine? |
1 |
0 |
A12D. Sometimes if you feel worse when you take the diabetes medicine, do you stop taking it? |
1 |
0 |
DIABETIC COMORBIDITIES (DM HEALTH HISTORY)
The next few questions are about your medical history.
Have you ever been told by a health care provider that you have any of the following problems with your eyes?
|
Yes |
No |
B1. Cataracts |
1 |
0 |
B2. Glaucoma |
1 |
0 |
B3. Detached Retina |
1 |
0 |
B4. Blurred vision (not correctable with eye glasses) |
1 |
0 |
B5. Retinopathy (diabetic changes in the back of your eye) |
1 |
0 |
B6. Blindness |
1 |
0 |
Have you ever had any of the following operations on your eyes?
|
Yes |
No |
B7. Cataracts surgery |
1 |
0 |
B8. Laser treatment |
1 |
0 |
B9. Other (specify___________B9A________________) |
1 |
0 |
Have you ever been told by a health care provider that you have any of the following problems related to your heart or circulation?
|
Yes |
No |
B10. Heart attack |
1 |
0 |
B11. Heart failure |
1 |
0 |
B12. High cholesterol |
1 |
0 |
B13. Angina |
1 |
0 |
B14. High blood pressure |
1 |
0 |
Have you ever had any of the following operations or procedures related to your heart?
|
Yes |
No |
B15. Coronary artery bypass surgery (open heart surgery) |
1 |
0 |
B16. Coronary angioplasty or stent (“balloon’ procedure) |
1 |
0 |
B17. Heart catheterization (angiogram) |
1 |
0 |
Have you ever been told by a health care provider that you have any of the following bladder, kidney, or urinary problems?
|
Yes |
No |
B18. Kidney or bladder infections |
1 |
0 |
B19. Kidney failure |
1 |
0 |
B20. Protein in your urine |
1 |
0 |
B21. Prostatitis or inflamed prostate (men only) |
1 |
0 |
B22. Vaginitis or vaginal infection (women only) |
1 |
0 |
Have you ever been told by a health care provider that you have any of the following problems with your feet or legs?
|
Yes |
No |
B23. Peripheral vascular disease (poor circulation in the legs) |
1 |
0 |
B24. Intermittent claudication (cramping in the calves after exercise) |
1 |
0 |
B25. Peripheral neuropathy (nerve problems causing numbness, tingling, or burning). |
1 |
0 |
B26. Gangrene |
1 |
0 |
B27. Foot ulcers |
1 |
0 |
B28. Athlete’s foot or fungus infection of the feet |
1 |
0 |
Have you ever had an amputation of the toe, foot, part of a leg, or all of a leg for a poorly healing sore or poor circulation? (An amputation that is NOT due to an injury or accident)?
|
Yes |
No |
B29. Toes |
1 |
0 |
B30. Part of a foot (or feet) |
1 |
0 |
B31. Leg, below the knee |
1 |
0 |
B32. Leg, above the knee |
1 |
0 |
Have you ever been told by a health care provider that you have had any of the following problems?
|
Yes |
No |
B33. Stroke |
1 |
0 |
B34. Transient ischemic attacks (TIA or “mini-stroke”) |
1 |
0 |
B35. Do you currently smoke cigarettes, a pipe or cigars? (GENERAL HEALTH HISTORY)
Yes |
1 |
Skip to Page C |
No |
0 |
Proceed |
B36. Have you ever smoked cigarettes, a pipe or cigars?
Yes |
1 |
Proceed |
No |
0 |
Skip to Page C |
B37 How many years ago did you quit smoking?
Number of years |
As far as you know, do you have any of the following health conditions at the present time?
C. Charlson Morbidity Scale |
||||
|
Yes |
No |
Don’t Know |
Refuse |
C1. Anemia (low blood) – including sickle cell anemia |
1 |
0 |
77 |
99 |
C2. Asthma, emphysema, or chronic bronchitis |
1 |
0 |
77 |
99 |
C3. Arthritis or rheumatism |
1 |
0 |
77 |
99 |
C4. Back problems (including spine or disk) |
1 |
0 |
77 |
99 |
C5. Cancer, diagnosed in the past 3 years |
1 |
0 |
77 |
99 |
C6. Depression |
1 |
0 |
77 |
99 |
C7. Diabetes |
1 |
0 |
77 |
99 |
C8. Digestive problems (ulcer, colitis, gallbladder disease) |
1 |
0 |
77 |
99 |
C9. High blood pressure |
1 |
0 |
77 |
99 |
C10. HIV illness or AIDS |
1 |
0 |
77 |
99 |
C11. Kidney problems |
1 |
0 |
77 |
99 |
C12. Liver problems (cirrhosis) |
1 |
0 |
77 |
99 |
C13. Stroke |
1 |
0 |
77 |
99 |
D. SF-1 Health Survey ( GENERAL HEALTH HISTORY)
D1. In general, would you say your health is…
Excellent |
Very Good |
Good |
Fair |
Poor |
1 |
2 |
3 |
4 |
5 |
E. Health Utility Index ( GENERAL HEALTH HISTORY)
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
If yes, go to question 4. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 4. |
||||
|
1 |
0 |
77 |
99 |
If no, go to question 6. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 6. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 11. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 9. |
||||
|
1 |
0 |
77 |
99 |
If no, go to question 11. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 11. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 16. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 16. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 16. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 24. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 24. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 24. |
||||
|
1 |
0 |
77 |
99 |
If no, go to question 22. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 28.
|
||||
|
1 |
0 |
77 |
99 |
If no, go to question 27. |
|
Some tasks |
Most tasks |
All tasks |
Don’t know |
Refused |
|
1 |
2 |
3 |
77 |
99 |
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 31. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
|
Happy |
Unhappy |
Don’t Know |
Refused |
|
1 |
2 |
77 |
99 |
If Unhappy, go to question 33. |
|
Happy & Interested |
Somewhat happy |
Don’t Know |
Refused |
|
1 |
2 |
77 |
99 |
If happy or somewhat happy, go to question 34. |
|
Somewhat unhappy |
Very unhappy |
So unhappy that life is not worthwhile |
Don’t know |
Refused |
|
1 |
2 |
3 |
77 |
99 |
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
If no, go to question 37. |
|
Rarely |
Occasionally |
Often |
Almost always |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
77 |
99 |
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
|
Able to remember most things |
Somewhat forgetful |
Very forgetful |
Unable to remember anything at all |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
77 |
99 |
|
Able to think clearly and solve problems |
Had a little difficulty |
Had some difficulty |
Had a great deal of difficulty |
Unable to think or solve problems |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
5 |
77 |
99 |
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
If no, go to question 41. |
|
None |
A few |
Some |
Most |
All |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
5 |
77 |
99 |
|
Excellent |
Very good |
Good |
Fair |
Poor |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
5 |
77 |
99 |
SELF-EFFICACY
How much do you agree or disagree with each statement? I am able to:
F. Perceived Confidence in Diabetes Scale |
|||||||
|
Not at all True |
Usually Not True |
Sometimes but Infrequently True |
Occasionally True |
Often True |
Usually True |
Very True |
F1. I feel confident in my ability to manage my diabetes. |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
F2. I feel capable of handling my diabetes now. |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
F3. I am able to do my own routine diabetes care now. |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
F4. I am able to meet the challenges of controlling my diabetes. |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
|
Not at all Confident |
Somewhat Confident |
Moderately Confident |
Confident |
Extremely Confident |
F5. How confident are you in your ability to take your diabetes medications exactly as directed by your doctor? |
1 |
2 |
3 |
4 |
5 |
Perceived DM Control |
|||||
|
Not Very Well |
Not Well |
Neither Not Well or Well |
Well |
Very Well |
F6. How well do you think you are managing to control you diabetes? |
1 |
2 |
3 |
4 |
5 |
Perceived Benefits |
|||||
|
Strongly disagree |
Disagree |
Neither agree nor disagree |
Agree |
Strongly agree |
F7. Sticking to my diabetes medication will help prevent diseases (complications) related to diabetes. |
1 |
2 |
3 |
4 |
5 |
F8. Sticking to my diabetes medication will help me control my diabetes. |
1 |
2 |
3 |
4 |
5 |
F9. Sticking to my diabetes medication will help me feel better. |
1 |
2 |
3 |
4 |
5 |
F10. Sticking to my diabetes medication will help me live longer. |
1 |
2 |
3 |
4 |
5 |
Perceived Barriers
|
|||||
|
Strongly disagree |
Disagree |
Neither agree nor disagree |
Agree |
Strongly agree |
F11. I have difficulty remembering when to take my diabetes medication. |
1 |
2 |
3 |
4 |
5 |
F12.Family problems make it difficult for me to take my diabetes medication regularly. |
1 |
2 |
3 |
4 |
5 |
F13. I would have to change too many habits to take my diabetes medication regularly. |
1 |
2 |
3 |
4 |
5 |
F14. Taking my diabetes medication interferes with my normal daily activities. |
1 |
2 |
3 |
4 |
5 |
F15. I don’t feel motivated to take my diabetes medication regularly. |
1 |
2 |
3 |
4 |
5 |
SUPPORT NEEDS, RECEIVED, ATTITUDES (SOCIAL SUPPORT) G1. I want a lot of help and support from my family or friends in:
|
Strongly disagree |
Somewhat disagree |
Neutral |
Somewhat agree |
Strongly agree |
Does not apply |
G1A. Following my meal plan. |
1 |
2 |
3 |
4 |
5 |
88 |
G1B. Taking my medicine. |
1 |
2 |
3 |
4 |
5 |
88 |
G1C. Taking care of my feet. |
1 |
2 |
3 |
4 |
5 |
88 |
G1D. Getting enough physical activity. |
1 |
2 |
3 |
4 |
5 |
88 |
G1E. Testing my sugar. |
1 |
2 |
3 |
4 |
5 |
88 |
G1F. Handling my feelings about diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G2. My family or friends help and support me a lot to:
|
Strongly disagree |
Somewhat disagree |
Neutral |
Somewhat agree |
Strongly agree |
Does not apply |
G2A. Follow my meal plan. |
1 |
2 |
3 |
4 |
5 |
88 |
G2B.Take my medicine. |
1 |
2 |
3 |
4 |
5 |
88 |
G2C. Take care of my feet. |
1 |
2 |
3 |
4 |
5 |
88 |
G2D. Get enough physical activity. |
1 |
2 |
3 |
4 |
5 |
88 |
G2E. Test my sugar. |
1 |
2 |
3 |
4 |
5 |
88 |
G2F. Handle my feelings about diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3. My family or friends:
|
Strongly disagree |
Somewhat disagree |
Neutral |
Somewhat agree |
Strongly agree |
Does not apply |
G3A. Accept me and my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3B.Feel uncomfortable about me because of my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3C. Encourage or reassure me about my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3D. Discourage or upset me about my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3E. Listen to me when I want to talk about my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3F. Nag me about diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
ATTACHMENT STYLE
Check one box for each statement that best describes how much you agree or disagree with the following statements.
|
Strongly disagree |
Disagree |
Slightly disagree |
Slightly agree |
Agree |
Strongly agree |
H1. I find it relatively easy to get close with others. |
1 |
2 |
3 |
4 |
5 |
6 |
H2. I’m not very comfortable having to depend on other people. |
1 |
2 |
3 |
4 |
5 |
6 |
H3. I’m comfortable having others depend on me. |
1 |
2 |
3 |
4 |
5 |
6 |
H4. I rarely worry about being abandoned by others. |
1 |
2 |
3 |
4 |
5 |
6 |
H5. I don’t like people getting too close to me. |
1 |
2 |
3 |
4 |
5 |
6 |
H6. I’m somewhat uncomfortable being too close to others. |
1 |
2 |
3 |
4 |
5 |
6 |
H7. I find it difficult to trust others completely. |
1 |
2 |
3 |
4 |
5 |
6 |
H8. I’m nervous whenever anyone gets too close to me. |
1 |
2 |
3 |
4 |
5 |
6 |
SELF-MANAGEMENT (from Summary of Diabetes Self-Care Activities Measure)
The questions below ask you about your diabetes self-care activities during the past 7 days. If you were sick during the past 7 days, please think back to the last 7 days that you were not sick.
|
0 days |
1 day |
2 days |
3 days |
4 days |
5 days |
6 days |
7 days |
I1. How many of the last seven days have you followed a healthful eating plan? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I2.On average, over the past month, how many days per week have you followed your eating plan? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I3. On how many of the last seven days did you eat five or more servings of fruits and vegetables? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I4. On how many of the last seven days did you eat high fat foods such as red meat or full-fat dairy products? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I5. On how many of the last seven days did you participate in at least 30 minutes of physical activity? (Total minutes of continuous activity, including walking) |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I6. On how many of the last seven days did you participate in a specific exercise session (such as swimming, walking, biking) other than what you do around the house or as part of your work? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I7. On how many of the last seven days did you test your blood sugar? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I8. On how many of the last seven days did you test your blood sugar the number of times recommended by your health provider? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I9. On how many of the last seven days did you check your feet? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I10. On how many of the last seven days did you inspect the inside of your shoes? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
K. Diabetes Distress Scale (DDS-2 DM QUALITY OF LIFE)
Living with diabetes can sometimes be tough. There may be many problems and hassles concerning diabetes and they can vary greatly in severity. Problems may range from minor hassles to major life difficulties. For the following, please consider the degree to which each of the items may have distressed or bothered you during the past month.
|
Not a Problem |
Minor Problem |
Moderate Problem |
Somewhat Serious Problem |
Serious Problem |
K1. Feeling overwhelmed by the demands of living with diabetes |
1 |
2 |
3 |
4 |
5 |
K2. Feeling that I am often failing with my diabetes regimen |
1 |
2 |
3 |
4 |
5 |
L. Patient Health Questionnaire (PHQ2 - Depression) (DEPRESSION SYMPTOMS)
Over the last 2 weeks, how often have you been bothered by any of the following problems? |
||||
|
Not at all |
Several Days |
More than half the days |
Nearly every day |
L1. Little interest or pleasure in doing things
|
0 |
1 |
2 |
3 |
L2. Feeling down, depressed, or hopeless
|
0 |
1 |
2 |
3 |
DEMOGRAPHICS
M1. What is your age?
M2. What is your birth date? / /
M3. What is your sex?
Male |
Female |
1 |
2 |
M4. Do you consider yourself Spanish, Hispanic, or Latino?
Yes |
No |
1 |
0 |
M5. Which of the following describes your racial background? Please say yes to all that apply as I read down the following list.
Race/Ethnicity |
Yes |
No |
M5A. White |
1 |
0 |
M5B. Black or African American |
1 |
0 |
M5C. American Indian or Alaska Native |
1 |
0 |
M5D. Asian |
1 |
0 |
M5E. Native Hawaiian or other Pacific Islander |
1 |
0 |
M5F. Other (please specify)____________M5F1_____________ |
1 |
0 |
M6. What is the highest grade or year of school you completed?
Year |
|
Don’t Know |
77 |
M7. What degrees or diplomas have you earned? Please say yes to all that apply.
Degree |
Yes |
No |
M7A. High school diploma or equivalency (GED) |
1 |
0 |
M7B. Associate degree (junior college) |
1 |
0 |
M7C. Technical certificate or degree |
1 |
0 |
M7D. Bachelor’s degree |
1 |
0 |
M7E. Master’s degree |
1 |
0 |
M7F. Doctorate or Professional Degree (MD, JD, DDS, etc) |
1 |
0 |
M7G. Other (please specify) ________________________ |
1 |
0 |
M7H. None of the above (less than high school) |
1 |
0 |
M8. What is your current marital or domestic status? Please say yes to all that apply.
Status |
Yes |
No |
M8A. Married |
1 |
0 |
M8B. Living with someone as a couple, but not married |
1 |
0 |
M8C. Widowed |
1 |
0 |
M8D. Divorced or Separated |
1 |
0 |
M8E. Never married |
1 |
0 |
M8F. Other |
1 |
0 |
M9. Which best describes your current living situation?
Live alone in your own apartment or house |
1 |
Live with family members |
2 |
Live with friends or roommates in an apartment or house |
3 |
Live in residential treatment |
4 |
Live in a shelter or on the streets |
5 |
Other: ___M9A______________ |
6 |
M10. How many people live with you? _______________________________________
M11. Which of the following best describes your current employment status?
Working full-time, 35 or more hours per week |
1 |
Working part-time, less than 35 hours per week |
2 |
Unemployed or laid off and looking for work |
3 |
Unemployed and not looking for work |
4 |
Homemaker |
5 |
In school |
6 |
Retired |
7 |
Disabled, not able to work |
8 |
Other:____________M11A___________ |
9 |
M12. How would you describe your care? (check all that apply)
Plan |
Yes |
No |
M12A. Do you get all of your care at the VA? |
1 |
0 |
M12B. Do you go to see doctors outside of the VA for any reason? |
1 |
0 |
M13. Which of the categories best describes your total annual combined household income from all sources?
Less than $5,000 |
1 |
$5,000 to $9,999 |
2 |
$10,000 to $14,999 |
3 |
$15,000 to $19,999 |
4 |
$20,000 to $29,999 |
5 |
$30,000 to $39,999 |
6 |
$40,000 to $49,999 |
7 |
$50,000 to $59,999 |
8 |
$60,000 to $69,999 |
9 |
$70,000 and over |
10 |
Don’t Know |
77 |
Refuse to disclose |
99 |
6-MONTH SURVEY
CV1. Date enrolled: / /
CV2. Data entered by: (initials)
CV3. Data checked by: (initials)
CV4.
Poorly Controlled Patient 1
Peer Mentor 2
CV5. Arm
Usual Care 1
Peer Mentoring 2
FFM 3
6-month measurements
SM1. Initial HbA1c: _________________________________________
SM2. Blood Pressure 1: _________________________________________
SM3. Blood Pressure 2: _________________________________________
SM4. Blood Pressure Average: _________________________________________
SM5. Direct LDL: _________________________________________
SM6. Height: _________________________________________
SM7. Weight: _________________________________________
SM8. BMI: ______________________________________________
SM9. Primary Care Physician: ________________________________________
|
||||
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
If yes, go to question 4. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 4. |
||||
|
1 |
0 |
77 |
99 |
If no, go to question 6. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 6. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 11. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 9. |
||||
|
1 |
0 |
77 |
99 |
If no, go to question 11. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 11. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 16. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 16. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 16. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 24. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 24. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 24. |
||||
|
1 |
0 |
77 |
99 |
If no, go to question 22. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 28. |
||||
|
1 |
0 |
77 |
99 |
If no, go to question 27. |
|
Some tasks |
Most tasks |
All tasks |
Don’t know |
Refused |
|
1 |
2 |
3 |
77 |
99 |
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 31. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
|
Happy |
Unhappy |
Don’t Know |
Refused |
|
1 |
2 |
77 |
99 |
If Unhappy, go to question 33. |
|
Happy & Interested |
Somewhat happy |
Don’t Know |
Refused |
|
1 |
2 |
77 |
99 |
If happy or somewhat happy, go to question 34. |
|
Somewhat unhappy |
Very unhappy |
So unhappy that life is not worthwhile |
Don’t know |
Refused |
|
1 |
2 |
3 |
77 |
99 |
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
If no, go to question 37. |
|
Rarely |
Occasionally |
Often |
Almost always |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
77 |
99 |
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
|
Able to remember most things |
Somewhat forgetful |
Very forgetful |
Unable to remember anything at all |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
77 |
99 |
|
Able to think clearly and solve problems |
Had a little difficulty |
Had some difficulty |
Had a great deal of difficulty |
Unable to think or solve problems |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
5 |
77 |
99 |
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
If no, go to question 41. |
|
None |
A few |
Some |
Most |
All |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
5 |
77 |
99 |
|
Excellent |
Very good |
Good |
Fair |
Poor |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
5 |
77 |
99 |
As far as you know, do you have any of the following health conditions at the present time?
B. Charlson Morbidity Scale |
||||
|
Yes |
No |
Don’t Know |
Refuse |
B1. Anemia (low blood) – including sickle cell anemia |
1 |
0 |
77 |
99 |
B2. Asthma, emphysema, or chronic bronchitis |
1 |
0 |
77 |
99 |
B3. Arthritis or rheumatism |
1 |
0 |
77 |
99 |
B4. Back problems (including spine or disk) |
1 |
0 |
77 |
99 |
B5. Cancer, diagnosed in the past 3 years |
1 |
0 |
77 |
99 |
B6. Depression |
1 |
0 |
77 |
99 |
B7. Diabetes |
1 |
0 |
77 |
99 |
B8. Digestive problems (ulcer, colitis, gallbladder disease) |
1 |
0 |
77 |
99 |
B9. High blood pressure |
1 |
0 |
77 |
99 |
B10. HIV illness or AIDS |
1 |
0 |
77 |
99 |
B11. Kidney problems |
1 |
0 |
77 |
99 |
B12. Liver problems (cirrhosis) |
1 |
0 |
77 |
99 |
B13. Stroke |
1 |
0 |
77 |
99 |
C. SF-1 Health Survey
|
||||
C1. In general, would you say your health is…
|
||||
Excellent |
Very Good |
Good |
Fair |
Poor |
1 |
2 |
3 |
4 |
5 |
D. HYPOGLYCEMIC SYMPTOMS
|
|||||||
DM Symptoms |
|
||||||
|
0 Times |
1 Time |
2 Times |
3 Times |
4-6 Times |
7-12 Times |
Don’t know |
1. How many times in the LAST MONTH have you had a low blood sugar (glucose) reaction with symptoms such as sweating, weakness, anxiety, trembling, hunger or headaches? |
1 |
2 |
3 |
4 |
5 |
6 |
77 |
2. How many times in the LAST Month have you had severe low blood sugar reactions such as passing out or needing help to treat the reaction? |
1 |
2 |
3 |
4 |
5 |
6 |
77 |
3. How many days in the LAST 3 MONTHS have you had high blood sugar with symptoms such as thirst, dry mouth and skin, less appetite, nausea, or fatigue? |
1 |
2 |
3 |
4 |
5 |
6 |
77 |
E. Diabetes Distress Scale (DDS-2)
Living with diabetes can sometimes be tough. There may be many problems and hassles concerning diabetes and they can vary greatly in severity. Problems may range from minor hassles to major life difficulties. For the following, please consider the degree to which each of the items may have distressed or bothered you during the past month.
|
Not a Problem |
Minor Problem |
Moderate Problem |
Somewhat Serious Problem |
Serious Problem |
E1. Feeling overwhelmed by the demands of living with diabetes |
1 |
2 |
3 |
4 |
5 |
E2. Feeling that I am often failing with my diabetes regimen |
1 |
2 |
3 |
4 |
5 |
F. Patient Health Questionnaire (PHQ2 - Depression)
|
||||
Over the last 2 weeks, how often have you been bothered by any of the following problems? |
||||
|
Not at all |
Several Days |
More than half the days |
Nearly every day |
F1. Little interest or pleasure in doing things
|
0 |
1 |
2 |
3 |
F2. Feeling down, depressed, or hopeless
|
0 |
1 |
2 |
3 |
G. SUPPORT NEEDS, RECEIVED, ATTITUDES (from Diabetes Care Profile)
G1. I want a lot of help and support from my family or friends in:
|
||||||
|
Strongly disagree |
Somewhat disagree |
Neutral |
Somewhat agree |
Strongly agree |
Does not apply |
G1A. Following my meal plan. |
1 |
2 |
3 |
4 |
5 |
88 |
G1B. Taking my medicine. |
1 |
2 |
3 |
4 |
5 |
88 |
G1C. Taking care of my feet. |
1 |
2 |
3 |
4 |
5 |
88 |
G1D. Getting enough physical activity. |
1 |
2 |
3 |
4 |
5 |
88 |
G1E. Testing my sugar. |
1 |
2 |
3 |
4 |
5 |
88 |
G1F. Handling my feelings about diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G2. My family or friends help and support me a lot to:
|
||||||
|
Strongly disagree |
Somewhat disagree |
Neutral |
Somewhat agree |
Strongly agree |
Does not apply |
G2A. Follow my meal plan. |
1 |
2 |
3 |
4 |
5 |
88 |
G2B.Take my medicine. |
1 |
2 |
3 |
4 |
5 |
88 |
G2C. Take care of my feet. |
1 |
2 |
3 |
4 |
5 |
88 |
G2D. Get enough physical activity. |
1 |
2 |
3 |
4 |
5 |
88 |
G2E. Test my sugar. |
1 |
2 |
3 |
4 |
5 |
88 |
G2F. Handle my feelings about diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3. My family or friends:
|
||||||
|
Strongly disagree |
Somewhat disagree |
Neutral |
Somewhat agree |
Strongly agree |
Does not apply |
G3A. Accept me and my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3B.Feel uncomfortable about me because of my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3C. Encourage or reassure me about my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3D. Discourage or upset me about my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3E. Listen to me when I want to talk about my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3F. Nag me about diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
SELF-EFFICACY
How much do you agree or disagree with each statement? I am able to:
H. Perceived Confidence in Diabetes Scale |
|||||||
|
Not at all True |
Usually Not True |
Sometimes but Infrequently True |
Occasionally True |
Often True |
Usually True |
Very True |
H1. I feel confident in my ability to manage my diabetes. |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
H2. I feel capable of handling my diabetes now. |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
H3. I am able to do my own routine diabetes care now. |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
H4. I am able to meet the challenges of controlling my diabetes. |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
|
Not at all Confident |
Somewhat Confident |
Moderately Confident |
Confident |
Extremely Confident |
H5. How confident are you in your ability to take your diabetes medications exactly as directed by your doctor? |
1 |
2 |
3 |
4 |
5 |
Perceived DM Control |
|||||
|
Not Very Well |
Not Well |
Neither Not Well or Well |
Well |
Very Well |
H6. How well do you think you are managing to control you diabetes? |
1 |
2 |
3 |
4 |
5 |
Perceived Benefits |
|||||
|
Strongly disagree |
Disagree |
Neither agree nor disagree |
Agree |
Strongly agree |
H7. Sticking to my diabetes medication will help prevent diseases (complications) related to diabetes. |
1 |
2 |
3 |
4 |
5 |
H8. Sticking to my diabetes medication will help me control my diabetes. |
1 |
2 |
3 |
4 |
5 |
H9. Sticking to my diabetes medication will help me feel better. |
1 |
2 |
3 |
4 |
5 |
H10. Sticking to my diabetes medication will help me live longer. |
1 |
2 |
3 |
4 |
5 |
Perceived Barriers
|
|||||
|
Strongly disagree |
Disagree |
Neither agree nor disagree |
Agree |
Strongly agree |
H11. I have difficulty remembering when to take my diabetes medication. |
1 |
2 |
3 |
4 |
5 |
H12.Family problems make it difficult for me to take my diabetes medication regularly. |
1 |
2 |
3 |
4 |
5 |
H13. I would have to change too many habits to take my diabetes medication regularly. |
1 |
2 |
3 |
4 |
5 |
H14. Taking my diabetes medication interferes with my normal daily activities. |
1 |
2 |
3 |
4 |
5 |
H15. I don’t feel motivated to take my diabetes medication regularly. |
1 |
2 |
3 |
4 |
5 |
H16. Morisky Medication Adherence (SELF MANAGEMENT BEHAVIOR)
|
Yes |
No |
H16A. Do you ever forget to take your diabetes medicine? |
1 |
0 |
H16B. Are you always careful about taking your diabetes medicine? |
1 |
0 |
H16C. When you feel better do you sometimes stop taking your diabetes medicine? |
1 |
0 |
H16D. Sometimes if you feel worse when you take the diabetes medicine, do you stop taking it? |
1 |
0 |
H17. During the past 6 months, did you start using insulin?
H17A. If yes, do you know the name of your insulin? _____________________________________________
|
Once a Day in the Morning |
Once a Day in the Evening |
Twice a Day |
Three Times a Day |
Four or More Times a Day |
I use an Infusion Pump |
H18. How many times during the day do you usually take your insulin? |
1 |
2 |
3 |
4 |
5 |
6 |
H19. How old were you when you started taking insulin? years
H20. Have you taken insulin for as long as you have had diabetes?
Yes |
1 |
No |
0 |
SELF-MANAGEMENT (from Summary of Diabetes Self-Care Activities Measure)
The questions below ask you about your diabetes self-care activities during the past 7 days. If you were sick during the past 7 days, please think back to the last 7 days that you were not sick.
|
0 days |
1 day |
2 days |
3 days |
4 days |
5 days |
6 days |
7 days |
I1. How many of the last seven days have you followed a healthful eating plan? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I2.On average, over the past month, how many days per week have you followed your eating plan? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I3. On how many of the last seven days did you eat five or more servings of fruits and vegetables? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I4. On how many of the last seven days did you eat high fat foods such as red meat or full-fat dairy products? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I5. On how many of the last seven days did you participate in at least 30 minutes of physical activity? (Total minutes of continuous activity, including walking) |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I6. On how many of the last seven days did you participate in a specific exercise session (such as swimming, walking, biking) other than what you do around the house or as part of your work? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I7. On how many of the last seven days did you test your blood sugar? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I8. On how many of the last seven days did you test your blood sugar the number of times recommended by your health provider? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I9. On how many of the last seven days did you check your feet? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I10. On how many of the last seven days did you inspect the inside of your shoes? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
The next few questions are about the money you may have spent to improve your diabetes control during the last 6 months. Please answer yes or no to whether you have bought any of the following during the study.
|
Yes |
No |
Estimated cost |
|
|
|||
J1. Weight loss program (Weight Watchers, Jenny Craig, Optifast, Nutrasystem, Overeater’s Anonymous, etc.) |
1 |
0 |
J1A |
|
|
|||
J2. Vitamins, diet pills, supplements
|
1 |
0 |
J2A |
|
|
|||
J3. Cookbooks
|
1 |
0 |
J3A |
|
|
|||
J4. Cooking videos
|
1 |
0 |
J4A |
|
|
|||
J5. Blender
|
1 |
0 |
J5A |
|
|
|||
J6. Microwave
|
1 |
0 |
J6A |
|
|
|||
J7. Steamer
|
1 |
0 |
J7A |
|
|
|||
J8. Pots and pans for low fat cooking
|
1 |
0 |
J8A |
|
|
|||
J9. Mixer or food processor
|
1 |
0 |
J9A |
|
|
|||
J10. Food scale
|
1 |
0 |
J10A |
|
|
|||
J11. Freezer
|
1 |
0 |
J11A |
|
|
|||
J12. Wok or electric grill
|
1 |
0 |
J12A |
|
|
|||
J13. Other food related items (please specify):
|
1 |
0 |
J13A |
|
|
|||
|
Yes |
No |
Estimated cost |
|
|
|||
J14. Bicycle |
1
|
0 |
J14A |
|
|
|||
J15. Exercise videos (Wii fit, Tae Bo, P90X, etc.) |
1
|
0 |
J15A |
|
|
|||
J16. Free weights, dumbbells, hand & ankle weights |
1
|
0 |
J16A |
|
|
|||
J17. Home gym |
1
|
0 |
J17A |
|
|
|||
J18. Stationary bicycle |
1
|
0 |
J18A |
|
|
|||
J19. Rowing or skiing machine, stair stepper |
1
|
0 |
J19A |
|
|
|||
J20. Treadmill |
1
|
0 |
J20A |
|
|
|||
J21. Sport or water aerobics equipment (basketball, volleyball, tennis racket, etc.) |
1
|
0 |
J21A |
|
|
|||
J22, Health or gym club membership |
1
|
0 |
J22A |
|
|
|||
J23. Exercise, aerobic, yoga, or dance class |
1
|
0 |
J23A |
|
|
|||
J24. Personal trainer |
1
|
0 |
J24A |
|
|
|||
J25. Exercise sneakers |
1
|
0 |
J25A |
|
|
|||
J26. Exercise clothing (socks, underwear, special shoes, etc.) |
1
|
0 |
J26A |
|
|
|||
J27. Other fitness related items (please specify): |
1
|
0 |
J27A |
|
|
|||
|
Yes |
No |
Estimated cost |
|||||
J28. Is there anything else you bought to help you control your diabetes that we haven’t already mentioned? Please specify: |
1 |
0 |
J28A |
Now I have some additional questions.
J29. In the past 6 months, how much extra money did you spend on average per week for diabetes friendly foods or extra fruits and vegetables?
_____________________
J30. In the last 6 months, how much in total have you paid for your diabetes prescriptions (pills, insulin, etc.)?
_____________________
J31. In the last 6 months, how much money have you paid for diabetic supplies (strips, lancets, Glucometers, etc.)?
_____________________
J32. In the past 6 months, how much money have you spent on special clothing for exercise (athletic clothing, supportive underwear, special shoes like cleats)?
_____________________
J33. In a normal week, how many hours do you yourself spend shopping for and preparing food for yourself?
_____________________
J34. In a normal week, how many hours do your spouse, family, and friends spend shopping and preparing food for you?
J35. How much time does it take you to travel to your Improving Diabetic Outcomes (IDO research study) visit?
_____________________
J36. Did you visit any of the following doctors/healthcare providers during the study?
|
Yes |
No |
# of visits |
Copay |
J36A. Primary care provider |
1 |
0
|
J36A1 |
J36A2 |
J36B. Nurse practitioner |
1 |
0
|
J36B1 |
J36B2 |
J36C. Endocrinologist |
1 |
0
|
J36C1 |
J36C2 |
J36D. Cardiologist |
1 |
0
|
J36D1 |
J36D2 |
J36E. Ophthalmologist |
1 |
0
|
J36E1 |
J36E2 |
J36F. Podiatrist |
1 |
0
|
J36F1 |
J36F2 |
J36G. Dentist |
1 |
0
|
J36G1 |
J36G2 |
|
Yes |
No |
# of visits |
Copay |
J36H. Did you have to visit the emergency room during the last 6 months? |
1 |
0 |
J36H1 |
J36H2 |
|
J36H3 |
|||
J36I Did you have to stay overnight in the hospital during the last 6 months? |
1 |
0 |
J36I1 |
J36I2 |
|
J36I3 |
|||
J36J. Did you have any surgeries during the past 6 months? |
1 |
0 |
J36J1 |
J36J2 |
|
J36J2 |
FOLLOW-UP SURVEY
6 Month Follow-up ______
12 Month Follow-up _______
CV1. Date enrolled: / /
CV2. Data entered by: (initials)
CV3. Data checked by: (initials)
CV4.
Poorly Controlled Patient 1
Peer Mentor 2
CV5.
Arm
Usual Care 1
Peer Mentoring 2
FFM 3
12-month measurements
TM1. Initial HbA1c: _________________________________________
TM2. Blood Pressure 1: _________________________________________
TM3. Blood Pressure 2: _________________________________________
TM4. Blood Pressure Average: _________________________________________
TM5. Direct LDL: _________________________________________
TM6. Height: _________________________________________
TM7. Weight: _________________________________________
TM8. BMI: ______________________________________________
TM9. Primary Care Physician: ________________________________________
|
||||
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
If yes, go to question 4. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 4. |
||||
|
1 |
0 |
77 |
99 |
If no, go to question 6. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 6. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 11. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 9. |
||||
|
1 |
0 |
77 |
99 |
If no, go to question 11. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 11. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 16. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 16. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 16. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 24. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 24. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 24. |
||||
|
1 |
0 |
77 |
99 |
If no, go to question 22. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 28. |
||||
|
1 |
0 |
77 |
99 |
If no, go to question 27. |
|
Some tasks |
Most tasks |
All tasks |
Don’t know |
Refused |
|
1 |
2 |
3 |
77 |
99 |
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 31. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
|
Happy |
Unhappy |
Don’t Know |
Refused |
|
1 |
2 |
77 |
99 |
If Unhappy, go to question 33. |
|
Happy & Interested |
Somewhat happy |
Don’t Know |
Refused |
|
1 |
2 |
77 |
99 |
If happy or somewhat happy, go to question 34. |
|
Somewhat unhappy |
Very unhappy |
So unhappy that life is not worthwhile |
Don’t know |
Refused |
|
1 |
2 |
3 |
77 |
99 |
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
If no, go to question 37. |
|
Rarely |
Occasionally |
Often |
Almost always |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
77 |
99 |
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
|
Able to remember most things |
Somewhat forgetful |
Very forgetful |
Unable to remember anything at all |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
77 |
99 |
|
Able to think clearly and solve problems |
Had a little difficulty |
Had some difficulty |
Had a great deal of difficulty |
Unable to think or solve problems |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
5 |
77 |
99 |
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
If no, go to question 41. |
|
None |
A few |
Some |
Most |
All |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
5 |
77 |
99 |
|
Excellent |
Very good |
Good |
Fair |
Poor |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
5 |
77 |
99 |
As far as you know, do you have any of the following health conditions at the present time?
B. Charlson Morbidity Scale |
||||
|
Yes |
No |
Don’t Know |
Refuse |
B1. Anemia (low blood) – including sickle cell anemia |
1 |
0 |
77 |
99 |
B2. Asthma, emphysema, or chronic bronchitis |
1 |
0 |
77 |
99 |
B3. Arthritis or rheumatism |
1 |
0 |
77 |
99 |
B4. Back problems (including spine or disk) |
1 |
0 |
77 |
99 |
B5. Cancer, diagnosed in the past 3 years |
1 |
0 |
77 |
99 |
B6. Depression |
1 |
0 |
77 |
99 |
B7. Diabetes |
1 |
0 |
77 |
99 |
B8. Digestive problems (ulcer, colitis, gallbladder disease) |
1 |
0 |
77 |
99 |
B9. High blood pressure |
1 |
0 |
77 |
99 |
B10. HIV illness or AIDS |
1 |
0 |
77 |
99 |
B11. Kidney problems |
1 |
0 |
77 |
99 |
B12. Liver problems (cirrhosis) |
1 |
0 |
77 |
99 |
B13. Stroke |
1 |
0 |
77 |
99 |
C. SF-1 Health Survey
|
||||
C1. In general, would you say your health is…
|
||||
Excellent |
Very Good |
Good |
Fair |
Poor |
1 |
2 |
3 |
4 |
5 |
D. HYPOGLYCEMIC SYMPTOMS
|
|||||||
DM Symptoms |
|
||||||
|
0 Times |
1 Time |
2 Times |
3 Times |
4-6 Times |
7-12 Times |
Don’t know |
1. How many times in the LAST MONTH have you had a low blood sugar (glucose) reaction with symptoms such as sweating, weakness, anxiety, trembling, hunger or headaches? |
1 |
2 |
3 |
4 |
5 |
6 |
77 |
2. How many times in the LAST Month have you had severe low blood sugar reactions such as passing out or needing help to treat the reaction? |
1 |
2 |
3 |
4 |
5 |
6 |
77 |
3. How many days in the LAST 3 MONTHS have you had high blood sugar with symptoms such as thirst, dry mouth and skin, less appetite, nausea, or fatigue? |
1 |
2 |
3 |
4 |
5 |
6 |
77 |
E. Diabetes Distress Scale (DDS-2)
Living with diabetes can sometimes be tough. There may be many problems and hassles concerning diabetes and they can vary greatly in severity. Problems may range from minor hassles to major life difficulties. For the following, please consider the degree to which each of the items may have distressed or bothered you during the past month.
|
Not a Problem |
Minor Problem |
Moderate Problem |
Somewhat Serious Problem |
Serious Problem |
E1. Feeling overwhelmed by the demands of living with diabetes |
1 |
2 |
3 |
4 |
5 |
E2. Feeling that I am often failing with my diabetes regimen |
1 |
2 |
3 |
4 |
5 |
F. Patient Health Questionnaire (PHQ2 - Depression)
|
||||
Over the last 2 weeks, how often have you been bothered by any of the following problems? |
||||
|
Not at all |
Several Days |
More than half the days |
Nearly every day |
F1. Little interest or pleasure in doing things
|
0 |
1 |
2 |
3 |
F2. Feeling down, depressed, or hopeless
|
0 |
1 |
2 |
3 |
G. SUPPORT NEEDS, RECEIVED, ATTITUDES (from Diabetes Care Profile)
G1. I want a lot of help and support from my family or friends in:
|
||||||
|
Strongly disagree |
Somewhat disagree |
Neutral |
Somewhat agree |
Strongly agree |
Does not apply |
G1A. Following my meal plan. |
1 |
2 |
3 |
4 |
5 |
88 |
G1B. Taking my medicine. |
1 |
2 |
3 |
4 |
5 |
88 |
G1C. Taking care of my feet. |
1 |
2 |
3 |
4 |
5 |
88 |
G1D. Getting enough physical activity. |
1 |
2 |
3 |
4 |
5 |
88 |
G1E. Testing my sugar. |
1 |
2 |
3 |
4 |
5 |
88 |
G1F. Handling my feelings about diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G2. My family or friends help and support me a lot to:
|
||||||
|
Strongly disagree |
Somewhat disagree |
Neutral |
Somewhat agree |
Strongly agree |
Does not apply |
G2A. Follow my meal plan. |
1 |
2 |
3 |
4 |
5 |
88 |
G2B.Take my medicine. |
1 |
2 |
3 |
4 |
5 |
88 |
G2C. Take care of my feet. |
1 |
2 |
3 |
4 |
5 |
88 |
G2D. Get enough physical activity. |
1 |
2 |
3 |
4 |
5 |
88 |
G2E. Test my sugar. |
1 |
2 |
3 |
4 |
5 |
88 |
G2F. Handle my feelings about diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3. My family or friends:
|
||||||
|
Strongly disagree |
Somewhat disagree |
Neutral |
Somewhat agree |
Strongly agree |
Does not apply |
G3A. Accept me and my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3B.Feel uncomfortable about me because of my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3C. Encourage or reassure me about my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3D. Discourage or upset me about my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3E. Listen to me when I want to talk about my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3F. Nag me about diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
SELF-EFFICACY
How much do you agree or disagree with each statement? I am able to:
H. Perceived Confidence in Diabetes Scale |
|||||||
|
Not at all True |
Usually Not True |
Sometimes but Infrequently True |
Occasionally True |
Often True |
Usually True |
Very True |
H1. I feel confident in my ability to manage my diabetes. |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
H2. I feel capable of handling my diabetes now. |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
H3. I am able to do my own routine diabetes care now. |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
H4. I am able to meet the challenges of controlling my diabetes. |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
|
Not at all Confident |
Somewhat Confident |
Moderately Confident |
Confident |
Extremely Confident |
H5. How confident are you in your ability to take your diabetes medications exactly as directed by your doctor? |
1 |
2 |
3 |
4 |
5 |
Perceived DM Control |
|||||
|
Not Very Well |
Not Well |
Neither Not Well or Well |
Well |
Very Well |
H6. How well do you think you are managing to control you diabetes? |
1 |
2 |
3 |
4 |
5 |
Perceived Benefits |
|||||
|
Strongly disagree |
Disagree |
Neither agree nor disagree |
Agree |
Strongly agree |
H7. Sticking to my diabetes medication will help prevent diseases (complications) related to diabetes. |
1 |
2 |
3 |
4 |
5 |
H8. Sticking to my diabetes medication will help me control my diabetes. |
1 |
2 |
3 |
4 |
5 |
H9. Sticking to my diabetes medication will help me feel better. |
1 |
2 |
3 |
4 |
5 |
H10. Sticking to my diabetes medication will help me live longer. |
1 |
2 |
3 |
4 |
5 |
Perceived Barriers
|
|||||
|
Strongly disagree |
Disagree |
Neither agree nor disagree |
Agree |
Strongly agree |
H11. I have difficulty remembering when to take my diabetes medication. |
1 |
2 |
3 |
4 |
5 |
H12.Family problems make it difficult for me to take my diabetes medication regularly. |
1 |
2 |
3 |
4 |
5 |
H13. I would have to change too many habits to take my diabetes medication regularly. |
1 |
2 |
3 |
4 |
5 |
H14. Taking my diabetes medication interferes with my normal daily activities. |
1 |
2 |
3 |
4 |
5 |
H15. I don’t feel motivated to take my diabetes medication regularly. |
1 |
2 |
3 |
4 |
5 |
H16. Morisky Medication Adherence (SELF MANAGEMENT BEHAVIOR)
|
Yes |
No |
A. Do you ever forget to take your diabetes medicine? |
1 |
0 |
B. Are you always careful about taking your diabetes medicine? |
1 |
0 |
C. When you feel better do you sometimes stop taking your diabetes medicine? |
1 |
0 |
D. Sometimes if you feel worse when you take the diabetes medicine, do you stop taking it? |
1 |
0 |
H17. During the past 6 months, did you start using insulin?
H17A. If yes, do you know the name of your insulin? _____________________________________________
|
Once a Day in the Morning |
Once a Day in the Evening |
Twice a Day |
Three Times a Day |
Four or More Times a Day |
I use an Infusion Pump |
H18. How many times during the day do you usually take your insulin? |
1 |
2 |
3 |
4 |
5 |
6 |
|
|
|
|
|
|
|
H19. How old were you when you started taking insulin? years
H20. Have you taken insulin for as long as you have had diabetes?
Yes |
1 |
No |
0 |
SELF-MANAGEMENT (from Summary of Diabetes Self-Care Activities Measure)
The questions below ask you about your diabetes self-care activities during the past 7 days. If you were sick during the past 7 days, please think back to the last 7 days that you were not sick.
|
0 days |
1 day |
2 days |
3 days |
4 days |
5 days |
6 days |
7 days |
I1. How many of the last seven days have you followed a healthful eating plan? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I2.On average, over the past month, how many days per week have you followed your eating plan? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I3. On how many of the last seven days did you eat five or more servings of fruits and vegetables? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I4. On how many of the last seven days did you eat high fat foods such as red meat or full-fat dairy products? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I5. On how many of the last seven days did you participate in at least 30 minutes of physical activity? (Total minutes of continuous activity, including walking) |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I6. On how many of the last seven days did you participate in a specific exercise session (such as swimming, walking, biking) other than what you do around the house or as part of your work? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I7. On how many of the last seven days did you test your blood sugar? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I8. On how many of the last seven days did you test your blood sugar the number of times recommended by your health provider? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I9. On how many of the last seven days did you check your feet? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I10. On how many of the last seven days did you inspect the inside of your shoes? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
J. The next few questions are about the money you may have spent to improve your diabetes control during the last 6 months. Please answer yes or no to whether you have bought any of the following during the study.
|
Yes |
No |
Estimated cost |
J1. Weight loss program (Weight Watchers, Jenny Craig, Optifast, Nutrasystem, Overeater’s Anonymous, etc.) |
1 |
0 |
J1A |
J2. Vitamins, diet pills, supplements
|
1 |
0 |
J2A |
J3. Cookbooks
|
1 |
0 |
J3A |
J4. Cooking videos
|
1 |
0 |
J4A |
J5. Blender
|
1 |
0 |
J5A |
J6. Microwave
|
1 |
0 |
J6A |
J7. Steamer
|
1 |
0 |
J7A |
J8. Pots and pans for low fat cooking
|
1 |
0 |
J8A |
J9. Mixer or food processor
|
1 |
0 |
J9A |
J10. Food scale
|
1 |
0 |
J10A |
J11. Freezer
|
1 |
0 |
J11A |
J12. Wok or electric grill
|
1 |
0 |
J12A |
J13. Other food related items (please specify):
|
1 |
0 |
J13A |
|
Yes |
No |
Estimated cost |
J14. Bicycle |
1
|
0 |
J14A |
J15. Exercise videos (Wii fit, Tae Bo, P90X, etc.) |
1
|
0 |
J15A |
J16. Free weights, dumbbells, hand & ankle weights |
1
|
0 |
J16A |
J17. Home gym |
1
|
0 |
J17A |
J18. Stationary bicycle |
1
|
0 |
J18A |
J19. Rowing or skiing machine, stair stepper |
1
|
0 |
J19A |
J20. Treadmill |
1
|
0 |
J20A |
J21. Sport or water aerobics equipment (basketball, volleyball, tennis racket, etc.) |
1
|
0 |
J21A |
J22. Health or gym club membership |
1
|
0 |
J22A |
J23. Exercise, aerobic, yoga, or dance class |
1
|
0 |
J23A |
J24. Personal trainer |
1
|
0 |
J24A |
J25. Exercise sneakers |
1
|
0 |
J25A |
J26. Exercise clothing (socks, underwear, special shoes, etc.) |
1
|
0 |
J26A |
J27. Other fitness related items (please specify): |
1
|
0 |
J27A |
|
Yes |
No |
Estimated cost |
J28. Is there anything else you bought to help you control your diabetes that we haven’t already mentioned? Please specify: |
1 |
0 |
J28A |
Now I have some additional questions.
J29. In the past 6 months, how much extra money did you spend on average per week for diabetes friendly foods or extra fruits and vegetables?
_____________________
J30. In the last 6 months, how much in total have you paid for your diabetes prescriptions (pills, insulin, etc.)?
_____________________
J31. In the last 6 months, how much money have you paid for diabetic supplies (strips, lancets, Glucometers, etc.)?
_____________________
J32. In the past 6 months, how much money have you spent on special clothing for exercise (athletic clothing, supportive underwear, special shoes like cleats)?
_____________________
J33. In a normal week, how many hours do you yourself spend shopping for and preparing food for yourself?
_____________________
J34. In a normal week, how many hours do your spouse, family, and friends spend shopping and preparing food for you?
J35, How much time does it take you to travel to your Improving Diabetic Outcomes (IDO research study) visit?
_____________________
J36. Did you visit any of the following doctors/healthcare providers during the study?
|
Yes |
No |
# of visits |
Copay |
J36A. Primary care provider |
1 |
0
|
J36A1 |
J36A2 |
J36B. Nurse practitioner |
1 |
0
|
J36B1 |
J36B2 |
J36C. Endocrinologist |
1 |
0
|
J36C1 |
J36C2 |
J36D. Cardiologist |
1 |
0
|
J36D1 |
J36D2 |
J36E. Ophthalmologist |
1 |
0
|
J36E1 |
J36E2 |
J36F. Podiatrist |
1 |
0
|
J36F1 |
J36F2 |
J36G. Dentist |
1 |
0
|
J36G1 |
J36G2 |
|
Yes |
No |
# of visits |
Copay |
J36H. Did you have to visit the emergency room during the last 6 months? |
1 |
0 |
J36H1 |
J36H2 |
|
J36H3 |
|||
J36I. Did you have to stay overnight in the hospital during the last 6 months? |
1 |
0 |
J36I1 |
J36I2 |
|
J36I3 |
|||
J36J. Did you have any surgeries during the past 6 months? |
1 |
0 |
J36J1 |
J36J2 |
|
J36J3 |
Monthly Script Peer Mentor
Monthly Calls
CV 1. Date enrolled: / /
CV2. Date of phone call: / /
Check in: ______1 month _______3 month
Monthly Script Peer Mentor
Hello this is ________________________________ from the diabetes study at the VA.
Is ___________________________________ there?
- No, when might be a good time for me to call back to get____________________?
- Yes, would this be an ok time to talk for 5 minutes?
-No, when should I call back_________________________
-Yes, great.
1. Did you talk to __________________ in the past 30 days? Yes 1/No 0
1a. If no, why not? ______________________________________________________
1b. If Yes. How many times did you talk to them? ___________________________
2. How did it go?____________________________________________________________
3. Do you have any concerns?_________________________________________________
4. Did you use the take home sheets to guide your conversation?______________________
4a. [if no] Why not?____________________________________________________
4b. [if yes] Did you find it helpful? How so? __________________________________
5. What were some of the topics you discussed?____________________________________
6. What were some of the barriers they felt they were facing to getting their diabetes in control?
____________________________________________________________________________
7. What are his/her goals?______________________________________________________
8. Were you able to help him/her come up with a realistic plan?_________________________
9. Are they able to follow the plan?_______________________________________________
10. Is there something you would like to discuss in regards to mentoring?_________________
10a. [if yes] What is it_____________________________________________________
10b. follow-up until all issues raised__________________________________________
11. [If spoke to mentee 4 or more times] Would you like to schedule a time to come and pick up your voucher for talking to your mentee 4 or more times?____________________________________________________________________
(We do not send payments by mail)
Thank you, I will call again next month.
Begin - 18 Month Survey
FOLLOW-UP SURVEY
6 Month Follow-up ______
12 Month Follow-up _______
18 Month Follow-up _______
CV1. Date enrolled: / /
CV2. Data entered by: (initials)
CV3. Data checked by: (initials)
CV4.
Poorly Controlled Patient 1
Peer Mentor 2
CV5.
Arm
Usual Care 1
Peer Mentoring 2
FFM 3
12-month measurements
TM1. Initial HbA1c: _________________________________________
TM2. Blood Pressure 1: _________________________________________
TM3. Blood Pressure 2: _________________________________________
TM4. Blood Pressure Average: _________________________________________
TM5. Direct LDL: _________________________________________
TM6. Height: _________________________________________
TM7. Weight: _________________________________________
TM8. BMI: ______________________________________________
TM9. Primary Care Physician: ________________________________________
|
||||
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
If yes, go to question 4. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 4. |
||||
|
1 |
0 |
77 |
99 |
If no, go to question 6. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 6. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 11. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 9. |
||||
|
1 |
0 |
77 |
99 |
If no, go to question 11. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 11. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 16. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 16. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 16. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 24. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 24. |
||||
|
1 |
0 |
77 |
99 |
If yes, go to question 24. |
||||
|
1 |
0 |
77 |
99 |
If no, go to question 22. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 28. |
||||
|
1 |
0 |
77 |
99 |
If no, go to question 27. |
|
Some tasks |
Most tasks |
All tasks |
Don’t know |
Refused |
|
1 |
2 |
3 |
77 |
99 |
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
If yes, go to question 31. |
||||
|
1 |
0 |
77 |
99 |
|
1 |
0 |
77 |
99 |
|
Happy |
Unhappy |
Don’t Know |
Refused |
|
1 |
2 |
77 |
99 |
If Unhappy, go to question 33. |
|
Happy & Interested |
Somewhat happy |
Don’t Know |
Refused |
|
1 |
2 |
77 |
99 |
If happy or somewhat happy, go to question 34. |
|
Somewhat unhappy |
Very unhappy |
So unhappy that life is not worthwhile |
Don’t know |
Refused |
|
1 |
2 |
3 |
77 |
99 |
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
If no, go to question 37. |
|
Rarely |
Occasionally |
Often |
Almost always |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
77 |
99 |
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
|
Able to remember most things |
Somewhat forgetful |
Very forgetful |
Unable to remember anything at all |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
77 |
99 |
|
Able to think clearly and solve problems |
Had a little difficulty |
Had some difficulty |
Had a great deal of difficulty |
Unable to think or solve problems |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
5 |
77 |
99 |
|
Yes |
No |
Don’t Know |
Refused |
|
1 |
0 |
77 |
99 |
If no, go to question 41. |
|
None |
A few |
Some |
Most |
All |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
5 |
77 |
99 |
|
Excellent |
Very good |
Good |
Fair |
Poor |
Don’t know |
Refused |
|
1 |
2 |
3 |
4 |
5 |
77 |
99 |
As far as you know, do you have any of the following health conditions at the present time?
B. Charlson Morbidity Scale |
||||
|
Yes |
No |
Don’t Know |
Refuse |
B1. Anemia (low blood) – including sickle cell anemia |
1 |
0 |
77 |
99 |
B2. Asthma, emphysema, or chronic bronchitis |
1 |
0 |
77 |
99 |
B3. Arthritis or rheumatism |
1 |
0 |
77 |
99 |
B4. Back problems (including spine or disk) |
1 |
0 |
77 |
99 |
B5. Cancer, diagnosed in the past 3 years |
1 |
0 |
77 |
99 |
B6. Depression |
1 |
0 |
77 |
99 |
B7. Diabetes |
1 |
0 |
77 |
99 |
B8. Digestive problems (ulcer, colitis, gallbladder disease) |
1 |
0 |
77 |
99 |
B9. High blood pressure |
1 |
0 |
77 |
99 |
B10. HIV illness or AIDS |
1 |
0 |
77 |
99 |
B11. Kidney problems |
1 |
0 |
77 |
99 |
B12. Liver problems (cirrhosis) |
1 |
0 |
77 |
99 |
B13. Stroke |
1 |
0 |
77 |
99 |
C. SF-1 Health Survey
|
||||
C1. In general, would you say your health is…
|
||||
Excellent |
Very Good |
Good |
Fair |
Poor |
1 |
2 |
3 |
4 |
5 |
D. HYPOGLYCEMIC SYMPTOMS
|
|||||||
DM Symptoms |
|
||||||
|
0 Times |
1 Time |
2 Times |
3 Times |
4-6 Times |
7-12 Times |
Don’t know |
1. How many times in the LAST MONTH have you had a low blood sugar (glucose) reaction with symptoms such as sweating, weakness, anxiety, trembling, hunger or headaches? |
1 |
2 |
3 |
4 |
5 |
6 |
77 |
2. How many times in the LAST Month have you had severe low blood sugar reactions such as passing out or needing help to treat the reaction? |
1 |
2 |
3 |
4 |
5 |
6 |
77 |
3. How many days in the LAST 3 MONTHS have you had high blood sugar with symptoms such as thirst, dry mouth and skin, less appetite, nausea, or fatigue? |
1 |
2 |
3 |
4 |
5 |
6 |
77 |
E. Diabetes Distress Scale (DDS-2)
Living with diabetes can sometimes be tough. There may be many problems and hassles concerning diabetes and they can vary greatly in severity. Problems may range from minor hassles to major life difficulties. For the following, please consider the degree to which each of the items may have distressed or bothered you during the past month.
|
Not a Problem |
Minor Problem |
Moderate Problem |
Somewhat Serious Problem |
Serious Problem |
E1. Feeling overwhelmed by the demands of living with diabetes |
1 |
2 |
3 |
4 |
5 |
E2. Feeling that I am often failing with my diabetes regimen |
1 |
2 |
3 |
4 |
5 |
F. Patient Health Questionnaire (PHQ2 - Depression)
|
||||
Over the last 2 weeks, how often have you been bothered by any of the following problems? |
||||
|
Not at all |
Several Days |
More than half the days |
Nearly every day |
F1. Little interest or pleasure in doing things
|
0 |
1 |
2 |
3 |
F2. Feeling down, depressed, or hopeless
|
0 |
1 |
2 |
3 |
G. SUPPORT NEEDS, RECEIVED, ATTITUDES (from Diabetes Care Profile)
G1. I want a lot of help and support from my family or friends in:
|
||||||
|
Strongly disagree |
Somewhat disagree |
Neutral |
Somewhat agree |
Strongly agree |
Does not apply |
G1A. Following my meal plan. |
1 |
2 |
3 |
4 |
5 |
88 |
G1B. Taking my medicine. |
1 |
2 |
3 |
4 |
5 |
88 |
G1C. Taking care of my feet. |
1 |
2 |
3 |
4 |
5 |
88 |
G1D. Getting enough physical activity. |
1 |
2 |
3 |
4 |
5 |
88 |
G1E. Testing my sugar. |
1 |
2 |
3 |
4 |
5 |
88 |
G1F. Handling my feelings about diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G2. My family or friends help and support me a lot to:
|
||||||
|
Strongly disagree |
Somewhat disagree |
Neutral |
Somewhat agree |
Strongly agree |
Does not apply |
G2A. Follow my meal plan. |
1 |
2 |
3 |
4 |
5 |
88 |
G2B.Take my medicine. |
1 |
2 |
3 |
4 |
5 |
88 |
G2C. Take care of my feet. |
1 |
2 |
3 |
4 |
5 |
88 |
G2D. Get enough physical activity. |
1 |
2 |
3 |
4 |
5 |
88 |
G2E. Test my sugar. |
1 |
2 |
3 |
4 |
5 |
88 |
G2F. Handle my feelings about diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3. My family or friends:
|
||||||
|
Strongly disagree |
Somewhat disagree |
Neutral |
Somewhat agree |
Strongly agree |
Does not apply |
G3A. Accept me and my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3B.Feel uncomfortable about me because of my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3C. Encourage or reassure me about my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3D. Discourage or upset me about my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3E. Listen to me when I want to talk about my diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
G3F. Nag me about diabetes. |
1 |
2 |
3 |
4 |
5 |
88 |
SELF-EFFICACY
How much do you agree or disagree with each statement? I am able to:
H. Perceived Confidence in Diabetes Scale |
|||||||
|
Not at all True |
Usually Not True |
Sometimes but Infrequently True |
Occasionally True |
Often True |
Usually True |
Very True |
H1. I feel confident in my ability to manage my diabetes. |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
H2. I feel capable of handling my diabetes now. |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
H3. I am able to do my own routine diabetes care now. |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
H4. I am able to meet the challenges of controlling my diabetes. |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
|
Not at all Confident |
Somewhat Confident |
Moderately Confident |
Confident |
Extremely Confident |
H5. How confident are you in your ability to take your diabetes medications exactly as directed by your doctor? |
1 |
2 |
3 |
4 |
5 |
Perceived DM Control |
|||||
|
Not Very Well |
Not Well |
Neither Not Well or Well |
Well |
Very Well |
H6. How well do you think you are managing to control you diabetes? |
1 |
2 |
3 |
4 |
5 |
Perceived Benefits |
|||||
|
Strongly disagree |
Disagree |
Neither agree nor disagree |
Agree |
Strongly agree |
H7. Sticking to my diabetes medication will help prevent diseases (complications) related to diabetes. |
1 |
2 |
3 |
4 |
5 |
H8. Sticking to my diabetes medication will help me control my diabetes. |
1 |
2 |
3 |
4 |
5 |
H9. Sticking to my diabetes medication will help me feel better. |
1 |
2 |
3 |
4 |
5 |
H10. Sticking to my diabetes medication will help me live longer. |
1 |
2 |
3 |
4 |
5 |
Perceived Barriers
|
|||||
|
Strongly disagree |
Disagree |
Neither agree nor disagree |
Agree |
Strongly agree |
H11. I have difficulty remembering when to take my diabetes medication. |
1 |
2 |
3 |
4 |
5 |
H12.Family problems make it difficult for me to take my diabetes medication regularly. |
1 |
2 |
3 |
4 |
5 |
H13. I would have to change too many habits to take my diabetes medication regularly. |
1 |
2 |
3 |
4 |
5 |
H14. Taking my diabetes medication interferes with my normal daily activities. |
1 |
2 |
3 |
4 |
5 |
H15. I don’t feel motivated to take my diabetes medication regularly. |
1 |
2 |
3 |
4 |
5 |
H16. Morisky Medication Adherence (SELF MANAGEMENT BEHAVIOR)
|
Yes |
No |
A. Do you ever forget to take your diabetes medicine? |
1 |
0 |
B. Are you always careful about taking your diabetes medicine? |
1 |
0 |
C. When you feel better do you sometimes stop taking your diabetes medicine? |
1 |
0 |
D. Sometimes if you feel worse when you take the diabetes medicine, do you stop taking it? |
1 |
0 |
H17. During the past 6 months, did you start using insulin?
H17A. If yes, do you know the name of your insulin? _____________________________________________
|
Once a Day in the Morning |
Once a Day in the Evening |
Twice a Day |
Three Times a Day |
Four or More Times a Day |
I use an Infusion Pump |
H18. How many times during the day do you usually take your insulin? |
1 |
2 |
3 |
4 |
5 |
6 |
|
|
|
|
|
|
|
H19. How old were you when you started taking insulin? years
H20. Have you taken insulin for as long as you have had diabetes?
Yes |
1 |
No |
0 |
SELF-MANAGEMENT (from Summary of Diabetes Self-Care Activities Measure)
The questions below ask you about your diabetes self-care activities during the past 7 days. If you were sick during the past 7 days, please think back to the last 7 days that you were not sick.
|
0 days |
1 day |
2 days |
3 days |
4 days |
5 days |
6 days |
7 days |
I1. How many of the last seven days have you followed a healthful eating plan? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I2.On average, over the past month, how many days per week have you followed your eating plan? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I3. On how many of the last seven days did you eat five or more servings of fruits and vegetables? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I4. On how many of the last seven days did you eat high fat foods such as red meat or full-fat dairy products? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I5. On how many of the last seven days did you participate in at least 30 minutes of physical activity? (Total minutes of continuous activity, including walking) |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I6. On how many of the last seven days did you participate in a specific exercise session (such as swimming, walking, biking) other than what you do around the house or as part of your work? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I7. On how many of the last seven days did you test your blood sugar? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I8. On how many of the last seven days did you test your blood sugar the number of times recommended by your health provider? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I9. On how many of the last seven days did you check your feet? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
I10. On how many of the last seven days did you inspect the inside of your shoes? |
0 |
1 |
2 |
3 |
4 |
5 |
6 |
7 |
J. The next few questions are about the money you may have spent to improve your diabetes control during the last 6 months. Please answer yes or no to whether you have bought any of the following during the study.
|
Yes |
No |
Estimated cost |
J1. Weight loss program (Weight Watchers, Jenny Craig, Optifast, Nutrasystem, Overeater’s Anonymous, etc.) |
1 |
0 |
J1A |
J2. Vitamins, diet pills, supplements
|
1 |
0 |
J2A |
J3. Cookbooks
|
1 |
0 |
J3A |
J4. Cooking videos
|
1 |
0 |
J4A |
J5. Blender
|
1 |
0 |
J5A |
J6. Microwave
|
1 |
0 |
J6A |
J7. Steamer
|
1 |
0 |
J7A |
J8. Pots and pans for low fat cooking
|
1 |
0 |
J8A |
J9. Mixer or food processor
|
1 |
0 |
J9A |
J10. Food scale
|
1 |
0 |
J10A |
J11. Freezer
|
1 |
0 |
J11A |
J12. Wok or electric grill
|
1 |
0 |
J12A |
J13. Other food related items (please specify):
|
1 |
0 |
J13A |
|
Yes |
No |
Estimated cost |
J14. Bicycle |
1
|
0 |
J14A |
J15. Exercise videos (Wii fit, Tae Bo, P90X, etc.) |
1
|
0 |
J15A |
J16. Free weights, dumbbells, hand & ankle weights |
1
|
0 |
J16A |
J17. Home gym |
1
|
0 |
J17A |
J18. Stationary bicycle |
1
|
0 |
J18A |
J19. Rowing or skiing machine, stair stepper |
1
|
0 |
J19A |
J20. Treadmill |
1
|
0 |
J20A |
J21. Sport or water aerobics equipment (basketball, volleyball, tennis racket, etc.) |
1
|
0 |
J21A |
J22. Health or gym club membership |
1
|
0 |
J22A |
J23. Exercise, aerobic, yoga, or dance class |
1
|
0 |
J23A |
J24. Personal trainer |
1
|
0 |
J24A |
J25. Exercise sneakers |
1
|
0 |
J25A |
J26. Exercise clothing (socks, underwear, special shoes, etc.) |
1
|
0 |
J26A |
J27. Other fitness related items (please specify): |
1
|
0 |
J27A |
|
Yes |
No |
Estimated cost |
J28. Is there anything else you bought to help you control your diabetes that we haven’t already mentioned? Please specify: |
1 |
0 |
J28A |
Now I have some additional questions.
J29. In the past 6 months, how much extra money did you spend on average per week for diabetes friendly foods or extra fruits and vegetables?
_____________________
J30. In the last 6 months, how much in total have you paid for your diabetes prescriptions (pills, insulin, etc.)?
_____________________
J31. In the last 6 months, how much money have you paid for diabetic supplies (strips, lancets, Glucometers, etc.)?
_____________________
J32. In the past 6 months, how much money have you spent on special clothing for exercise (athletic clothing, supportive underwear, special shoes like cleats)?
J33. In a normal week, how many hours do you yourself spend shopping for and preparing food for yourself?
_____________________
J34. In a normal week, how many hours do your spouse, family, and friends spend shopping and preparing food for you?
J35, How much time does it take you to travel to your Improving Diabetic Outcomes (IDO research study) visit?
_____________________
J36. Did you visit any of the following doctors/healthcare providers during the study?
|
Yes |
No |
# of visits |
Copay |
J36A. Primary care provider |
1 |
0
|
J36A1 |
J36A2 |
J36B. Nurse practitioner |
1 |
0
|
J36B1 |
J36B2 |
J36C. Endocrinologist |
1 |
0
|
J36C1 |
J36C2 |
J36D. Cardiologist |
1 |
0
|
J36D1 |
J36D2 |
J36E. Ophthalmologist |
1 |
0
|
J36E1 |
J36E2 |
J36F. Podiatrist |
1 |
0
|
J36F1 |
J36F2 |
J36G. Dentist |
1 |
0
|
J36G1 |
J36G2 |
|
Yes |
No |
# of visits |
Copay |
J36H. Did you have to visit the emergency room during the last 6 months? |
1 |
0 |
J36H1 |
J36H2 |
|
J36H3 |
|||
J36I. Did you have to stay overnight in the hospital during the last 6 months? |
1 |
0 |
J36I1 |
J36I2 |
|
J36I3 |
|||
J36J. Did you have any surgeries during the past 6 months? |
1 |
0 |
J36J1 |
J36J2 |
|
J36J3 |
End - 18 Month Survey
ID #_________
File Type | application/vnd.openxmlformats-officedocument.wordprocessingml.document |
Author | Gutierrez, Jennifer |
File Modified | 0000-00-00 |
File Created | 2021-01-26 |