Attachment G

DDI Patient Survey – Frequently Asked Questions (FAQs)

What is the purpose of this study?

We are doing this survey to assess possible reasons why people choose to be screened for diabetes. Some factors might include characteristics of the screening program, patient background as well as the cost of health care. This information will provide the Centers for Disease Control with some of the answers they need in planning and evaluating diabetes screening programs in this and other communities.

Why am I being asked to participate?

We are asking people age 40 and older who have not been previously diagnosed with diabetes to participate in this survey. We hope to talk with 600 clinic patients in 10 regions of the country at clinics that participated in pilot test of the DDI. The Diabetes Detection Initiative (DDI) was a pilot program with the goal of screening and detecting people with previously undiagnosed diabetes. It was implemented during late fall 2003 through spring 2004. Your participation in this survey will provide us with background information about yourself, information on the costs associated with your clinic visit, and the features you prefer in a diabetes screening program. This survey should take about 20 minutes to complete and can be done while you wait to see your health care provider today.

Are my answers to the survey confidential?

We never link survey answers to your name. We keep the signed documents that contain your name, separate from your completed survey and in a secure location so that no one outside of the research staff will know you participated. When you type your answers into the computer, they are coded with a unique identifier that cannot be linked to your name. Your survey answers are only used for research purposes and will be presented in a summarized form. Your answers cannot be linked back to your name and no individuals are identified in summaries or reports.

Who is funding this Study?

The Centers for Disease Control and Prevention are funding this study. The Battelle Centers for Public Health Research and Evaluation were selected by CDC to conduct the study’s activities.

What is Battelle?

Battelle Centers for Public Health Research and Evaluation (CPHRE) is a unit of the Battelle Memorial Institute, a non-profit research organization. We conduct research and data collection activities for governmental and non-governmental public health projects. Battelle was selected as the research contractor by The Centers for Disease Control and Prevention (CDC) to conduct this research project.

Who do I call if I have further questions about the survey?

You can ask questions of the survey coordinator who approached you about this survey. Or call Glenna Redmond Wolf at (206) 528-3041 the Senior Study Leader they will be happy to answer your questions.

Who do I call if I have questions about my rights as a survey participant?

You can call the Chairperson of the Battelle Institutional Review Board at 1-888-810-9530 ext 500.

What does this question mean?

I am sorry, but I cannot interpret the question for you. Please answer the question however it means to you. You may also skip any question you do not wish to answer.

Do I have to answer this question?

We’d like you to answer as many of the questions you are comfortable answering. You may skip any question you do not wish to answer.

I am not sure about the exact number/length of time/amount etc., what should I put here?

Please just give us your best estimate.

I don’t wish to participate.

Oh, I understand, participation is voluntary. However, may I ask why you don’t wish to participate?