Attachment C13: Interview Guide, Care Coordinator
Form Approved
OMB No. 0920-XXXX
Exp. Date __xx/xx/20xx_______
Public reporting burden of this collection of information varies from 30 to 60 minutes with an estimated average of 45 minutes per response, including the time for reviewing instructions, searching existing data sources, gathering and maintaining the data needed, and completing and reviewing the collection of information. An agency may not conduct or sponsor, and a person is not required to respond to a collection of information unless it displays a currently valid OMB control number. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden to CDC/ATSDR Reports Clearance Officer; 1600 Clifton Road NE, MS D-74, Atlanta, Georgia 30333; ATTN: PRA (0920-XXXX)
A1. What is your position in this clinic? What are your responsibilities in relation to the spina bifida patients and their families who come to this clinic?
A3. How would you describe the spina bifida patient population that you interact with?
(e.g., age range, numbers served, race/ethnicity, SES)
Support groups
Education
Counseling
Mental health
Medical assessments (multi-specialty care)
Probe for specific medical assessments routinely performed: (i.e., bladder/bowel continence, musculoskeletal, neurological, organ function, shunt, psychosocial development, sexual health, spine, etc.)
Bowel-related care
Other medical care
Referral services
Funding services
Medical equipment and supplies
We would like to talk about how care is coordinated in this clinic.
B1. What are the goals of care coordination in this clinic? [What are the outcomes care coordination should achieve to be considered successful?]
Possible Probes:
Developing plan for appropriate services
Assistance in accessing needed services and resources (including medical supplies and prescriptions)
Communication among multiple professionals
Avoidance of duplication of services and costs
Optimize physical and emotional health and well-being
Improve child and family quality of life
B2. What do you consider the critical components of care coordination in this clinic? [For example, how is care coordination organized – team or single care coordinator?]
B3. How would you describe your roles and functions as care coordinator in this clinic?
Probe for the following areas:
Assessment: Helping to assess the needs of the children brought to the clinic
Planning: Creating a plan of care for each child
Implementation: Helping to provide care to each child such as by providing referrals to services
Communication: Communicating with families such as by providing education about spina bifida
Coordination: Working directly with various providers about each child’s needs and advocating for services
Monitoring: Following up to ensure that services are provided and monitoring progress
Evaluation: Helping to assess whether care coordination is working well in the clinic
B4. How do you develop a plan of care for each patient and his or her family?
Who is involved?
How is the plan of care communicated to the patients and families?
What is the process for implementing the plan of care?
How often is the plan of care reviewed or revised to meet the needs of the families?
How, and where, is the plan of care recorded?
B5. Can you walk us through all of the steps you would complete with a typical spina bifida patient? If possible, please include what you would do during the clinic and what activities you would do outside of clinic hours.
B6. For each patient, approximately what percentage of care coordination is provided by a) staff at this clinic, b) the patient’s family, and c) other entities?
I’d like to talk specifically about services you provide to help families plan for the transition of their children to adulthood…
C1. Do you have a formal process to plan for the transition of your patients from care in a pediatric setting to adult-centered care? How is the plan recorded and how is it managed?
Linkage to providers
Education/vocation
Health care
Independent living according to the abilities of the young adult
Social participation
Financial/insurance
D1. What types of health and other service systems (outside of the clinic) do you interact with in your role as care coordinator? (e.g., with schools, community services, external medical care providers or allied health professionals)?
D2. How do you coordinate these other service systems for each patient and his or her family?
D3. What type of follow-up do you do to make sure patients and families are receiving the services they are referred to?
Probe for feedback from families or service providers.
E1. What would you say are the challenges to providing care coordination in this spina bifida clinic?
Include challenges that have been overcome in offering care coordination and challenges that have not been overcome.
Possible probes:
Staff training
Provider attitudes or beliefs regarding value of care coordination
Reimbursement/cost issues
Staff time
Communication between care providers or different care systems
Organization of systems of care
Capacity to meet all needs of all patients
Families’ ability to take advantage of services offered.
Ability to determine who is eligible for services.
E2. How have the challenges to providing care coordination been overcome in this clinic?
[Probes] For those challenges you say have not been overcome, what is it that keeps the clinic from being able to overcome them? What do you think it would take to be able to overcome those challenges?
E3. What benefits have you achieved from having a care coordination program in this clinic? (How effective has it been in reaching its goals?)
What aspects have worked best?
What aspects have not worked well?
E4. If you were giving advice to a spina bifida clinic that is considering introducing care coordination, what are the most important things they should consider?
E5. What about if a spina bifida clinic already has some level of care coordination, but wants to expand or improve it; what advice would you give them on how best to improve the service they offer?
F1. Do you have any other ideas or recommendations for how best to offer care coordination in spina bifida clinics in general?
F2. Is there anything else you would like to tell us about care coordination services in this clinic (that we may have forgotten to ask)?
Thank you very much for taking the time to discuss these issues with us. Your knowledge and perspective is very important to our study. If you have anything else you would like to tell us, or any questions for us, please feel free to contact us.
| File Type | application/msword |
| File Title | Attachment C13: Interview Guide, Care Coordinator |
| Author | pax1 |
| Last Modified By | pax1 |
| File Modified | 2007-06-11 |
| File Created | 2007-06-11 |