6 Cpr

ATTACHMENT 6

Online Survey to Assess Usefulness of and Inform Changes to

NCI’s Cancer Progress Report

________________________________________________________________________

OMB # 0925-0046-10

Exp. Date 10/31/2006

National Cancer Institute Questionnaire:

2005 Update of the Cancer Progress Report

FINAL

Since 2001, the National Cancer Institute (NCI) has produced the Cancer Progress Report—a biennial report summarizing our nation's progress against cancer in relation to the Healthy People 2010 goals set for cancer by the United States Department of Health and Human Services. In preparation for the Report’s 2005 release, NCI would like your feedback on its content, format, relevance, and usefulness. You do not need any prior knowledge of or familiarity with the Cancer Progress Report to participate in this evaluation. Your comments and suggestions will help guide future updates and revisions to better meet your information needs.

While prior knowledge of the Cancer Progress Report is not required, you may wish to familiarize yourself with the Web site in advance by clicking on the icon above; this will open up the Report's Web site in a new window. It will not disrupt the survey.

Your participation in this survey is completely voluntary. Please be assured that your responses will be kept confidential and will not be disclosed to anyone outside NCI or its contractor, NOVA Research Company, except as otherwise required by law. Data will be provided to the NCI in aggregate form only, with any potentially identifying information removed. You may skip any questions that you prefer not to answer. This survey should take approximately 15 minutes to complete.

We appreciate your taking time to complete this survey.

Background Information

1. How would you describe where you work? (Select only one.)

a.	National Institutes of Health
	i. National Cancer Institute ii. Other Institute or Center
b.	Other Government Agency
	i. National Level ii. State Level iii. Local Level
c.	Advocacy Organization
	i. National Level ii. State Level iii. Local Level
d.	Hospital/cancer center
e.	Private medical practice
f.	Academic institution
g.	Private industry
h.	Research organization
i.	Association
j.	Other (please specify):

2. How would you primarily describe your work? (Select only one.)

a.	Cancer advocacy
b.	Oncology—Patient Care (e.g., oncologist, oncology nurse, oncology social worker)
c.	Oncology—Research (e.g., clinical trials research, basic research)
d.	Epidemiologic or other statistical research
e.	Health communications/education/marketing
f.	Population science research (e.g., health behavior change, health services, and survivorship)
g.	Policy/decision making
h.	Public health
i.	Other (please specify):

3. What types of cancer information or data do you typically use in your work? (Select all that apply.)

		Site-specific information (e.g., lung, skin, breast cancers)	General Information
a.	Facts and figures
b.	Statistics
c.	General cancer information
d.	Cancer trends
e.	Information related to the cancer continuum (e.g. prevention, detection, diagnosis, treatment, end of life)
f.	Information designed for caregivers
g.	Cancer survivorship information
h.	Other (please specify):     
i.	I do not typically need cancer information or data in my work. (Skip to Q10)

4. In your profession, for what purposes do you typically use cancer information and data? (Pick the top 3.)

a.	Read as background information/resource material
b.	Formulate research questions
c.	Guide policy decisions
d.	Advocate for funding/intervention
e.	Determine research priorities
f.	Develop better measures (e.g., for treatment or quality of care)
g.	Distribute at conference, meeting, or similar venue
h.	Cite in research article, proposal, etc.
i.	Refer to in a scholarly article
j.	Decide what type of grant would be of interest to NCI
k.	Use to make handouts, pamphlets, brochures, etc.
l.	Other (please specify):

5. In the past year, approximately how often have you accessed cancer information and data in your work?

   a.	Daily
   b.	Weekly
   c.	Monthly
   d.	A few times a year
   e.	Not at all

6. In your work, what level of cancer data do you typically use? (Select all that apply)

a.	National
b.	State
c.	County
d.	Local

7. What cancer-related information, documents, or resources have you used in the past 12 months? If applicable, please specify whether you used the print or online version. (Select all that apply)

		Print	Online
a.	Annual Report to the Nation on the Status of Cancer
b.	Cancer Facts & Figures
c.	Cancer Progress Report
d.	The Nation’s Investment in Cancer Research (“Bypass Budget”)
e.	United States Cancer Statistics Report
f.	SEER Cancer Statistics Review
g.	Atlas of Cancer Mortality in the United States
h.	State Cancer Profiles
i.	NCI Monographs
j.	Other (please specify):
k.	Don’t know
l.	None used in the past 12 months (Skip to Q10)

8. In the past 12 months, which of these resources did you use the most? (Select only one.)

a.	Annual Report to the Nation on the Status of Cancer
b.	Cancer Facts & Figures
c.	Cancer Progress Report
d.	The Nation’s Investment in Cancer Research (“Bypass Budget”)
e.	United States Cancer Statistics Report
f.	SEER Cancer Statistics Review
g.	Atlas of Cancer Mortality in the United States
h.	State Cancer Profiles
i.	NCI Monographs
j.	Other (please specify):
k.	Don’t know

9. Think of the “most used” cancer resource that you selected in the previous question. What qualities make that resource more useful and valuable to you than other resources?

Prior Use

10. Prior to participating in this study, had you heard of or viewed the National Cancer Institute’s Cancer Progress Report?

a.	Yes (Continue to Q11)
b.	No (Skip to Q15)
c.	Don’t know (Skip to Q15)

11. How did you first become aware of the Cancer Progress Report?

a.	I learned of the Report from a colleague.
b.	I learned of the Report from materials or an announcement at a conference or professional meeting.
c.	I learned of the Report from a professional listserv.
d.	I located a link to the Report myself on NCI’s Web site. .(cancer.gov).
e.	I located a link to the Report myself on another Web site (not cancer.gov).
f.	I located the Report myself using a search engine (e.g., Google, yahoo).
g.	I viewed a hard copy of the 2001 Cancer Progress Report.
h.	Other (please specify):

12. In the past year, approximately how often have you referred to the Cancer Progress Report?

a.	Daily
b.	Weekly
c.	Monthly
d.	A few times a year
e.	Not at all in the past year

13. Tell us how you have used the Cancer Progress Report. I used it to … (Select all that apply.)

a.	Read as background information/resource material
b.	Formulate research questions
c.	Guide policy decisions
d.	Advocate for funding/intervention
e.	Determine research priorities
f.	Develop better measures (e.g., for treatment or quality of care)
g.	Distribute at a conference, meeting, or similar venue
h.	Cite in a research article, proposal, etc.
i.	Refer to in a scholarly article
j.	Decide what type of grant would be of interest to NCI
k.	Other (please specify):

14. How useful was the Cancer Progress Report to you in your work?

a.	Very useful
b.	Somewhat useful
c.	Not very useful
d.	Not at all useful

14a. Please explain why it was/was not useful. (Please be as specific as possible in your answer.) _______________________________

Relevance

Questions 15 through 17 will direct you to specific sections of the Cancer Progress Report. We know that you may not have had time to review the Cancer Progress Report Web site, so we have selected “Prevention” and “Sun Protection” as examples for the next three questions. Please consider these sections as representative of the entire Cancer Progress Report. We will provide you with a link to these pages with each survey question. The site will open in another window and will not disrupt the survey.

15. There are multiple summaries in the Cancer Progress Report on topics such as prevention, detection, and treatment. Please click here to view the prevention summary and take a moment to look at the page. How useful is this type of summary to the work you do?

a.	Very useful
b.	Somewhat useful
c.	Not very useful
d.	Not at all useful

Please explain your answer: __________

16. Please click here to view the section of the report called “Report at a Glance”: “Prevention–Sun Protection” and take a moment to review the information on this page. How useful is this type of information to you? In answering, please focus on the type of information rather than the specific topic of sun protection.

a.	Very useful
b.	Somewhat useful
c.	Not very useful
d.	Not at all useful

Please explain your answer: __________

17. We would now like you to review an additional page on “Sun Protection”. This section presents the same information from the Report at a Glance (which you viewed in the previous question), but in greater depth. Please click here to view the more detailed information on “Sun Protection” and take a moment to review the page. Which level of information is more likely to be of use to you?

a.	Report at a Glance
b.	Detailed section
c.	Both are likely to be useful
d.	Neither is useful

18. The Cancer Progress Report is a biennial report summarizing our nation's progress against cancer in relation to the Healthy People 2010 goals set for cancer by the United States Department of Health and Human Services. Now that you have seen the Cancer Progress Report, do you believe the Report achieves this purpose?

a.	Yes, the report achieves this purpose.
b.	The report somewhat achieves this purpose, but improvements could be made.
c.	No, the report does not achieve this purpose.

18a. (IF RESPONSE IS B OR C) What improvements or additions would you make to this report so that it achieves its purpose as a summary report on the nation’s progress against cancer?

18. Please list any resources that you are familiar with that serve the same purpose as the Cancer Progress Report.

18. The Cancer Progress Report is currently organized in terms of the cancer continuum (e.g., prevention, early detection, diagnosis, treatment, life after cancer, and end of life). An alternate is to organize the report by site-specific information (e.g., breast, prostate, lung, etc.). Which would you prefer?

a.	Cancer Continuum
b.	Site-specific
c.	Both
d.	Neither, please explain:

18. How would you describe the amount of information provided in the Cancer Progress Report?

a.	Too much information
b.	Just the right amount of information
c.	Not enough information

21a. What information should be added to or removed from the Cancer Progress

Report to make it more useful and informative?

Recommendations and Suggestions

18. In addition to the Web site, how likely are you to use these alternate formats for the Cancer Progress Report?

		Very likely	Somewhat likely	Somewhat unlikely	Not at all likely
a.	CD-ROM
b.	Hard copy, full-page size
c.	Hard copy, pocket-sized edition
d.	Fact sheets or small booklets on specific topic areas (prevention, early detection, diagnosis, etc.)
e.	Web site with interactive capabilities (e.g., ability to create graphs based on specific demographics, ability to view and print selected sections of the Report)
f.	Downloadable charts and graphs, without analysis or overview text
h.	Downloadable PDF of full report and/or chapters of the report
i.	Other (please specify)

18. What would be the best way to notify you about the release of the 2005 update of the Cancer Progress Report? (Pick the top 2.)

a.	Listserv announcement
b.	Personal e-mail
c.	Posting on cancer.gov home page
d.	Article in NCI Cancer Bulletin or other NCI publication(s)
e.	Have a print copy in stock at NCI’s exhibit at major conferences
f.	Other (please specify)

Thank you. Your input has been very helpful. NCI may conduct more detailed interviews to further evaluate the Cancer Progress Report. If you would be willing to further discuss your evaluation of and suggestions for improving the Cancer Progress Report, please provide your name, phone number, and e-mail address below.

Name:

Phone Number:

E-mail Address:

Thank you for your time and attention in completing this survey.

8

February 7, 2005