HANDI Focus Group Study
Young Adults Aged 18–19 Years Living With Hemophilia
Respondent Screener
General Recruiting Criteria:
Recruit young adult males and females aged 18–19 years living with hemophilia.
Recruit young adult participants with different levels of severity.
Must not have participated in a focus group within the last 6 months.
General Notes
Please recruit 10 to ensure that 6 to 8 participants are in each group.
Young adult participants will receive a $75 cash incentive.
Participants will receive a light snack and refreshments.
Each focus group will last approximately 90 minutes.
All focus groups will be audio taped and videotaped. Both the audio and the video tapes will be made available to the moderator immediately after the focus group.
The identity of the focus group participants must remain private.
All participants must be fluent in English (determined by phone conversation with recruiter).
Groups will be observed by staff from the Centers for Disease Control and Prevention (CDC), the National Hemophilia Foundation (NHF), and ICF Macro.
Participants do not have to answer any questions that they do not want to, but they are encouraged to participate.
No more than one participant may be recruited from the same household.
Focus Group Schedule:
Date |
Time |
Participants |
Location |
TBD |
TBD |
Young adults aged 18–19 years living with hemophilia |
Atlanta, GA Detroit, MI Philadelphia, PA San Francisco, CA |
Interviewer/Recruiter’s Text:
Hello, my name is _______________. I am calling from [insert name of facility]. We are recruiting young adults aged 18–19 years living with hemophilia to participate in a research project on behalf of the Centers for Disease Control and Prevention (CDC) and the National Hemophilia Foundation (NHF). Your participation would help us to gain a better understanding of what messages or information is important to communicate to young adults your age living with hemophilia. If selected, you will receive an incentive of $75 for participating in the group.
Note to screener: If the person is not familiar with a focus group, please read the following definition:
A focus group is when you gather a group of six to eight people, who have been selected because they have something in common, to get their thoughts and opinions about a particular issue, product, service, or idea. The focus group is led by a person who is experienced and trained in leading a discussion with the group participants. A focus group usually takes place in a comfortable environment where participants are free to talk with other group participants.
May I ask you a few questions to see if you are eligible to participate in this study?
__________ Yes [Continue]
__________ No [Thank you; end call]
Have you participated in a focus group within the last 6 months?
__________ Yes [Thank you; end call]
__________ No [Continue]
What is your age?
__________ 18–19 [Continue]
__________ 16–17 [if eligible, recruit and screen for group with adolescents 16–17]
___________ Less than age 16 [Thank you; end call]
___________ 20 and over [Thank you; end call]
Have you or any member of your immediate family ever worked for the following organizations:
__________ CDC [If yes, thank you; end call]
__________ NHF [If yes, thank you; end call]
__________ Hemophilia research or treatment center [If yes, thank you; end call]
__________ Marketing research firm [If yes, thank you; end call]
__________ None of the above [Continue]
Have you been diagnosed with hemophilia?
__________ Yes [Continue]
___________ No [Thank you; end call]
What type of hemophilia do you have? [Gather the information; not an exclusive or inclusive criterion]
__________ Hemophilia A/Factor VIII deficiency [Continue]
__________ Hemophilia B/Factor IX deficiency [Continue]
________ Von Willebrand disease or other clotting disorder [Thank you; end call]
What is the severity of hemophilia that you have? [Gather the information; not an exclusive or inclusive criterion]
__________ Mild [Continue]
__________ Moderate [Continue]
__________ Severe [Continue]
__________ Don’t know [Continue]
What is your gender/sex? [Gather the information; not an inclusive/exclusive question]
__________ Male [Continue]
__________ Female [Continue]
What is your race/ethnicity? [Gather the information; not an inclusive/exclusive question]
Ethnicity:
Race:
|
What is the highest level of education that you have completed? [Gather the information; not an inclusive/exclusive question]
Less than high school [Continue]
High school graduate or GED [Continue]
Technical/vocational school [Continue]
College [Continue]
Some college (1–3 years toward a [Continue]
Bachelor’s degree) [Continue]
We would like to invite you to participate in a focus group with six to eight other young adults in your age group. This focus group will gather your opinions about delivering messages and information to young adults living with hemophilia. The focus group will last approximately 90 minutes and will be audio taped and videotaped; however, your participation in the focus group will remain private.
The focus group will take place at_____________________________________
on _____________ at ___________ p.m.
Termination Script: I'm sorry, but we are currently looking for people who fit a different profile. Thank you for your time and interest in this research.
Will you be available to participate at this time?
__________ Yes [Continue]
__________No [Thank you; end call]
I am pleased that you will be able to join us. I would like to send you a confirmation letter. Please share with me your contact information, which will be private and not shared with anyone.
Participant Name ______________________________________________________
Address _____________________________________________________
City _________________________State _______ Zip ________________
Day Phone____________________ Evening Phone_____________________
Cell Phone ___________________________ FAX______________________
E-mail _________________________________________________________
Confirm:
Date of Focus Group __________________ Time ______________________
Thank you very much. I appreciate your taking time to respond to my questions and look forward to your participation in this focus group.
| File Type | application/msword |
| File Modified | 2010-04-23 |
| File Created | 2010-04-23 |