Att_04 Follow-up Questionnaire Summary of Changes

GuLF STUDY Follow-up Questionnaire Summary
Follow-up
Questionnaire Section
A: Introduction Scripts

Questions Retained / Removed from the Telephone Enrollment
and the Home Visit Baseline Questionnaires
Telephone Enrollment:
Updated scripts

B: Proxy Interview

Telephone Enrollment:
Removed clean-up work questions
Removed identity confirmation questions (DOB, Name, and additional address questions)

C: Background Information

Telephone Enrollment:
Removed DOB and name confirmation
Revised address questions to display and confirm current physical and mailing address on file

D: Demographic Measures

Telephone Enrollment:
Retained marital status
Removed gender, race/ethnicity, education, # of children in home questions

E: Clean-related Tasks and Exposures
During Clean-up

Telephone Enrollment:
Removed all work and exposure questions
Added questions for participants who indicated that they were still working on the clean-up effort at the time of their
last interview (date stopped, description and duration of any new tasks)
Home Visit Baseline:
Removed all work and exposure questions
Removed all non-oil spill / hobby exposure questions

F: Health

Telephone Enrollment:
Removed height
Removed symptoms during the spill
Reduced the number of doctor diagnosed condition questions, yet eliminated sub questions related to the date of
diagnosis and included logic so that they do not display for participants who previously indicated that they have the
conditions
Reduced the number of health symptoms experienced during the past thirty days
Retained questions related to seeking treatment for any symptoms/conditions
Home Visit Baseline:
Removed current medication questions
Retained ATS respiratory questions
Reduced the number of doctor diagnosed condition questions, yet eliminated sub questions related to the date of
diagnosis and included logic so that they do not display for participants who previously indicated that they have the
conditions

G: Mental Health - Note that some scales
were removed from the follow-up but
included into a separate module for a
subset of participants.

Telephone Enrollment:
Revised and reduced worry/stress questions
Revised and reduced mental health diagnosis questions
Retained the Perceived Stress Scale
Retained questions related to seeking treatment for any symptoms/conditions
Home Visit Baseline:
Removed anxiety, PTSD, resiliency and coping, social support,
Retained Depression scales and suicide ideation

I: Alcohol

Telephone Enrollment:
Revised and reduced current and past drinking status
Added question and doctor intervention/commentary for drinking behavior
Home Visit Baseline:
Removed all questions

J: Tobacco

Telephone Enrollment:
Minor revisions and reductions
Home Visit Baseline:
Removed all questions

K: Socioeconomic Factors

Telephone Enrollment:
Retained income questions
Retained current and longest work history questions
Retained oil industry employment questions
Removed advanced occupational history questions
Reduced military service questions
Removed occupational exposures section
Home Visit Baseline:
Removed non-occupational exposures section

M: Residential History

Home Visit Baseline:
Reduced residential history questions
Removed characteristics of current / past residences

M: Residential History

Home Visit Baseline:
Reduced residential history questions
Removed characteristics of current / past residences

N: Hurricane Katrina

Home Visit Baseline:
Retained for participants who did not previously answer the questions

X: Hurricane Isaac

Home Visit Baseline:

L: Wrap-up and Conclusion

Telephone Enrollment:

Retained for participants who did not previously answer the questions

Retained SSN questions for participants who did not previously provide SSN
Retained email, text message, and alternate contact information
Revised scripts
Sections Removed Completely

Telephone Enrollment:
H: Reproductive History and Menopausal Status
Home Visit Baseline:
A: Scheduling Scripts
B: Confirmation Scripts
C: Informed Consent
D: Specimen Collection
G: Access to Healthcare
H: Family Medical History
J: Occupational History
O: Physical Activity
P: Fish Consumption
RX: Specimen Shipping Administrative Module
S: Medical Referral Administrative Module
T: Incident Report Administrative Module
U: Follow-up Call Administrative Module
V: Shipping Confirmation
W: Additional Specimen Collection Module
BTEX Supplemental Survey
Q: ATSDR Supplemental Survey